love this video <3
15 years.
Acquired Stardust
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@fakingbrave
love this video <3
15 years.
18th
It has been a long time I know, but I’ve been busy, so I thought I would just stop and say hey. Also, it is my 18th birthday, so I’m officially an adult, which is cool I guess. It is amazing how time flies.
Hi so I'm going to send this around to a couple of blogs to try and get as many answers as possible. I've been diagnosed with H-EDS and not many doctors know what to do with me so I was referred to a private pediatric rheumatologist. He basically went out of his way to hurt me during the examination, and then shouted about how Ehlers Danlos and POTS don't exist and about how the whole Ehlers Danlos community are over dramatic and attention seekers. What do I do he was sort of my last hope?
Get another doctor. I’m assuming you’re American? In America you can refer yourself to a doctor/clinic, you don’t need someone else to do it. The doctor sounds like an ass. It is a hot topic in the medical community whether POTS does exist, but not if the symptoms are real, just if it should be called something else that already exists. hEDS, though, is very proven. Honestly, I haven’t had much luck with mobility docs, my best doc is a neurologist. If another rheumo guy shoots you down then you could try cardio for POTS, or ortho for any joint issue.
Hi! First of all, thank you for being amazing your blog is so good :) you don't have to answer this if you don't want to, but I'm young and my family can't afford to get a confirmed diagnosis of EDS, and I think I might have it. Is there any way you could tell me what your main symptoms are? Other than the really obvious like subluxations and stretchy skin? Thank you! Sending you good thoughts and lots of spoons!!!
Hey Anon, sorry if it took me awhile to respond this doesn’t show me when you send this, but better late than never. I have a google doc listing clinical and nonclinical symptoms: https://docs.google.com/document/d/1c5d7wFoXMd278clMBkAjSMlgEhd1161JT4P6ueH8Px0/edit
It should be helpful in what you're looking for, but your answer is really endless. EDS can do pretty much anything it wants, but a lot of people with it have disorders that don’t seem to correlate but actually do the more you look into the science, like Chiari malformation, gastroparesis, GERD, chronic pain/fatigue, migraines, and much more. I wish you luck friend!
I’m gonna stop promising to post more. I give an honest effort every time but something always comes up. I will complete my surgery series I was doing so don’t worry. Anyway we’ve been moving lately and these are my medicine boxes. I thought it was kinda funny that it took up three boxes. Only a spoonie would get this.
What You Say About Mental Illness vs What You Actually Mean.
Very True
My Surgery Part 1
This is going to be a long post. I mean very long, so to help I’m going to break it into sections pertaining to the different parts of the day of surgery and following. Hope you enjoy, and once again sorry I disappeared for so long.
What I Had Done: Laparoscopic Full/Complete Nissens Fundoplication
(I ended up being forced into laparoscopic, which I will discuss later, so don’t get your spoons in a twist.)
Getting There:
I can’t remember everything from that day, but I believe that my surgery was scheduled for 11 am, and we were to be there at 9:30 or 10 am. I woke up, got my “go” bag (I will make a post about a “go” bag later), and left. My mom drove me, my dad trailed behind. I was mad at them because it was day two of no food and they stopped at Akron Children Hospital’s coffee shop. I was a tad hangry, to say the least. We reached our check in location, which involved many turns and elevators. If you know ACH you know they are famous for their elevators. The lady was very nice and took us to a room with a curtain for a door, no biggie.
Paper Work and Procedurals:
First thing first the gown. I changed into the gown and pants and put mine in my go bag. When you are staying for a long surgery and stay, they give you the good, high-quality stuff, none of that paper/plastic fabric or the one size fits all blue drapes. Then we filled out the paperwork of who I was and what allergies I had. I got my two red bands, for my latex and medicine/food allergies, one on each arm, and we were set for paperwork on a legal aspect. It always pissed me off to watch the Red Band Society, because they used the red bands to signify big surgeries, but red bands in almost all hospitals (at least in America) signifies an allergy. I get one when I go to get an x-ray. My girlfriend got one when she went for a checkup and she’s a normal all spoons intact kind of person. Anyway, after that, I had to pee in a cup, which was dumb. Quick fact, I’m trans if you didn’t know, FTM, and I’m been on T for almost two years. My ovaries have been out of commission for awhile, and I’m not sexually active, but apparently, a pregnancy check was in order. I am aware its a legal thing, but I don’t think God is looking for the next Virgin Mary to be a trans kid about to get surgery.
