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I’m gonna stop promising to post more. I give an honest effort every time but something always comes up. I will complete my surgery series I was doing so don’t worry. Anyway we’ve been moving lately and these are my medicine boxes. I thought it was kinda funny that it took up three boxes. Only a spoonie would get this.

#meds #spoonies #edsers #eds type 3 #ehlers danlos problems #ehlers danlos syndrome #ehlers danlos zebra #movinghouse

I'M NOT DEAD!

Hey guys, I'm so sorry it has been months since I've posted. I made it through my surgery without dying, I've just been super busy and recovery took a lot longer than I expected. I will post soon I promise. A lot has happened see you soon.

#surgery #edsers #ehlers danlos zebra #ehlers danlos problems #spoonies #dead #not dead #i'm alive #ehlers danlos syndrome

Vision Declining

I have an eye doctor visit tomorrow. It has been around six months and my glasses are now out of date. My last check up I was at 20/30, but the majority of my vision is neuro issues. Wish me luck.

#edsers #eds type 3 #ehlers danlos problems #ehlers danlos syndrome #eyes #eye problems #astigmatism #neurology #vision #bad eyesight

You know you’re a spoonie when phrases like “calm down you angry fucker” are directed at your own joints and tendons.

#spoonie #chronic illness #chronic pain #Ehlers Danlos Syndrome #EDSers #pulled my left hip flexor walking up the stairs #20 minutes of stretching later and I think the hip itself has finally eased back into joint #but the tendon itself is still pissy as fuck #calm down you angry fucker #I would like to be able to walk again sometime today #since #ya know #it's all the SITTING that pisses you off in the first place #so if you could not dislocate my fucking hip while we're in the middle of fucking walking #that would be greeeaaaat

#edsers

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