Oct 6, 2020
Being a spoonie is feeling okay and then omg I’m dying one second later
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Being a spoonie is feeling okay and then omg I’m dying one second later
When you're exhausted but can't sleep because you're in agony . Thanks body 🙃
DePaul scientists work to unravel the mystery of chronic fatigue syndrome By Abby Pickus In 1980, a high school English teacher from Wiscons
Here's an article from my alma mater about CFS/ME research!
When I’m bed bound but then discover podcasts...
Omg how did I not know about the beautiful gift to humanity that is Code Switch!?! Bro and I are obsessed.
Other recs...The Black Tapes, Car Talk, The Magnus Archives
As a spoonie you have to put yourself first... always. Your life may depend on it.
Every day you get up and make it through the day as a spoonie... you are a hero... you’ve won.
You are amazing.... whatever your struggle is you’re getting through it. It’s that special spoonie power only other spoonies really understand.
Every day I wonder am I going to be able to keep this schedule up? Am I going to be able to keep going? Or is the other shoe going to drop?