DNR and Religous BS:
Okay so after this was done we met with the social worker. My parents signed some more forms, I signed some forms, and so on. I then told her that I wanted to get a DNR in place. Just to be clear, this is a SUPER SIMPLE EASY process, well she kinda did an 180, and I guess a few screws fell loose or something, because after she left, about 10 mins later, a Chaplain walked in. First off, I did not ask, nor did my parents ask for a Chaplain, or any kind of religious, or any other form of counseling. We were perfectly fine. I knew what I wanted, I knew the legal proceedings, and I knew who needed to be there to do what. So the hospital assumed just because we asked about a DNR we were somehow religiously affiliated. I told this woman I didn’t need her help, nor did I want it. She would not leave. She spent 20 mins about a foot from me (closer than my parents were) trying to talk me out of it. I told her I wasn’t interested in retracting my statement. Eventually, she left, only to return 10 mins later. At this point I was pissed. I previously was calm, and happy to be having this life changing surgery so I could fix a debilitating problem, but she had ruined this. She proceeded to try to talk me out of it and spoke to me as if I was a 6-year-old. If you knew me personally you would know that I do not like confrontation, and I do not like to be challenged on things pertaining to myself, in short, I’m bullheaded, and I do my research. This woman was getting on my last straw. She told me that ACH had a policy against DNR’s, and wouldn’t treat me if I had one. For one I have a feeling she was lying or didn’t know what she was talking about, and two if not, I think that is highly illegal. As DNR’s are the law. She gave me this hokey stuff to fill out with my parents about what I would like in the event I was going to die, but this only applied if I was brain-dead, which is not the point as to why I wanted the DNR. The papers were also only suggestions from child to parent, not law. The whole thing made me mad as hell. I ended up talking to my doctor, who is a great man, but also made me mad. He told me that he wouldn’t work on a patient who had a DNR. I think that is dumb, it defeats the purpose of a DNR. DNR’s are supposed to help improve life, not worsen. Refusing all treatment is the opposite of DNR. The whole thing was baloney. He also said that a healthy boy like me doesn’t need a DNR, which for one, anyone can have it, and two I’m not healthy. It just goes to show that even to doctors our disability/illness is invisible. So I ended up just consenting to the surgery without the DNR. I still plan on getting one, one day, but I needed that surgery, and unfortunately, that was the risk I had to take.
The Delay
Now technically this happened in the midst of the previous body of text, but it made more sense to describe it after. My surgery was scheduled for 11 am, but I did not have surgery until noon. This really isn’t a big deal I just thought I would throw it in for explanation sake, and so people know what to expect. My surgery was delayed because there was an emergency gastro surgery from the ER that my doctor had to help with. Like I said I was very happy to wait. We ended up needing the extra time to short out the above BS. Just so you know though things don’t generally follow the planned timeline in hospitals.
Surgery Time
Okay, so it was surgery time. They came and got me, but before I left the room I took off everything they didn’t give me except my underwear (some surgeries that come off too though) and put it in my go bag. So my glasses and what not. Then we walked to the operating room, and it is really bright, you walk unless you are unable. There were TV’s everywhere because it was a laparo surgery, which was cool to see. There was also a bunch of stains on the ground, but it looked more like spilled iodine, not blood. I highly doubt that you will ever see blood when you enter the room. I met my anesthesiologist, another doctor, a nurse who works with the anesthesia, and another nurse. They were all really nice, and I was cracking jokes with the anesthesia doc. I told him that in previous surgeries apon wake up I will rip out my IV, so he took the medical tape and wrapped it around my hand like 5 times which made me laugh. They are really good at their job. Since I’m a-okay with needles all my drugs were done through IV, until I was asleep. I never forget what happens then I go under, it just doesn’t make me forget, I remember the whole process, always have. After set up was done that was that. My doctor and a few others came in said hello, he was talking to me most of the time. Before they put the IV in you slip your arms out of the gown, but you’re always covered when you are awake. They put all the little electrodes on me and started to turn on stuff. As they put the drugs in they kept talking to me, asking me stuff like what I wanted to be, what colleges I was thinking about, how I liked school. My doctor was telling the other doctors about my crazy school and the weird classes I take, so that was fun. The nurse was always explaining things to me, and talking to me. She asked me if I was nervous and I never was. I always go into surgeries with the acceptance that if I die, that’s okay. I want to be at peace of mind. I’m always happy and content/calm when I go under, and I think that’s how it should be. The doctors and nurses I had definitely help with that. I also know a lot of the people at ACH, which helps. It took awhile but I fell asleep. The anesthesia is cold when it runs through your veins but they cover you up with warm blankets, so it's okay.
