GovLab - Open Health Data: An Inside Perspective
Around the world, health care professionals, researchers, and policy makers are articulating a new vision of coordinated patient-centered health care that leverages health data and technology to engage patients, integrate providers, and improve clinical outcomes. As part of this movement, explosions in digital information and advances in computer science are providing researchers with more information on our daily habits and behavior—data that can supplement clinical research to enrich our understanding of health, wellness, and disease.
While the promise of open data in health care is clear, we have limited research on what policies and infrastructures are necessary to connect new data to the decision makers who institute programs that influence the health and wellness of our communities. As part of our NYU Wagner Capstone class, we recorded three podcast/video(s) for the GovLab Open Data Health Stories to capture the stories and lessons learned by leaders working with open data in health care. According to the White House, 2013 OMB Memorandum, “open data refers to publicly available data structured in a way that enables the data to be fully discoverable and usable by end users.” In these podcasts/video(s), we ask the experts to explain through concrete examples how open data is improving the quality and efficiency of the health care delivery system. We also aimed to demonstrate how open health data makes an impact in real people lives and get first person perspective on the issues surrounding open data healthcare.
From a pool of impressive open data healthcare leaders, we selected our interviewees because we found them inspiring as they have published evidence of impact and had accessibility to meet. For instance, we selected Frank Baitman, the Chief Information Officer with the US Department of Health and Human Services (HHS) where his emphasis is on delivering improved business outcomes from the agency’s IT investments. Frank discussed his past leadership positions in both the private and public sectors, focusing on innovation, technology and business strategy.
Next, we interviewed Graeme Ossey, Challenge Manager for Health 2.0, which promotes, showcases and catalyzes new technologies in health care. Graeme is responsible for fostering partnerships and commercialization between the leading startups and large companies in the space. Graeme explained how he effectively manages innovation projects through a worldwide series of conferences, code-a-thons, and prize challenges promoting health technology companies. In particular, Graeme described how he organized virtual challenges and hackathons all over the world (e.g., San Francisco, New York City, Fukushima) while working with big healthcare companies that want designers to build apps with great usability. Although Health 2.0 doesn’t have data assets, they using partner data to enable their partners transform data into something easy to work with. Graeme also discussed his definition of open data, and federal open data policy affects Health 2.0’s work along with challenges and opportunities specific to open health data.
Lastly, we interviewed Dwayne Spradlin, Chief Executive Officer, Health Data Consortium (HDC). Dwayne Spradlin was previously the president and CEO at InnoCentive, Inc., the crowdsourcing pioneer connecting corporations, government, and foundations to a global network of innovators over the internet. Dwayne covered how people working in healthcare can spearhead open innovation initiatives. He intently discussed the need for organizations to strategically empower their own employees in the problem solving process and spoke explicitly about how patients would benefit from the open health data movement. He also discussed the challenges specific to open health data and how these can be overcome.










