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went to an integrative medicine appointment and got listened to (⁉️⁉️) and got a bunch of great advice (⁉️⁉️⁉️) and then at the end he diagnosed me with ME/CFS (⁉️⁉️⁉️⁉️)

#disability #disabled #chronic illness #physically disabled #chronically ill #appointments #doctors #hospital #me/cfs #myalgic encephalomyelitis #chronic fatigue syndrome #chronic fatigue #i was suspecting me/cfs for a while but lowkey just went #'yeah i probably have it but like i don't have time for that rn'#and became much worse #but like yeah okay i was gonna get diagnosed at some point and i guess i can stop doubting myself now #yay new meds (😐) /pos /neg #yay new resources!!!!!!!!!!#disjournaled

i love a nurse telling me i have a tic, just like. randomly. that's. that's great.

#disability #disabled #chronic illness #physically disabled #chronically ill #hsd #hypermobile spectrum disorder #pcos #polycystic ovary syndrome #pots #postural orthostatic tachycardia syndrome #fnd #functional neurological disorder #?#mecfs #myalgic encephalomyelitis #??#yeah i don't fucking know about those last two but that's what we're leaning towards #i mean i was kind of in denial about the tic thing because i don't want to have more shit to deal with #but basically i said 'oh yeah if you hear me breathing weird a bunch don't worry #my body just does that sometimes haha' and then it happened and she was like #'oh was that it? that sounds just like a tic.'#and i was like 'haha..... yeahhh.... my friend has tics from FND and said it's just like theirs #but i just ignored it and assumed it was a coincidence'#and she was like 'oh no yeah #i get that. when i was younger i had tics and they were VERY similar to that. you should probably keep looking into what could be causing #it.'#cripple punk #like DAMN. thank you for validating me but also that felt like a shot to the heart #disjournaled

maaaan, falling down is like a months long event for me. oh boy!

#disjournaled

growing up a lower-middle-class trans kid in ohio, i sort of didn't have a reference for the rest of the country. sure, i knew things were better elsewhere, but i subconsciously assumed it was only a slight difference. finally getting out and staying in vermont for two whole weeks last summer, it was surreal. people just exist and no one cares. i felt safe. respected as a human. the crushing feeling of going home without the promise of ever coming back or getting that acceptance again has been weighing on me ever since.

#disjournaled #trans #trans grief #transgender #transsexual #trans kids

"i hate men, we should literally kill all of them, they annoy me so much" what about me? "well obviously not you" oh. yeah. obviously not me.

express your frustration in a way that doesn't make it painfully obvious that you see queer men as man-lite pls. if i have to constantly remind you that i am a man in these contexts, that kind of says something, doesn't it?

#disjournaled

48 hours of misgendering, deadnaming, and insensitive relatives?? wow!! a christmas miracle!!!

#disjournaled #trans #transgender #transsexual

my last few days have been absolutely exhausting.

- Dealing with my sister's boyfriend coming over

-Going to the mall all day with my sister and (surprisingly, in the middle of the trip) the aforementioned boyfriend

-Spending the day with my dad, then spending the entire afternoon/night baking with my sister at my grandma's house (too many family members and a shit grandma who i do love. but. i don't like her at all.)

-driving 3 hours in a packed car, spending the day at my maternal grandmother's house <33 with extended family, then driving another 3 hours in a packed car while starting to have a meltdown

i love being a person in the world. totally. this is good and also awesome.

#disjournaled

watching yourself slowly lose the ability to do what you love, or even just tolerate- it's so demoralizing. I feel like I'm taking a back seat to what are supposed to be the best years of my life. The worst part is, there's nothing I can do about it. There's no way to stop it from happening. It's embedded into every fiber of my being, and nothing can ever change that.

#disability #disabled #physically disabled #disability rant #disjournaled

#disjournaled

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