I generally dont like posting personal things about myself online, but i have been feeling very lonley from my chronic illnesses and would like to find some community.
I have Hypermobile Ehlers-Danlos, POTS, and suspected Fibromyalgia on top of a slew of severe mental health conditions and neurodivergence. I dont really have anyone to relate to except for my mother and i dont tend to feel very heard with her.
On top of that, im a fairly masculine butch lesbian and i want to know if theres any other butches/ masc/ queer people out there that have have experienced the struggle with their identity of being a strong, tough provider type that can pick people up and can do manual labor crushed by their chronic illnesses. I ambulate with a cane but I should be using a wheelchair for public outings; Yet my pride and dignity wont allow it and i force myself into doing dumb shit and overexerting myself constantly- leading to days of flare ups and pain because of my own stubbornness. I feel as if I've had my identity forcibly stripped from me and im trapped in a body that doesnt allow me to live a life I want to and its so devestatingly lonley. I mourn who i used to be, yet i know i need to move on from that part of myself because it will never be the same but its so so difficult. My Best Friend does what he can to support me emotionally and I cannot thank him enough for it, but its unfortunately just not something he can relate to.
Id love any advice or just to hear that someone can relate to me just so i dont feel like the only one out there.
Thank y'all for reading if you got this far 💚
















