Hi, I saw your donation request and wanted to offer some unsolicited advice, mostly in the form of questions about things I wish people had told me existed a long time ago. Do you live in Boston or another city? Would you be willing/able to move to one? Are you a Department of Mental Health client? Are you on the disabled?subsidized housing list where ever you are living now? (You would qualify for emergency priority because your rent is <50% of your income and rent is 30-35% of income.)
Do you get your vitamins and supplements prescribed? Ask your HCP; they can legit write a script for Centrum and make it $3.65/3 mo Becoming a Department of Mental Health client and/or a MassRehab client gets you a lot of help, and MassRehab (depending on your situation) will pay for driving lessons, getting a degree, all sorts of stuff. I’m sure there’s more people told me, but that’s the first stuff that comes to mind. I hope some of it was helpful.
thank you for your help/advice! I really appreciate it. <3
I am a DMH client, yes, I have been since 2011— they helped me apply for SSI. I live in the five college area, which isn’t a big city area but is much more affordable than Boston (where my partner was living last year…) I am on several subsidized housing waiting lists as a disabled person, but I haven’t qualified for the emergency housing list— I went through a couple years of trying really hard to qualify for a lot of things— and it’s been really exhausting. The waiting lists are more than 2 years long and for most of them I only placed on them this year or last year, and I’m still working on that.
I lived in transitional subsidized housing for a year (last year) and I could have stayed there for at least one more year (although for much of last year I was led to believe I would have to move out by the end of the year), but instead I decided to move in with my best friend so I would be closer to downtown and my (not enough but still) support system and so my partner could live with us. (There were a lot of visiting restrictions and other fucked up rules in the transitional housing place. I had my own apartment and it was nice but it was rather out of the way and I had to constantly make sure the DMH people were ok with the way I was doing things, while also struggling and being more isolated. Among other things.)
I have tried to get services from MassRehab, like when I was at college. They will only help me if I am either working or in college/ planning to go to college soon or whatever. I have not applied to college again (to finish my degree) yet, and I might pursue help from them again if I can at some point, but right now I don’t qualify.
I don’t have my doctor prescribe vitamins for me, I should probably look into that, been meaning to for a while. I get free hearing aid batteries via my health insurance from an audiology place here, and also most of my hearing aid care is covered by my insurance, thankfully, but some things (like my FM device, the iCom) are not. I do have all my medications prescribed obviously and I’m on MassHealth standard so I do have reduced costs.
yeah, it’s been pretty hard because I’ve had to do so much work on my own. The DMH people— I’m in the TAY (transitional age youth) program— have sometimes been very helpful or somewhat helpful, and other times been extremely unhelpful. It varies a lot. I have a revolving door of caseworkers, and the ability to which my caseworkers can help (or to which they know how to help/ are trained, etc) has gone down a lot. I have been struggling a lot with all of this. It’s really frustrating and maddening, honestly. As a person of colour, it’s also really disheartening when my caseworkers are all white, etc. I’m just really tired and I have had a lot of problems with, well, everything. Services are severely lacking, though I’m still glad they exist at all. (Also people keep recommending that I go to support groups, which I have tried a lot, but the reality is that I am hard of hearing/ deaf and the support groups never really help much because I cannot hear well and because I have a lot of social anxiety and other problems. This is a lot harder than people seem to think it is, which I resent a lot.)
I do have a really great therapist. That is one thing I am extremely thankful for, having been through many years of having shitty therapists and psychiatrists. My psychiatrist is still not so helpful to me, but they never are, really.
(I hope it’s okay that I’m publishing this publicly; I just want to have this information clarified in case anyone else wants to know, and also, just to say it. Please let me know if this wasn’t ok though! Thanks.)
I really do appreciate your suggestions, though. I think it is really hard having to do all this work of advocating for ourselves and getting what we need on our own, when we’re already in such fucked up places. I hope you’re doing okay. <3