#ecstilson

[ecstilson-blog]

One single day—the value of time

The dream is always the same, my mind’s way of processing terminal cancer.

In my dream, I’ve died and I’m missing my family, wishing I could see them, talk to them, hug them… one last time.

“Would you like to go back and repeat a day from your life on Earth?” God’s voice is strong yet gentle, just like His hand—the one I’m standing in right now. I look at the giant lines on His palm and the callouses on His fingers. What type of work caused callouses on the hands of God? Is He a musician like me? Does He work and toil too?

“Any day?” I ask, unable to hold the eagerness from my voice. To see my kids, Mike, and my loved ones again, well, that sounds like… Heaven. It’s suddenly ironic how subjective Heaven must be.

“Yes, Elisa. Any day.”

I think then about the days each of my kids were born, their milestones and triumphs; the moment I met Mike, our first kiss, our honeymoon; running a newspaper in Blackfoot, Idaho, and chasing so many stories my boss nicknamed me “Scoop”; visiting Italy, Mexico, Arizona, or Missouri with family; playing my violin for crowds and feeling the pulsing unity only music can bring… Each of those days were incredible, but would I want to experience them again? Or would that tarnish the memories? Plus, I wouldn’t want to change a thing. So, I shyly look down at my clasped hands, and I do something that surprises me.

“If it’s all right, God, I’d pick a regular day, nothing special. Just a day when I can talk to everyone I love.” I think about the words then. How interesting: What my life boils down to isn’t about my career, degrees, accomplishments, or experiences. At the end, to me the only thing of value is that my loved ones KNOW how much I love them. That I believe in them. That I’m proud of them. That they matter in general but especially to me. That is all I want in the end.

“A regular day. You’re sure?” He asks.

I nod.

“Well, to talk with everyone… You met a lot of integral people toward the end of your life. What if it’s a day with suffering? After doctors discovered melanoma had gone to your brain? You’d still pick a day like that?”

I think for a moment. “As long as I can talk to everyone I love. Well, then it would be worth it.”

—

I wake up then, and most of the time after having this dream, I’m groggy and half asleep, wondering if this is my one day to “live” again. Seconds later, I shake off these thoughts and slowly start my day. But even though I’m living in a new “normal,” and I can’t walk quite right since melanoma ate my L3 and doctors removed a section of my spine… Even though I’m actively getting treatments and throw-up bags seem to be my best friend… Even though there are days when I want to complain because doctors say I’m slowly dying… After I’ve had this dream, I stop.

If I had died and this were my “one day” to re-experience life and tell my family and friends how much I love them, would the pain and sadness about cancer matter quite so much? Probably not.

So, it’s 5 a.m. on Dec. 24th, and I woke up after having this dream again. My back is flaring with pain and the damaged nerves in my legs and arms are tingling with electric shocks and as if they’ve simply fallen asleep from lack of blood flow. But I know this is “normal” when my pain medicine wears off. When faced with something like cancer, trauma, or any terminal illness, each of us discover what price we will pay in order to live. This. Is. Mine. I chose this. And you know what? That’s okay.

So, I’ll treat today as if it were my one special day to come back. I’ll reframe the pain, try to bring joy to people around me, tell everyone in my life how much I love them, and hope today will be as wonderful as it can be.

Although I’m not in remission, my crappy attitude sure is. Even though there isn’t a cure for the mutation of melanoma that I have (yet!), I would be a fool to forget how lucky I am to even be alive. My life is pretty good. I’ve lived a year longer than doctors expected, and I’ve realized the true value of… time.

[ecstilson-blog]

The “Little Caesars Dancing Man” worked tirelessly, spinning his sign on the corner of Antelope and Main. Regardless of how hard his job must’ve been, he beamed, so happy and ALWAYS kind.

My kids were still quite little, and they’d smile and point as he’d spin the sign on his foot and flip it over his head. We saw him from our car nearly every day, and no matter what kind of crappy mood I’d been in, this stranger would always make my day better.

In fact, I received some really bad news one particular afternoon, but as I drove home, I spotted the #LittleCaesars Dancing Man, just rockin’ away to some unheard beat. The light turned red, so I continued watching his complete exuberance for life. I fully realized then; he's perpetually happy even though he's out there, working in the blistering sun or the freezing cold. He waves back and smiles. You’d think he didn’t have a worry in the world, but in actuality, he must have been so tired.

That day, I turned right instead of going straight home, parked by the dancing man, and decided to finally meet him.

“I’m Raymond.” He grinned, offering me his hand.

“I’m Elisa!” I smiled and knew an awesome friendship had begun. Then I told him what an inspiration he is—how he might not know it, but he makes life better every day for people like me and my family. He grew quiet, and I thought the words meant far more than I knew.

