#icarebecauseimrare

[danybob89-blog]

MEH I like zebras 🥄♿🤓💜 . . . #spoonie #zebrasister #ehlersdanlossyndrome #arthritis #warrior #health #fibromyalgia #disability #adrenalhyperplasia #scoliosis #wellness #bepositive #lovelife  #zebra #medicalzebra #disabled #californiaadventure #rare #disease #awareness #chronicillness #chronicpain #fragilebutunbreakable #genetics #chronicfatigue #invisableillness #icarebecauseimrare (at Los Angeles, California)

[danybob89-blog]

Yeah, this is why I think I really do need to see a geneticist again. I feel like I have bits and pieces of a few different types not just hEDS. Better safe than sorry right? . 🥄🤕🥄♿🥄🤓🥄🌻🥄💜🥄 . #spoonie #zebrasister #ehlersdanlossyndrome #arthritis #warrior #health #fibromyalgia #disability #adrenalhyperplasia #scoliosis #wellness #bepositive #lovelife  #zebra #medicalzebra #disabled #californiaadventure #rare #disease #awareness #chronicillness #chronicpain #fragilebutunbroken #genetics #chronicfatigue #invisableillness #icarebecauseimrare (at Los Angeles, California)

[danybob89-blog]

I had another appointment yesterday. No poking or prodding though, AND I got to enjoy their icebox of an office! 🥄♿🌻🤓💜 . . . . . #spoonie #zebrasister #ehlersdanlossyndrome #arthritis #warrior #health #fibromyalgia #disability #adrenalhyperplasia #scoliosis #wellness #bepositive #lovelife  #zebra #medicalzebra #disabled #californiaadventure #rare #disease #awareness #chronicillness #chronicpain #fragilebutunbreakable #genetics #chronicfatigue #invisableillness #icarebecauseimrare (at Los Angeles, California)

[danybob89-blog]

I was diagnosed with Juvenile rheumatoid poly. arthritis when I was 13. Luckily for me after a few years it went into remission for a while. Now 16 years later (don't do the math LoL) I have a hard time getting out of bed because my legs are stiff and sore or I drop almost everything I try to carry. Some days I feel fairly normal and those days rock but normally it makes doing even easy little things super hard. Not having help when needed is a total bummer too. For now I'm just doing my best! ~☆~☆~☆ Blessed be . . . . . #spoonie #zebrasister #ehlersdanlossyndrome #arthritis #warrior #health #fibromyalgia #disability #adrenalhyperplasia #scoliosis #wellness #bepositive #lovelife  #zebra #medicalzebra #disabled #californiaadventure #rare #jra #awareness #chronicillness #chronicpain #fragilebutunbreakable #rheumatoidarthritis #chronicfatigue #invisableillness #icarebecauseimrare (at Los Angeles, California)

[danybob89-blog]

Got spoons? 🥄♿🤓🌻 . . . . . #spoonie #zebrasister #ehlersdanlossyndrome #arthritis #warrior #health #fibromyalgia #disability #adrenalhyperplasia #scoliosis #wellness #bepositive #lovelife  #zebra #medicalzebra #disabled #californiaadventure #rare #disease #awareness #chronicillness #chronicpain #fragilebutunbreakable #genetics #chronicfatigue #invisableillness #icarebecauseimrare (at Los Angeles, California)

[danybob89-blog]

LoL I'd use up a weeks worth of spoons doing everything in one day!!! 🥄♿🤓💜 . . . . . #spoonie #zebrasister #ehlersdanlossyndrome #arthritis #warrior #health #fibromyalgia #disability #adrenalhyperplasia #scoliosis #wellness #bepositive #lovelife  #zebra #medicalzebra #disabled #californiaadventure #rare #disease #awareness #chronicillness #chronicpain #fragilebutunbreakable #genetics #chronicfatigue #invisableillness #icarebecauseimrare (at Los Angeles, California)

[danybob89-blog]

Luckily I haven't had to deal with anything other trying new meds that might mess with my current ones or cause worse symptoms so I'm crazy grateful! 🥄♿🤓💜 . . . #spoonie #zebrasister #ehlersdanlossyndrome #arthritis #warrior #health #fibromyalgia #disability #adrenalhyperplasia #scoliosis #wellness #bepositive #lovelife  #zebra #medicalzebra #disabled #californiaadventure #rare #disease #awareness #chronicillness #chronicpain #fragilebutunbreakable #genetics #chronicfatigue #invisableillness #icarebecauseimrare (at Los Angeles, California)

[danybob89-blog]

💜💜💜 . . . . . #spoonie #zebrasister #ehlersdanlossyndrome #arthritis #warrior #health #fibromyalgia #disability #adrenalhyperplasia #scoliosis #wellness #bepositive #lovelife  #zebra #medicalzebra #disabled #californiaadventure #rare #disease #awareness #chronicillness #chronicpain #fragilebutunbreakable #genetics #chronicfatigue #invisableillness #icarebecauseimrare (at Los Angeles, California)