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Progress!
So I've been pushing my body a little further each day. I've started walking. The other day I got up to two miles! I'm really proud of myself (and also kind of sore, I guess I'm building muscle again!) I met with my therapist the other day and that went really well. I'm moving in with one of my best friends at the end of the month. Things are starting to look up! Pain level: 4/10
All lidocaine patched up #flareup #crps #crpssucks #crpsdoesntownme #rsd #chronicpain #thissucks
Lidoderm patches. I'm a mosaic! #crps #crpssucks #crpsdoesntownme #rsd #chronicpain
Ack.
Sorry it's been so long since I've posted. It's been an eventful couple weeks. I am off narcotic pain meds! Yay! The lyrica really helps. The only problem is the side effects. My hands are shaking so badly and it's hard to walk down stairs. My limbs feel so heavy. I hope the side effects go away soon. The catapres (clonadine) patch caused a huge welt on my leg. It's starting to go down but I'm not sure if it's worth it to continue. I'm allergic to the adhesive. One time I tried the birth control patch and oh my goodness that did not end well. The welt was HUGE. So that's a bad idea. I have to study for a big test tomorrow :/ and write a few papers (if the muscle spasms permit) so I'm off <3 M
Screw ups and withdrawals
Okay so there was a screwup between the pharmacy and the claims adjuster that cause me to go off my Cymbalta. That sent me into withdrawals and Cymbalta has a really awful withdrawal syndrome that causes muscle spasms and this thing called brains zaps. My therapist was ready to send me to the emergency room. I'm finally back on my medication but I'm not hundred percent yet. The screw up was about my increase in dose. It's dangerous to go off cymbalta cold turkey. I went to my therapist and she realized I was in withdrawals and helped me get everything sorted out. I'm back on cymbalta now but I'm still having brain zaps and muscle spams. She said I should be mostly back to normal by tomorrow though. I just thought I was sick... I'm still having the muscle spasms, especially in my hands. This has been a really scary experience. I hope I never have to go through this again.
Weird and blotchy. Color and temp changes. #crps #crpssucks #crpsdoesntownme #rsd #chronicpain #ouch #nofilter
Ow.
I just realized that my back hurts from the block. Booooooo. Last time it didn't hurt.
I guess it's starting to sink in that I'll probably need a SCS. I feel kind of disheartened. I had my suspicions that the blocks wouldn't work but I was hoping that maybe it would all just go away on it's own. Silly me, huh?
I'm attempting to write a paper for class but sitting up too long hurts. TO THE ICEPACK, ROBIN!
(Sorry, I'm feeling a little goofy)
The second block...
So it went well. The versed knocked me out so I slept through most of it. It was really hard for the nurse and my sister to wake me. I got to see my spine on x-ray which was really cool.
It's only been a couple hours and the pain is starting to come back. When I told the doctor I was essentially back to baseline for my pain (which lives at a 7) he wasn't happy. We talked about my options but he's not optimistic the blocks will stop the pain in any long term capacity. We talked about my options for the long term. He wants to tinker with the medications I'm on and exhaust all of the other possibilities before trying a spinal cord stimulator. I think that's where this is headed and I'm at peace with that. The thing I'm really worried about is work comp denying it. I'm so tired of dealing with work comp. I would much prefer to manage my own care thank you very much.
I'm so happy to have the support of my family. My sister has been taking me to my injections and my fiance is taking me next week. It would be so much harder if I didn't have their support.
But as for right now I'm so tired. I'm going to go lie down.
~<3 M
