#epilepticon2020

[haikyuupaladin]

So, I just happened to see an old post about the lack of epilepsy warnings in general, but specifically in the Incredibles 2. And I happened to look at the notes. And a LOT of the reblogs were people saying that the reaction to the lack of warnings was disproportionate or that Disney had “fixed” the issue so we should move on, and I just want to say something.

I am STILL to this DAY mad about the Incredibles 2. I made the mistake of going to see it opening night. It was one of the most terrifying experiences of my life. And issuing a warning AFTER opening weekend was over wasn’t Disney attempting to fix ANYTHING in my opinion. If they’d actually wanted to fix things the warning would’ve been issued the day after the movie opened, as people had already been incredibly vocal about the issues the day it was released, and there shouldn’t have even been anything TO fix because it was the most BLATANT example of triggering lighting effects I have ever seen. It should’ve been OBVIOUS that a warning was necessary at the very least, and the lighting effects weren’t even for something where I would consider it understandable that they used them at all in the first place, never mind to the degree that they did. Not to mention that they DID tone it down in other countries and for the dvd/Netflix release which means they KNEW it was dangerous, they knew they’d need two versions, and they still chose to release the more dangerous version with zero warning anyway.

If you’re not epileptic, you don’t get to decide if how we react to things like this is overreacting or not. Yes, even if you know somebody with epilepsy. And you do not get to decide if a company did enough to make up for things like this either.

Yes, I know this dragging up an old issue. Except that it’s not. It’s an old example of a continuing issue. People brush aside concerns about strobes and other epilepsy triggers every day.

(Please don’t add onto this to discuss triggers for conditions other than seizure disorders. Yes they are important as well however this post is specifically intended for epilepsy awareness)

[hamalicious-soup]

hey, I made a thing.

Day 27: make a meme.

[fuckepilepsy]

That satisfying click-click-click-click-click-click-click sound when you finish loading up your pill case and close all of the compartments

[silver-stargazing]

Epileptic Characters in Fiction:

Prince Lev Nikolayevich Myshkin from The Idiot

Compassion was the most important, perhaps the sole law of human existence.

[the-twitchy-life]

EpileptiCon 2020

Hi! It’s October, which means it’s almost November, and November is the most wonderful month- Epilepticon!

A few years ago @fuckepilepsy and I were talking about how epilepsy month is really more about informing able folks, and not the epileptic folks.

We came up with an idea: why not make our own celebration? We’ll have a party online, and people can flood the internet with their awesome epilepsy-themed posts. And every year, we tag our epilepticon posts so they’re easy to find.

Well, it’s a rough year. We’re all a bit low on spoons. But let’s take a little time from what’s likely to be a rough November, and do something GOOD. Like community, and joy, and catharsis, and support, and EpileptiCon!

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So here’s the deal for Epilepticon2020:

From November 1 to November 30, I’ll be posting prompts to get your creative juices flowing.

Epileptics and epileptic-aligned folks (psychogenic seizure-having-folks are welcome!), will make posts and tag them with...

#epilepticon2020

Now, @fuckepilepsy has done some pretty awesome giveaways in the past, but it’s been a rough year, so this year’s Big Fancy Giveaway is a goofy epilepsy-themed card from me, Twitchy.

I’ll mail a card to each week’s lucky* winner! If you want to be entered into the giveaway, tag your #epilepticon2020 post with the date you are posting.

For example, today is October 4, so I would tag #10/4, #Oct4, or #october4

Only enter the giveaway if you are willing to share your address with me- the card will come by mail.

(*luck is debatable: I am not an artist. Card may contain glitter.)

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Last note: I am going to do my best, but I reserve the right to disappear off the face of the earth for a while, even during November. Meanies will not get goofy cards.

[brainbuffering]

Based on true events. The word “Spazz” is used here because by using the phrase “you don’t look disabled” you are inherently presenting an ableist attitude! It’s just as offensive not just to the person with the hidden disability but also those who do NOT have hidden disabilities.

[ID: A comic made up of 4 post-it-notes, the first 3 are yellow and the last is purple

Panel 1 - a man with dark skin and a beard wearing a jumper over a button up shirt. He has a large grin. A speech bubble reads “You’re disabled? Well you don’t look it!”

Panel 2 - the blogger has blue hair and an unimpressed expression. She is wearing a jacket over a T-shirt, the jacket has lapels and badges on it. One badge is larger than the others, bright blue with a white TFL logo. An arrow points to it with the caption “literally wearing a disabled person’s badge”

Panel 3 - The blogger has a foul, put out expression as she rummages in a bag. She is muttering “Hat, Glasses, Jumper.” The words “rumage” And “rustle” float around her.

Panel 4 - The blogger has changed clothes. She is now wearing a large pair of square glasses, a beanie that has “SPAZZ” on the rim and a thick jumper with “I AM DISABLED” written on it along side a TFL Logo. She has an angry expression. A speech bubble reads “Is this what you had in mind?” ]

[me-and-my-glitch]

I’ve seen similar things said before, but apparently it needs repeating, so here we go:

If someone who has epilepsy tells you something you are doing or saying regarding seizures or epilepsy is offensive, you need to stop.

You don’t say “But we’ve been affected by your seizures as much as you have. We need a way to cope too.”

You don’t victim shame or blame.

You don’t protest that, “I don’t see you that way, so what does it matter?”

You stop, you apologize, and you do better.

[corrinthiarose]

it’s November 1st which means i’m coming out of my 11 month slumber to tell abled people about epilepsy and make epileptics laugh.