#lymeliveshere

[stef-manning]

Hi everyone!

I have admittedly had a very rough past few months. I was diagnosed with a multitude of autoimmune disorders and diseases (POTS, lupus, fibromyalgia, Hashimotos, EBV, gastroparesis...) I also suffer with Type 1 diabetes since I was 7, but all of these recent failing health scares...diseases? Or symptoms of Lyme disease? That is the ultimate question. What to treat.

I believe that antibiotics will help as it had almost ten years ago. See my first post here on Tumblr that goes into that tale of woes and survival. Herxheimer reactions are common, but I had no idea how bad or for how long.

The symptoms that leave me bed bound are:

- light sensitivity so painful that it creates unbearable pain in my brain/behind my eyes that induces nausea

- falling and fainting due to heart rate issues, palpitations and body fatigue

- world spinning dizziness, accompanied by pouring sweats and nausea that will not desist

- PAIN beyond comprehension. All you want to do is be knocked out so you don’t have to suffer...joints, head, spine, ribs, muscles...however you move, sit, lay...all intensifies. Pain level: solid 9...ninjas with knives and clubs...see chart above.

- debilitating anxiety and depression due to not being able to depend on myself and my abilities as I had...but hoping antibiotics will give that back to me 🙏

I don’t want to be a Debbie Downer, but it’s impossible to keep all of this bottled up. I don’t wish this suffering on anyone from tick borne diseases and autoimmune disorders. Thank you to those of you willing to journey through this difficult road with me.

[chronicallyillvetstudent]

Today is a bad pain day and I've gotten a cold since my antibiotics lower my immune system. All I can think is all those I love reminding me every day about serenity and positivity. This disease has taken over my body and my mind but I will not let it take my spirit and faith. I was reminded of this with a quote from another #lyme sufferer. "“Life will break you. Nobody can protect you from that, and living alone won’t either, for solitude will also break you with its yearning. You have to love. You have to feel. It’s the reason you are here on Earth. You are here to risk your heart. You are here to be swallowed up. And when it happens that you are broken, or betrayed, or left, or hurt, or Death brushes near, let yourself sit by an apple tree and listen to the apples falling all around you in heaps, wasting their sweetness. Tell yourself you tasted as many as you could.” — Louise Erdrich" The only thing I was able to do was fold laundry and I'm very glad I was able to do at least that with the arthritis. God is with me! #lymeliveshere #coping #chroniclyme #chronicillness

[worldlymeday-blog]

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[stef-manning]

Yayyyyy...new Bartonella rashes, and some I've never seen before from Lyme or Babesia on my elbows, spreading to arms, head, face and back. I've had a rough couple of weeks with stress and Lyme symptoms. Smells make me nauseous and give me vertigo, so subways, walking crowded streets...not so good...trying to be a mouth breather for a while lol...bad side pain, dizziness, motion sickness, sweats, chills, insomnia, seizures, skin sensitivity, brain fog comes in mid-sentence... My glands are swollen, GARGANTUAN and tender. The muscle weakness is not full paralysis, but damn close when I have to drop to the ground to regroup at subway stations (yeah, gross, I know...) and also run out of a train car to vomit onto the tracks in a station vs on the train...STILL made it to work on time. BOO YA. :) This is all not to moan and complain, but rather share the ongoing battle and gritting my teeth and dealing with it...PUSH THROUGH. With chronic Lyme, due to receiving late treatment (based on CDC and IDSA guidelines that are for profit vs welfare of the people...but that's for another blog) flare ups and symptoms come and go as they please, and severity is always a gamble, especially with bone pain, neuropathy/stabbing pain and lethargicness. PLEASE protect yourselves from ticks...DEET IT UP...inform others of the dangers...and if you watch Under Our Skin for free on Hulu, you will understand the horrors, desperation and constant battles we as a community of Lyme Disease and coinfections sufferers face all too well...and you'll be thankful you know what to do to protect you and your family. I would not wish this disease on my worst enemies. THANK YOU FOR READING AND SUPPORTING ME IN THE FIGHT AGAINST THE CDC...share...please. ((HUGS)) -Stef