Hey everyone, I am still alive, but I am still in bad shape and slow to respond to messages. Today, the doctors cancelled another procedure because my body is not healthy enough for it. The first one, they did not reschedule because the risk was too high. This second one, is a different procedure and I really need it to happen. So, I am waiting to hear from the doctors. They are trying to come up with something, but this is now the fourth specialist to say that they’ve seen thousands and thousands of cases but never someone who has the problems I have. That doesn’t necessarily mean I am better or worse than others; it just means they struggle to help me and I think that’s also why my friends struggle to understand. I always say: “Being sick is for the healthy.” Yesterday, a family member asked something similar: “How are you supposed to get healthier if you aren’t healthy enough for the treatment?” Excellent question. I will let you know when I have a good answer.













