Today my parents have gone to Newcastle to look at investment properties. I was going to go with them and so was Tashi. That was always the plan. I was dressed by 6am. Then my father decided that he didn't want me or the dog coming with them. Rather than letting me learn how to manage obstacles and figure out a way to cope with 3 hours driving there and back, my father chose to list the reasons why I am difficult to travel with. It's only one day. I had already set the back of the car up with things that would help ease my symptoms in the car. I had my bag packed with safe things for me to eat and drink and toys and treats for Tashi because she hasn't been in the car for such a long period since we brought her back from Goulburn at 7 weeks old. I have had a miserable couple of weeks and yesterday's testing was horrible. This was supposed to be a highlight for me. I thought I had managed to figure out a way to go that made me feel a little more like a human and a little less like a burden. As I'm writing this, my father just came in and listed all the reasons I shouldn't be going once more. He keeps leading with "You don't travel well." Yes. Please, rub it in more. Tell me more about how inconvenient it is to have a grown up daughter who can't do regular stuff. And he said that by the way. He said, "It's not convenient to take you the way you are." Mum has promised that we'll go away for a weekend, and I'm trying to figure out a way to tell her that I don't want to go anywhere with my father ever again. He ruins things for me, constantly. He doesn't even let me try to do things, he just tells me that he won't take me or I can't do something. And the reminds me of all the reasons why my illnesses are inconvenient. No need to remind me, I never forget them. Never.











