Do you know what's pissed me off most about this whole Covid thing. The fact people are actually being clean for once.
Like all the years I've caught colds, rhinovirus, flu etc. Because some cunt couldn't be bothered to wash their hands or cover their mouth/nose when coughing/sneezing.
Like I'm 25 and my lungs are working at 31% because of all the infection scars.
So take a minute and think about being clean all the time when you release yourself back into normal fucking society after all this. People who are immunocompromised exist everywhere, all the time.
I had a strange, nagging feeling I should go outside and take a portrait. It isn't something I do much anymore, so I was tempted to ignore it. I grabbed my camera and went outside, unsure where to go for the best lighting and background. I was led to this spot and no sooner than a couple of shots in, this little butterfly shows up and will NOT. LEAVE. ME. ALONE. It flew up and touched my face and sat on my hand and in my hair. I walked away and it followed me around for 10 minutes.
Completely convinced I just had a visit from my Swiftie cousin who passed away from cystic fibrosis 😭💜
Last night at 6:00pm, Claire Wineland our inspirational founder passed away. She was not in any pain and the medical staff said it was the m
“Last night at 6:00pm, Claire Wineland our inspirational founder passed away. She was not in any pain and the medical staff said it was the most peaceful passing they had ever witnessed.
She was surrounded by love and with her mother Melissa Yeager and father John Wineland; they saw her into this world for her first breath and were with her for her last.
She suffered a massive stroke on August 26th after a successful double lung transplant. The stroke was caused by a blood clot. After a week of intensive care and various life saving procedures, it became clear that it was Claire’s time to go.
Yesterday, Claire’s family and a few very close friends came to say their final farewells and offer their support to the family.
In Claire fashion, she is an organ donor. Claire’s remarkable family were so happy for the other families that were now getting the calls that the organ they had long been waiting for was now available for transplant. They had been on the receiving end of that call just one short week ago.
We know Claire was loved all over the world. Your prayers, support and encouraging words, have been a huge source of strength for her and her family. Thank you from the bottom of our hearts for your massive amazing out pouring of love.
We are asking to please give the family privacy at this time. They have so generously shared their lovely Claire’s remarkable journey with us all, but now is the time to give them some peace from the public spotlight. They will emerge eventually, but please give them the time to come to terms with their family member's passing.
In lieu of flowers, the family is asking for donations to be made to Claire’s foundation.
Claire’s Place Foundation is committed to upholding Claire’s legacy by assisting Cystic Fibrosis families in need.
In the words of our precious founder Claire Wineland: “Death is Inevitable. Living a life we can be proud of is something we can control.”
You sure made the whole world proud of you Claire!
She was one red hot spark of inspiration and joy, wasn’t she? Rest In Peace Sweet Warrior Claire, we will continue where you left off.
Hug your loved ones close,
Laura
Laura McHolm
Chairman of the Board
Claire's Place Foundation”
I now have no one else who I follow who also has cf. I’ve known about Claire for a very long time and my mom is friends with her mom.
Donations and awareness is so important you guys. We need a cure for this disease. Cystic Fibrosis is the most common genetic disease in America. It is terminal, which means it ends in death, and it has no cure.
ONE. YEAR. AGO my family and friends got to hold me in their hands...literally! We got to hold and examine my old CF infected lungs. To say this wasn’t an emotional and remarkable day is so false! We had so crazy to really see these scared up lungs and thinking “how was I breathing?” “How was I staying alive?” Of course I had to say thank you for the 27.5 years of memories and life 💜 and a special thank you to my donor for giving me the gift of life and allowing me to get rid of those CF filled lungs and having healthy ones! ♻️ BECOME A DONOR AND SAVE UP TO 8 LIVES 💜 — • • • #TiffGotLungs #lungs4tiff #cysticfibrosis #cfawareness #curecf #doublelungtransplant #cfirl #saltycysters #youtube #cyster #fibro #love #laugh #hope #donatelife #organdonation #dream #donor #65roses #recycleyourself #taylorswift #thankful #justbreathe #spoonie #chronicloveclub #grateful #stanford #oldlungs #thankfor27years (at Stanford Health Care)
Tonight's treatment entertainment choice... Super Mario World and Pan's Labyrinth OST. I think it's gonna be a real good time. #cysticfibrosis #livelaughbreathe #cfirl #musiclover #gamer #gamergirl #snes #retrogaming #treatmenttime #cfawareness
i got this in honor of my 18 year old cousin kaylee who passed away due to complications from cystic fibrosis last june 21st. I had it done in taylor's writing because we bonded over her and kaylee said she was going to make it to the reputation show if it was the last thing she did and unfortunately she did not live to see it.
Behind-the-scenes of #cysticfibrosis. A night of fun means a day of recovery... and in last night's case, rushing to my oxygen machine. I'm thankful I was able to have a night of fun, but for now I rest so I'm ready for the next adventure! #cfawareness #livelaughbreathe #invisibleillness #chronicillness #cfirl #restday #adventureawaits #oxygen
Start Each Day With A Grateful Heart 💜|| Three years ago today I was placed on the double lung transplant list at Stanford! I had no dry runs, I was blessed to be stable for a lot of the time. I started to go downhill last year to the point I wasn't able to walk to the bathroom without 6L of oxygen and coughing to the point I puked. I was on IV antibiotics every 3 weeks and going in and out of the hospital for lung infection after lung infection. It was safe to say my CF lungs were getting tired. — It wasn't until Thanksgiving 🦃🍂when I absolutely knew it was time for lungs. When I couldn't eat my thanksgiving dinner because I couldn't breathe, I knew I needed lungs more than ever. On November 30th, 2016, after waiting almost 2 years and 8 months, I was blessed with the call for new beautiful lungs from my angel donor. I can't express my gratitude and love for my donor and their family for this gift. Please if you are not a donor, please register 💜 give someone the gift of life like my donor did for me because without them and the amazing surgeons, nurses, and doctors at Stanford I wouldn't be here! It's seriously the greatest gift I've ever received 🙌🏼😊 — #TiffGotLungs #lungs4tiff #cysticfibrosis #doublelungtransplant #cfirl #saltycysters #youtube #cyster #fibro #love #laugh #hope #donatelife #organdonation #cfawareness #dream #donor #curecf #65roses #recycleyourself #cure #taylorswift #thankful #blessed #pray #stanford
