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I managed to go 17 days without a seizure when my previous record was one week and then I woke up from a nightmare to have 3 today

#like it's still improvement butit sucks #movement disorder #functional seizure #spicy nerves #total of 110

Storytime of my 18 seizures:

I was in the class that I have in a portable and I had a bad headache and was a bit dizzy but didn't think anything of it because I almost always feel like that. I started having the involuntary movements that I get beforehand so I went to tell my friends that when I start having one to tell the substitute that it's not a big deal. I got on my soft mat in time and by the time I have 4 the teacher hasn't noticed (she was too busy taking people's food) and I realized it was going to be a big thing so I dm one of the guys to tell her to call the office and she keeps saying no because she "doesn't have the number" even though it's on the wall and either she was complaining about not having a good enough reason to call or one of the Andrew Tate fanboys made fun of him so he basically yells "I trying to take care of my friend who's fucking seizing" so the office ended up being called. It took forever for them to arrive so he, unprompted, called his friend in the school to go to the office and get the first aid teacher who didn't end up coming so I guess his friend was busy being a slut (that's why he was skipping) or the office had already sent someone. The VP who I don't really like shows up with an ice pack because no one in this school knows the difference between POTS and seizures. I call the guy back over because my neck is feeling horrible and I have him hold the sides of my head to keep my neck stable. A bit of context about this guy we went to the same elementary school and have 2 close mutual friends so we've known each other basically our whole lives but don't really talk, also every time I ovulate I end up attached to him because he is large and very sweet so he can protect me from the illnesses and seems very huggable and has nice hair. By the time that I'm at 12 a dude says "the fuck is going on back there", it's the same guy who when I had my first in the class said "you good bro". My guy did a very good job holding my head steady but unfortunately didn't laugh when I said it was a bad day to wear glittery pink eyeliner. I ended up having 17 in class and then 1 in the car when my mom came to pick me up, the sub and the VP were both basically useless! Also my mom and the VP kept talking about how sweet the guy is.

Also my milk makeup mascara, rare beauty concealer, Quo hydrating foundation and glitter liner all lasted near perfectly, the only part that's messed up is in my temples because of where he was holding my head.

#i'm fine now #just tired and have a headache #this brings the total to 107 #spicy nerves #functional seizure #movement disorder #dysautonomia #pots #postural orthostatic tachycardia syndrome #ehlers danlos syndrome #eds zebra #undiagnosed chronic illness #chronically ill #chronic illness #disabled #disability

So I had seizure 89 while in the library today and there wasn't a teacher I trusted around so I had to tell the people near me that it's not a big deal and to make sure my head stays on my coat and it was so awkward. I didn't realize that a girl from my kin class who has seen a bunch was sitting near us either so I had a better option. I took a 15 minute nap after though

#spicy nerves #movement disorder #functional seizure

I was napping in class because it's a "work" period and I felt the twitching and shocks in my spine then the muscle in my head getting tight so I grabbed my coat and my friends coat and seized on the ground and my teacher says poor you and then goes to present on the white board "Neymar mad skills".

#what the fuck is going on #spicy nerves #movement disorder #functional seizure

I had 10 seizures in like 30/40 minutes and for the last 8 I couldn't breathe during them, and after the first 2 my head really hurt, my motor function was bad, my memory was bad and my speech was slurred so we thought I had a concussion but it's all good now so I think it was the warning signs. But because there were so many and my head wasn't great the first aid teacher held my head while I was seizing and that definitely helped. I'm home now so be prepared for some spam posting because I will be bored

#the counter is at 87 #spicy nerves #movement disorder #functional seizure

I had a seizure during a class that I haven't had many in and the guy next to me pushed the desks around as back and threw his coat in the ground which is great but I was just getting the teachers attention so that I could go to the safe room

#spicy nerves #number 78 #functional seizure #movement disorder

I had seizure 77 in kin today and dislocated one of my shoulders and it really hurt, normally it's just uncomfortable, and I had to stand outside the locked doors almost crying waiting for the student teacher to run through the school to open it

#my pt tapes a lot and I'll probably wear my brace tomorrow #ehlers danlos syndrome #eds zebra #movement disorder #functional seizure #spicy nerves

Me: I sometimes have seizures and I'm going to have one in 5 minutes. I need your key to get into the safe room

The supply: pourquoi tu ne parle pas francais?????

Me, very loudly: I'm going to have a seizure

Anyways this brings the total to 76