Well, that’s part one, I will be adding a part two soon. We are currently in the process of trying to move/sell our house so I’ve been very busy. I hope this is helpful to at least some of you, and entertaining to the rest.
I've got vascular EDS with a hypermobile component and sometimes it scares the crap out of me and keeps me awake at night at the thought that my aorta could dissect spontaneously and kill me at any time. I feel like I shouldn't have to worry about that at age 19 and I shouldn't let myself worry about it altogether because we all die sometimes but I do. I've discovered I'm very mortal and not quite as invincible as I once was. Any tips on how to get on with my life now?
Hey friend, sorry to here your having such a hard time. As far as the mortality of life that can be a hard one. I'm not sure what you religious beliefs are but I always like to tell people this: If you are Christian then you believe in heaven and would be going to a happier place so do not fear death, if you are Hindu or Buddhist you believe in reincarnation so you can leave you pain behind in the next life and start fresh so do not fear death, of you are atheist you believe we cease to exist and thus achieve ultimate peace so do not fear death, if you are agnostic trust that the universe will take care of you and do not fear death. Also remember that death isn't the end of your experience it's just the end of others' experience of you. Being sad about death isn't for the dead it's for the living. Google says that the median life expectancy for type four is 48, that means you aren't even half way through your life yet, so try not to worry. Also your the youth of eds and medicine is improving. Aortic replacements are getting better and better, by the time your 48 the life span could be 80. I understand what it's like to fear death, but I realized it was a waste of my precious time. I decided to take my limited time and make it the best it could be. My projected lifespan is 30-35. So I only have 15 years left by statistics, but I'm not going to let that stop be from loving my life. Obviously you and I have different risk factors. I wouldn't recommend fulfilling your goal to become a NBA superstar (if that is your goal), be reasonable with what you can do, but have fun with it too, and if your goal is to beat the odds, always be on top of medical advancements. Just keep researching, and of course try not to dwell on it, it doesn't help. Any of us could live to be 100, and any of us could die tomorrow, what's more important is what you do with the time you have.
I was wondering what a fundoplication is exactly and what all they'll be moving around inside you.
Hi Anon, sorry it took me so long to reply. Basically they went into my abdominal cavity and my thoracic cavity and through the thoracic they pushed my esophagus down more into my abdomen then they closed the thoracic holes and moved to my stomach. They took the top of the stomach and wrapped it around the bottom of the esophagus to make it tighter since my sphincter muscle was weak. They stitched the stomach to itself so it would stay tight. My stomach went from looking like a Lima been to a string bean? That's not a good analogy but it's whatever. I would look up pictures.
Hello! I run a blog called Official Spoonie Resources and I was wondering if you'd be interested in being added to the directory to link with other spoonies?
I would be honored sorry it took so long to reply.
I'M NOT DEAD!
Hey guys, I'm so sorry it has been months since I've posted. I made it through my surgery without dying, I've just been super busy and recovery took a lot longer than I expected. I will post soon I promise. A lot has happened see you soon.
My DNR - My Choice to Die
Today marks t-minus 4 days until surgery, depending on how you count. I’ve been both looking forward to this, and preparing for it for many months now, and waiting to be free of my GERD for years. As my doctors tell me, I’m on the fast track for cancer, or long road to liver failure, neither of which are really my style. So obviously it’s time to do something about it, but when you decide to change something so drastic in your life, there are obviously risks, and consequences. That would be why I’m writing this.
I think I already wrote a post about the risks of this surgery not going well, so I’m not really going to go into that much. What I do want to talk about is what if it goes the worst way possible, and I actually die. Every time you go under, you put yourself at risk of not waking up again, this is not something that scares me, what does scare me is that I could die, come back, and then wake up to my entire world being turned on its head.
