#delayedgastricemptying

[panyav]

My scintigraphy (gastric emptying study) yesterday morning was overwhelmingly positive, with 53% remaining in my stomach when it's supposed to be less than 10%. So I'm finally getting the gastroparesis diagnosis that we've suspected for years. Yay! 🙃 Bill said that he's getting me this "Radioactive Eggs Survivor" shirt [see photo]. 😆 [Side note: that was the first time I've had eggs in years, as we stopped buying them when the prices went up.] I'm having another esophagram on Monday – the first one being way back in 2000! – so I'm apparently collecting all of the radiation for myself. ☢️

[chronic-harmonic]

When you eat something that you know makes you sick but are still surprised later

[bawarementally]

Thank you @gdaisy33 for sharing this with me 💚 #findacureforgp #gastroparesis #gp #delayedgastricemptying https://www.instagram.com/p/B1be9HWjSvw/?igshid=1x8t6zlvnhnt0

[thedeafzebra]

#chronicallyill365 Day #therewillnotbe365postsbytheendofthis 😂: I honestly don't know what this is, my mom brought it home from work for me to try. It's some sort of veggie casserole with a cheese sauce and a lemon biscuit on top. I dug around and found a few potatoes and sweet potatoes, but I can't eat anything else in it. I was also able to eat half the biscuit! And now I'm stuffed. But, I no longer have to worry about trying to eat because...MY FIRST SHIPMENT OF KATE FARMS IS COMING! I no longer have to feel pressured to eat. I can depend on Kate Farms for my nutrition and just pick at food (like I did with the potatoes) when I feel like it. Since I've been having gastroparesis flares more often and have lost most of my appetite, I'm excited to have this to help manage things. #ehlersdanlossyndrome #gastroparesis #mealreplacement #mealreplacementdrink #delayedgastricemptying #stomachparalysis #katefarms

[thedeafzebra]

#chronicallyill365 Day 148 #ithink: Gastroparesis is kicking my butt. I've gotten so sick of fruit juice and soymilk that I actually ate today. Bad decision. I'm nauseous, bloated, and in pain. The only foods I can semi-tolerate at this point is junk food, that seems to settle well. Anything remotely healthy...nope. I really hope my insurance approves the Kate Farms nutrition drinks so I don't have to worry about this. #ehlersdanlossyndrome #ehlersdanlos #ehlersdanlosawareness #edsawareness #gastroparesis #delayedgastricemptying #stomachparalysis #partialstomachparalysis #katefarms

[thedeafzebra]

#chronicallyill365 Day 145: Sometimes a girl just needs to put on a tiara to face the day. I've been awake since yesterday. Jaw pain, stomach pain, hip pain, back pain, and leg pain kept me up all night. And I couldn't sleep in because I had an appointment first thing this morning. The other day, I had seen someone post in an EDS group that she wears a tiara on bad days. I LOVED that idea and went online to find the perfect one for myself. It arrived just in time for my meltdown this morning. I decided to put it on and go about my day. I felt fabulous despite also feeling horrible. Doing this from now on. There's good news though, my pcp thinks that Kate Farms meal replacement drinks would be a great idea. She already filled out the paperwork and sent it to the company, and they already have it sent out to the DME. Hopefully my insurance will make their decision by the end of next week. In the meantime, the company is going to send me some free samples to try. I'm excited. Eating has become such a chore. I get full quickly, I stay full for a long time, and then I never know when food is just going to sit in my stomach for days on end without doing anything. I hope it will help with my energy too. Not getting enough nutrients definitely isn't helping with this whole feeling exhausted all the time thing. #ehlersdanlossyndrome #ehlersdanlos #edsawareness #gastroparesis #stomachparalysis #delayedgastricemptying #tiara

[thedeafzebra]

#chronicallyill365 Days 113&114: Chronic fatigue and Gastroparesis have gotten the best of me. I've been in a CFS flare since my cleaning spree last week, and today I woke up in a Gastroparesis flare. I'm miserable. Sometimes I think, if there was a cure for only one of my conditions, which one do I wish it would be for. It's always a tie between chronic fatigue syndrome and Gastroparesis. And now that both are flaring right now, its definitely Gastroparesis. I'm weak, in pain, uncomfortable, and can't wait for it to end. #ehlersdanlossyndrome #Gastroparesis #chronicfatiguesyndrome #delayedgastricemptying #partialstomachparalysis

[thedeafzebra]

#chronicallyill365 Day 33: My sleep schedule is officially in chaos because of this gastroparesis flare. I'm feeling better now that the worst is over, but I'm still weak, sore, exhausted, and have zero appetite. I'm able to drink though, which is good. I've lost 8 pounds since this flare started on Thursday, which worries me a bit. I'm going to have to keep an eye on that. I know I need to lose weight but losing it through gastroparesis flares and loss of nutrition because of them is not the way I want to do it. I'm sill bummed I had to miss the concert and a weekend with my sister and friends. Flares this bad remind me of all the things I've lost or given up because of this disease. Featuring Baby Cow's adorable fluffy bum! #gastroparesis #stomachparalysis #delayedgastricemptying #gastroesophagealrefluxdisease #gerd #ehlersdanlossyndrome #medicalzebra #zebrastrong #iamzebrastrong #raredisease #askingalexandria #blackveilbrides #crowntheempire #chronicallyill #chronicillness #spoonie