#cure rett

[kocoluv]

here comes the sun child

Here comes the sun little darling, here comes the sun, and I say…it’s alright. This should have been the last day of the school year for Emlyn, but she decided to start the summer holidays a day early. I can understand her eagerness to do that – it’s been a tough year. Sickness, surgeries, back braces and exhaustion from a constant…

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[run-middle-aged-dude-run]

Raising awareness for Cure Rett and Rett syndrome

So, having pledged to raise money for Cure Rett throughout 2015 the over-riding questions I get off people are a) What is (or who are) Cure Rett and b) What is Rett syndrome?

I’ll be honest, until the start of this year I hadn’t heard of Rett syndrome. It’s obvious that there needs to be more awareness in this country. So what I’ll be attempting to do with this blog post is to answer the…

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[run-middle-aged-dude-run]

All roads lead to...

They say that I’m an impulsive idiot.

Whoever ‘they’ are…

I wish they’d stop though, it hurts my feelings.

But, they are correct. I am impulsive…and a bit of an idiot.

I’d like to think my wife enjoys this implusivity. I mean, it’s lead to a wonderful trip to Barcelona in the past. Granted she wasted two hours waiting for me to finish a half marathon…but she’s been to Barcelona.

Anyway, getting…

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[run-middle-aged-dude-run]

CURE RETT

So, here I was just sitting minding my own business sitting with my nearly 8 week old daughter in my arms when a programme came on tv called Saints and Scroungers.

If you’ve never seen it before the premise is simple. Matt Allwright (from Rogue Traders/Watchdog fame) tells us the story of some people ripping off the government usually by way of some sort of benefits cheat (The Scroungers) but…

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[kocoluv]

Say Anything

  If I could say anything, anything What would it be? Good question for our destined reality I would tell you that I love you Even when it didn’t show I would tell you that I love you, baby By now I hope you know.

  For 7 days my son Cameron hasn’t said a word. Neither has his little sister Emlyn. Tomorrow Cameron will speak, but his…

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[kocoluv]

Give a Little Bit

Give a Little Bit

  We’re almost half-way through October and I’m feeling deeply inspired by the people in my life. I’m going to tell you about some if you’ll let me (click the links in bold PURPLE for Rett Syndrome Awareness, please)

  The brave mother who started the #nomoremptyarms campaign on Facebook and Twitter to encourage people to take a…

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[kocoluv]

Everybody's Changing

Everybody’s Changing

[youtube=http://www.youtube.com/watch?v=myCx4Iz25yg&w=640&h=390]

  I think all my readers know that my daughter Emlyn has Rett syndrome and have some idea of what that means for us {if not here’s a blog post about it}. Rett is a complicated disorder and sometimes those complications lead to misunderstandings about spectrums/scales/levels and the varying degrees of effect Rett has on the girls.…

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[boxesbylauren]

Etsy Shop Now Open and Update

Hi Everyone,

Firstly I'd like to say a big thank you to everyone who came and supported my stall at the Pitstone Funday on Saturday. We were there for a good reason, and I'm proud to say that the whole day raised a lot of money for 'Cure Rett' a brilliant charity I'd like you all to check out here

Secondly my etsy shop is now stocked up with bracelets, keyrings and the like for you to buy.

Also, I am still working on bespoke items, canvasses, boxes, letter tile artwork etc. so for any enquiries please email me at [email protected] and I will get back to you as soon as possible.

The best way to stay up to date with pictures is on facebook... https://www.facebook.com/boxesbylauren Thank you so much for your continued support!

Lauren