Television makes being sick look all too easy, and all too glamorous, something I’m sure you all know too well, but what most people don’t know is that the TV depictions of death and survival are all too cheery. When someone goes into cardiac arrest and you see a doctor jump onto the gurney and perform chest compressions, or CPR, on a show the patient lives 67% of the time, and the CPR never last more than 5 minutes. In the real world CPR only works on 17% of admitted hospital patients, and those who do survive the first time often go back into cardiac arrest anyway. The CPR can last hours, and many people experience brain damage due to lack of oxygen reaching the brain. When someone dies, they are meant to stay dead, the body can’t sustain life, when there isn’t any life to sustain.
When you’re doing CPR right, you should be breaking ribs, or at least tearing cartilage. CPR can cause internal bleeding, and punctured lungs which creates a whole new problem in itself. Most people think you wake up after CPR, but most people don’t, and almost no one walks off okay. You are put on a ventilator, and often in a comatose state or in critical condition. This is a more realistic version of CPR, but this person was still incredibly lucky.
https://www.youtube.com/watch?v=ICODRFoWZkw
CPR is in no way pretty. You are stripped, and often since you are dead, release your bowls. It’s not something anyone should experience. This is something I never want to experience.
Across the US, Canada, and Brittan, there are DNR Orders, sometimes called Comfort Care Acts/Orders. This Order is a hospital code that prevents a doctor from performing CPR on a person, also called “no code” like when you hear “code blue” to indicate a CPR team is needed. Due to my Ehlers Danlos, and other problems, I would never recover from such an event. This is why I have chosen to have a DNR Order recorded in my medical files. My version is the DNRCC-Arrest, or Do Not Resuscitate Comfort Care - Arrest, which means if I were to go into cardiac arrest, I do not consent to my doctors or any other medical professional performing resuscitative measures on me.
During my surgery this changes a bit, obviously, I will not be able to breathe for myself, and will be given anesthesia which affects heart rate, which I am consenting to, but if I were to crash I don’t consent to resuscitation dosages of medication being introduced into my body. I do not want to ever experience that type of pain and suffering.
I’ve chosen to disclose this to you, because there is a significant lack of conversation on the topic. I think people should know what really happens in life, and what all their options are. I respect everyone’s personal desitions, and I hope you respect mine.
Talk to you guys soon.
Ehlers Danlos Cats?
No, you didn’t read that wrong, and no I’m not crazy (at least not in this case). It’s called Feline Cutaneous Asthenia, or just Cutaneous Asthenia for dogs, cattle, a goat, sheep, pigs, rabbits, mink, and Equine Systemic Proteoglycan Accumulation for horses, donkeys, zebras, and mules. It’s pretty cool (as cool as a life threatening genetic illness can be anyways). Ehlers Danlos is scientifically called Cutis Hyperelastica, and it’s a lot like Cutaneous Asthenia. Cutaneous Asthenia’s symptoms include abnormally soft, velvety, loose, hyperextensible, fragile skin; joint laxity; delayed wound healing; ocular anomalies; and scaring. I just thought this was pretty cool and that you guys would like to know. Even our mascot the Zebra can be a true spoonie, not just our emblem. We aren’t the only ones out there.
Also, P.S., there is this thing with the cats, some of them have “wings”, but they aren’t actual wings, most of the time it’s either unique matting known only to cats with this condition, or it’s weird skin growth. I don’t understand it, and there isn’t a lot about it, but it looks cool.
Why I’m having “elective” major surgery.
On December 13th of this year, if all goes as planned, I will walk into my local Children’s hospital, go to sleep, and hopefully wake up with a successful working Nissens. Now some background.
I’ve had Acid Reflux (GERD) since I was born, but was not diagnosed until the age of 8. I used to ruin clothes as a baby, and could barely eat anything. This included all forms of formula, cows’ milk, goats’ milk, leaving my family with the only option of soy. They just thought I was a fussy eater, who spit up a lot. My mother couldn’t produce breast milk and was generally just lucky to be able to conceive me. I gave her Acid Reflux while she was pregnant.
As I grew my food fussiness grew as well, but I did drink more milk when I entered school. I love cheese to this day, and will torture myself with it I don’t care. My body just rejected everything. By 2nd grade I was on Nexium, a miracle drug for me, it meant I could eat without puking acid, and getting “seconds” hours after lunch was over. Unforchantly, it also effects Bone loss, so when I was 11, they took me off of it due to my family history of Osteopenia, and sudden development of scoliosis. I was promptly put on Prilosec, which in my experience, has been the half-assed version of Nexium, but at least my bones aren’t brittle, right? My stomach over the years became immune to the dosages, and developed more intolerances, meat was a major player.
