#borrowaloha #mahalot in 10 days this lil mutu moko , booboo boss is officially 3 yrs old (original kanaka bday). Trying to keep track of everything and having less strokes myself working on memory. Just wow laulau!!! Congrats to all the Keiki who survived #HeartWeek in Hawaii and my lil brave boy, more blessings to those who make it this far that he may follow in inspiration . Mahalo to all that have supported and prayed for us and helped us lele both islands in the last 6 years, last year has been a good recovery frame. . Although he had a major seizure a week ago, he’s shown so much progression without having much internal physical traits, or consistent likeness as my siblings and I ,other than our biggest strength- versatile adaptation. We found in lab tests that this isn’t from my family genetics, but what we did learn from him is even more greater , astonishing and amazing even for someone so young , and very rare in this world - definitely not lil 2 lb anymore. As his birthday rolls on in , we want to give more than we already do , as do all our birthdays. Mahalo to all the aumakua , mini me Temana and I can finally break a little of the barrier and I hug more again as my immune system is strong enough to manage my lil pohaku ( mr. Sniffles and cigarette smoking still- 5 feet away please) #repost #Laniakealove , 8 surgeries and 7 months later... #Schoenhardtchallenge working on using his mouth with nippling before he forgets...cooing is so cute though and not annoying loud 🎉💗 it sounds more soothing than crying. Making him volunteer . Learn to use his right hand which he favors his left. Associate pressure on pulling, and his pacifier pressure on his lips, so he can later hold his pacifier. Currently he is blind, we don't know if he can see or it's blurry all together since the clot in the #3rdVentricle is at the level of eye organs. His eyes wonder but I found he has areas he can find a bit a focus because he can stare in that direction or tries too.#brainbleedawareness #hydrocephalus #bloodcot #gestationaltube #gitube #nobrain #GiveForward #shunts #nissen #braintap #nicumom #NICU #nicuparents #preemie #invisibledisabilities #enable @laniakea_love #laniakealove #mylilfatgecko #childdisibilityhawaii #hawaii #cerebellumagenisis #stroke #ivh4 #iv3 (at Kapiolani Medical Center for Women & Children)