When I got home, I friend requested Raymond through Facebook and blogged about my experience.

A couple of weeks later, I received a letter from Little Caesars’ corporate office across the country. They’d actually read my blog and sent two $20 gift cards! They had one request: for me to keep a card and give one to someone else. I remember reading the letter in the post office, then I gave the second gift card to the post office employee, John. He said the story was even better than the money!

The whole experience felt surreal at the time. And to think, if I’d never stopped that day, I would’ve missed out on the whole adventure.

Raymond and I became friends for well over 10 years. I watched him experience good and bad times—and he smiled the whole way through… just like he used to when he danced for Little Caesars. Then, in 2020, after doctors diagnosed me with terminal cancer, he became one of my biggest advocates, sending me encouraging messages and kind words when I needed them the most. Who would’ve thought all this would start after I saw him spinning a sign on the corner of Antelope and Main? Life is such a miracle.

I’ve had the most wonderful people, like Raymond Lowery, come into my life over the years and show me how to be strong, smile when life is the hardest, and keep going against all the odds.

Rest in peace, dear friend. You made such a positive impact on my life. I think you did that for everyone you met though. You, well, Raymond… you were incredible. Put in a good word for me, all right? Maybe save a seat for me in Heaven? 💓

#wholesome #heartwarming #heartwarmingholidaystory #holidaystory #ecstilson

[ecstilson-blog]

My Son Died…

We're walking along a beach, and I find myself holding his hand even though we haven't seen each other in years. “I've dreamed about this," I say, tears in my eyes.

“So have I."

We continue like this for miles with bits of sand gathering between my toes. It’s so chilly then that I use my free hand to pull a shawl closer to my shoulders. I should fasten it with both hands, but I'd rather die than lose contact with him now.

After a time, we both turn to the sunset. “Once,” I say, “when I was very young, I said a prayer."

He smiles. “And what did you pray?"

“For God to give me a sign that He still loved me."

“Did you doubt His love that much?” he asks.

“I guess I did." I pause, wondering over the small moments that make up our lives. “I expected something huge to happen after I prayed, but almost the entire day passed without anything. Finally, I knelt next to a rock and cried, begging God for an answer.” I took a big breath, just remembering the power of the moment. “I didn't hear His voice at first because it felt… like silence. Then, after a long while, I looked at the sunset. The clouds stretched orange—my favorite color.”

“And you knew God loved you because of the orange sky?” He still gently holds my hand as he looks down at me. “You thought He answered your prayer?"

“I knew He answered it. I realized how He painted the sky for me—for each of us—every single day. His love shines everywhere, through almost everything."

“And that's what you hold onto whenever bad things happen?” He studies a shell by our feet, and I don't say a word. “You remembered that, even when I died?”

I don't want to talk about his death, not when he's standing beside me. I need to answer his question though; he deserves the truth. "Not at first, but yes. I remembered that sky. I couldn't lose sight of His answer to my prayer or the gifts God has given me each day of my life."

Zeke—MY son—just nods. I can tell he's thinking hard about something before he breaks the silence. “I'm glad God picked you to be my mom."

His words hit me like a hot iron, shaking the core of my being; they're something I always longed for and never thought I'd hear, even in my dreams.

“But we’ll see each other again," he continues. “Orange is my favorite color now, too, a reminder…”

Tears fill my eyes. He's so strong and healthy, much different from the infant who died after two and a half months in the hospital.

He did love me. He WAS proud, although I had to take him off of life support. I remember how hard he fought to live, even as he took his last breath in my arms.

“I'm so proud you're my son. You never gave up on life. You never would have given up on me." I try acting brave in that moment, so my pain, guilt, and regrets can't hurt him. "I've done everything I can so people will know you; your life won't be forgotten."

My eyes close and a deep part of me starts fading. A heart once full, seems a bit empty, and my fingers close on themselves because HE is no longer holding my hand.

I breathe slowly. It's okay, though. Peace remains because the warmth of his touch stays on my skin like perfume, and somehow it will never leave. "Please know I won't forget you," my voice drifts away just like my son did.

When I’m just about to leave, I feel something. It’s just a nudge at first, then a word surfaces through the silence: “Look."

My eyes turn toward the sunset. Those colors wrap around me, giving me new reasons to live. I no longer simply long for eternity because I realize the truth in its meaning: Eternity is part of right now.

My spirit wakes up with an unflappable resolve. Someday we'll see each other again, someday beneath a golden sky.

Happy 21st birthday Zeke. You are not forgotten.

To learn more about my oldest son and his story, you can find that memoir here: https://a.co/d/e8GFSP1

[ecstilson-blog]

They Found Another Brain Tumor This April