I became a vegetarian at age 12 to cope with it, they bumped my meds, and I hit the max dosage before entering high school. At this point, they added on a secondary medication (I forget the name) it might have helped, but I don’t remember, because my main focus was on my joint pain, not my stomach. Soon though it became too hard to ignore. Sophomore year, I start looking for answers, and solutions. Turns out there is jack shit you can do for acid reflux. You want to meet the person who has tried everything, here I am.
I’ve done gluten free, vegan, vegetarian (still practicing), liquid diet, adding more of certain minerals/vitamins, and don’t get me started on alkalized/alkaline water (your body is good the way it is, don’t mess with you pH peps). The only other option was to up my meds, which literally wasn’t an option, the doctors were already upset by the fact I was on the adult max as a teen, so that left surgery. I’m no wimp, but I’m certainly not a gluten for punishment either. So, no, surgery was not my first thought, nor was I ecstatic when it was my last remaining option.
I sat on it for a long time before I made my choice, but hat ultimately made the decision was my father’s declining health. He also had GERD all his life and had been on anti-acids for longer than I had (which is impressive as I’m going on 10 years), and was recently diagnosed with Cirrhosis. My dad might drink, but he doesn’t drink-drink, if you know what I mean. He has never consumed enough alcohol to induce the kind of damage they found to his liver and pancreas, nor does he have Hep C. The doctors think that the extended exposure to the medication caused it. Don’t get me wrong, the Medicine was a godsend for my dad, it completely reversed his Barretts, and saved his life, well for 20 years at least, then it started to kill him.
Please do not take this as fear mongering, or some weird form of medical McCarthyism. I’m obviously not a doctor, nor do I ever plan to be one (at least not for people). The mass majority of people can live their entire life on PPI’s (the medication) and have so side effects, my dad just wasn’t as lucky. Plus, our family is weird, we have so many f-up genetics that we could be our own season of American Horror Story (Literally, I have a cousin with gigantism [we just call him The Giant, I think his actual name is Tony?], and there are three sets of twins [this is why I’m not having children] all of which were more than 8 pounds each when born as PREEMIES!). So, yes I’m glad my dad was put on PPI’s or else I probably wouldn't have been here, or wouldn’t have gotten to remember him. They gave him and me those extra 20 years, instead of the 1-5 he was looking at with the threat of cancer. Now we’re just starting that process over again. Cirrhosis will kill him, whether it be liver failure from liver disease, or liver cancer, or many even something with his pancreas, we don’t know. We also don’t know when. Could be this year, could be 10.
From all of this, and talking to him about his life, I’ve decided that I don’t want this to happen to me. My medication has stopped working, the reflux never stops, but the acid is less acidy at like a pH of like 4-6, instead of 3-4. It’s not really ideal to digest foods, but it also prevents me from getting Barretts, because it can’t actually burn me. That doesn't mean I don’t feel it though. I guess it’s like a sunburn, vs a 2nd-degree burn.
If you’re thinking, “Well, why don’t you just stop taking the meds, then you won’t get sick like your dad,” it’s because I can’t just stop. If I did I would get Barretts for sure, and with how extreme it is in my family, ultimately Esophageal cancer. With my meds I get reflux over 100 times a day, if I went off, that would double, if not triple, and the acid would be at full force.
I’m 17, while I’m not scared of death, I’d rather not die before I reach legal drinking age yeah know? And in case you aren’t up to date on your cancer statistics, Esophageal cancer is the 5th deadliest cancer out there. Less than 20% of people who get it live. It kills 83% of its victims. Chemo, radiation, and most likely death aren’t really how I want to spend the last of my teen years. Plus, my mom is pretty animate on not barring her only biological child (its a long story involving the adoption of my best friend, let’s just say it’s complicated).
So if I don’t want to die in five years, I stay on meds. If I don’t want to die in 10-15 years, I get off meds, you see the problem here. The solution, trap the acid, thus the Nissens. So yeah, that’s why I’m having “elective” (even though it’s not so elective) major surgery.
*A Nissan is classified as major surgery, I’m not sure why, I guess because they are rearranging organs, and cutting through abdominal muscle. But they don’t cut the organs themselves, but whatever, it’s still surgery. I’m most likely having open surgery instead of laparoscopic. There are a lot of reasons for this, but the biggest one for me is comfort level. This makes recovery time longer, but it goes mean shorter surgery, so less time under the knife, a.k.a less anesthesia. Something I don’t do great with.
