#epilepsy shitpost

[corrinthiarose]

not logging onto tumblr.com bc i got a new phone, started a new job, been vibing heavily at school, and stuff— :)))))

missing most of epilepticon— :(((((

[emziley]

Being afraid to pee again after having a seizure in the bathroom is epileptic culture 😂

"Please go make sure I flushed the toilet before"

[corrinthiarose]

it’s November 1st which means i’m coming out of my 11 month slumber to tell abled people about epilepsy and make epileptics laugh.

[corrinthiarose]

“Disabled Enough”

i recently saw a video, on tik tok of all places, what explained disability in a way that i’ve never been heard before. i’m going to paraphrase but essentially it was: “imagine if one day everyone sprouted wings, everyone except you. yes, they could all fly to places but you still had a car so it wasn’t that big of a difference. until one day someone makes a building with no stairs and your meeting is on the 8th floor- then you’re disabled. not because of anything you did but because the settings around you changed. the world moved around you and left you behind and now it’s your problem to figure out how to get around and do the same thing everyone else does with ease.” And that stuck with me. i’m not disabled in my home; i have the temperature where it needs to be, i have medications easily accessible incase of auras, i don’t have to do anything strenuous, there are no strobes, no loud noises, unless some extreme fluke in meds there is nothing in my home that would cause me a seizure and even then with the help of medications i know it wouldn’t last too long and i’m confident that i would be okay after. but when i leave home- it’s a wild card. before i was fully medicated, i rarely left my house for that reason. the world isn’t kind to those whos needs are different. I liked that story for it’s analogy and ability to show that sometimes a disability isn’t the person- it’s the world around us causing it. for other disabiled humans with mobility issues: ramps, elevators, public seating, accessible bathrooms, etc. are all things that make them more abled despite the bodily limitations put on them but sometimes i think about that in terms of epilepsy and i wonder “am I disabled enough?” clearly in the story, you’d see someone without wings and know right away they couldn’t do everything you could, but what about us? looking at me and many other epileptics, there’s truly nothing from the naked eye to distinguish us from anyone else and i know there’s a lot of chronic conditions like this but with epilepsy it feels almost like i’m an imposter. 90% of the time i’m fine, but it just takes an fluke day to turn me into a pile of blankets on the couch for a day or two. i feel for the epileptics that don’t drive and don’t have public transport in their towns, i feel for the epileptics who work in environments that cause stress, i feel for epileptics who work outdoor jobs and can’t always avoid temperature changes, and i feel for those who haven’t found the right med concoction yet — and i think if everything were right in the world for us things would be so different. if all towns had transportation services, if all jobs had down time for people who needed it, if you could request changes to the enviorment you’re in before it causes you a seizure, if medications and doctor appointments were free and ongoing even during pandemics; we wouldn’t be disabled by society and the only limitations we’d have would be the ones put on by our bodies. could you imagine how different life would be? for not just epileptics but for the disabled community as a whole? i hope we get there someday. i hope a few generations from now, if i somehow pass along this silly lil gene that it’s treated differently. i’m gonna leave y’all with something my mom said when i was having a rough time “sometimes it isn’t rising above the situation, it’s making the situation bow.” —— feel free to talk about what changes you’d make now and what you hope to see in the future for epileptics, i would love to hear ideas.

[corrinthiarose]

as requested and to combat the heavier things i post: THIS IS WINNIE! she’s very smart and very sweet and really just wants to help me 24/7 even though she isn’t fully trained yet. soon she’ll be helping with both seizure alert and C-PTSD responses❤️

[corrinthiarose]

i better see all yall epileptics voting blue because our current president doesn’t give a shit about the disabled community

[corrinthiarose]

so i’m going to do the obligated health update since last november and re-introduce myself.

Hi i’m Corrina (Corri) and i’m a 20 year old epileptic (soon to be 21) and i was diagnosed with epilepsy in 2014.

besides epilepsy, i also have thyroid cancer, endometriosis, PCOS, osteoporosis, and asthma; with a plethora of mental health issues. so i’m just full on spoonie and i think i’m finally okay with that.

i’m currently working as a librarian and artist and i’m trying my best to get disability but America is awful. i’m taking a break from college right now due to Covid but i was majoring in medical laboratory science with the intention of becoming a laboratory technician.

i’m in the process of training a new seizure alert dog named Winnie, she’s 2 and very new to things but i’m very lucky to have her and know that she’ll get there with time. she is my 3rd dog and the 1st one intentionally adopted for my medical needs. she’s very cute too, i’ll post picture spam later.

this is the 3rd year participating in Epilepticon and i love doing it, i’ve met so many good humans and i really hope i can recruit some more this year💜

[corrinthiarose]

hi hello this isn’t exactly epilepticon related but it be my 21st birthday and because of medication, i’m not able to drink and because i live in Illinois where Covid has surged up again everything is closed anyway. so instead of doing normal things i’m gonna eat cake pops, stay home, be adorable, and be seizure free tonighttt babyyy. if anyone wants to be friends and play a game of skribblio or stream a movie with me pls do. socially distanced birthdays are weird so i’m gonna take all the love i can get💜