Thanks for reading Guys, I know this one was a lengthy post, but I thought you guys deserved an update, and maybe a little background/story time. See ya later alligators.
Human fibroblasts
Fibroblasts are cells that help maintain tissue structure by secreting proteins like collagen and elastin. Because they are easy to acquire and maintain in a laboratory, fibroblasts are one of the most common starting points for induced pluripotent stem cells (iPSCs), which are adult cells like fibroblasts that have been coaxed to return to a very early stem cell state. iPSCs have the potential to become almost any cell in the human body, making them prime candidates for regenerative medicine, but creating them is incredibly inefficient. To help generate iPSCs, recent research has looked towards separating out iPSCs based on how adhesive they are compared to other cells. In this image, fibroblasts (magenta) express a cell adhesion protein (green), which can be used to determine differences in stickiness between cells.
Image by Dr. Ankur Singh, Cornell University.
Basically what doesn’t work in us.
Ah the oddball life of EDS...
Here’s a post of a funnier tune that contains the odd things people with EDS experience in their lives...
1. Pulling on your skin because you’re bored.
- This one always seems to happen to me in class and often involves my neck skin, it being the stretchiest of all my skins. I unconsciously do it, not even aware that I am indeed entertaining myself, whilst making myself look like an idiot in front of my peers. The best part is that I bruise super easy, so I alway end up looking like my neck is covered with hickeys by the next class period. Ah wonderful times
2. Explaining to your friends/peers that you are in fact not dying, that you are “okay” and whatever medical device strapped to you is just for a “routine” test.
- My latest example of this was when I had my pH Probe Testing done, it happened to fall on the first day of school. So, I pranced into school, me being my marry old self, and getting all of these looks like “OH MY GOD KAYDEN HAS CANCER,” no local student’s I do not have cancer, and no I promise I am not dying, at least not yet. One of the best parts of my day was when my friend Raven was having a lengthy discussion with me, while I was angled to watch something in the distance. This entire time, she did not see the tube going into my nose, or the small device hanging near my hip, because It was facing away from her. When the conversation was over and I turned to head off to class she literally yelled, “Oh my god, Dear are you okay?” and almost passed out. It was a glorious day.
3. Trying to convince teachers that you don’t hate their class, it’s just oddly timed.
- Anyone who is affected by the gastro aspects of Type 3 EDS knows that when the gut wants to go, IT GOES. It just so happens that my math class has been during Core 4 for the past 2 years with the SAME TEACHER. Core 4 is after lunch, which is about 45 minutes long. I don’t have delayed gastric emptying, but instead, I have IBS and my gut basically hates 100% of foods. So for the past two years, I have been repeatedly asking to leave class, at the same time every day, because I either have to shit my brains out (excuse my English) or vomit. Sorry Ms. Berry, it’s not that I hate math, it’s that my stomach hates food. Or maybe Pre-Calc really does make me wanna upchuck?
4. Bladders don’t know what they want and make up their minds one a dime only to call take-backs 5 minutes later.
- This kinda goes along with the gastro stuff. Because EDSer’s are stretchy our Bladder stretches too, so, it will overfill itself, and not know when it’s full until it’s almost too late. Then once it does know it needs to pee, you have a solid two seconds to reach that bathroom, and void the system. Now here’s where things get tricky. You think you’re done, you wash your hands, and head back to class, only to sit down, and get the “Oh shit we have to pee!” signal from your Bladder. Explain that one to your teacher, I dare you.
5. When your skin just won’t hold on to anything.
- For me, this impacts my nails the most, mainly my toenails. Nails and hair are made of Keratin, NOT COLLAGEN, but keratin and collagen both make up the skin and other tissues. Basically, I have these toenails made of keratin that are held on by collagen, but my collagen is stretchy and broken, so, there isn’t a lot holding onto my nail. This makes them bendy and easy to rip off. This mainly happens to my pinky toes, but it still isn’t fun. And not having toenails hurts like a female dog.
Well, that’s all I got for now, but I enjoyed writing this, so I will probably make some more. It’s nice to write something with a more funny, upbeat attitude. Bye, and see you later.
I have eds as well, I just wanted to say that you really are brave!!
Thank you!