#migrainepose

[craftygal65]

This is what the beginning of a migraine looks like. Sight in the right eye is very blurry (normal symptom for me), Nauseous and dizzy. #migrainessuck this is my #migrainepose and it ain’t pretty! https://www.instagram.com/p/CDQ7o4ehVhA/?igshid=1irbk7gfe9xfi

[craftygal65]

RepostBy @migraine_is_not_a_pose: "Credit: @migraine_support #migrainepose #disability #migraine #chronicpain #chronicmigraine #chronicillness #complexmigraines #hemiplegicmigraine #migraines" (via #InstaRepost @AppsKottage) https://www.instagram.com/p/B0gl6lpJXbL/?igshid=1xjtn8w6ygvb6

[craftygal65]

This is a big #migraine trigger. Change in barometric pressures, especially when it’s a quick one is a trigger. Back to bed I go...sigh. #migrainepose #migraineposeisnotokay #migrainessuck

[craftygal65]

This is what the beginning of a migraine looks like. Sight in the right eye is very blurry (normal symptom for me), Nauseous and dizzy. #migrainessuck this is my #migrainepose and it ain’t pretty!

[callieaserenii-blog]

Migraine being made a joke, please hashtag back... Read below...

Hi Everyone

This is a post with a difference from me. I have copied and pasted an email I received from the Migraine Summit leaders today with what I thought must have been a sick joke! Sadly it was no joke!

I know I tend to post articles of interest and nature pics mostly but today I am posting this email...

As most of my friends know I have suffered from chronic daily hemiplegic migraine since Sept 2016. Prior to that I had suffered chronic migraine with at least 3 or more a week for over 10 years.

My migraine disease is a disability now and has destroyed my life as I once knew it. I haven't been out to see friends locally since February and before that it was hit and miss. I can't even get to friends outside of my area and rely on them to come to me and the saviour that is online messenging. I cannot make plans, I can't go to events that I would love to attend, I cannot do much of anything with that said. The majority of my life is spent at home where I can be close to my bed and black out curtains. What time I have to myself I learn, read and study, or watch films etc... In the last year and a half I have had only 8 really good "normal" days where the pain didn't register. The rest of them I have pain, fatigue, neurological stroke like symptoms and more... Some times I claw a few hours back to do something the rest of the time I'm housebound and limited. My migraine disease has literally been life changing and not for the better!

With that said imagine how I felt when I read that a well established magazine makes a joke of my condition and "trivialises" it! Elle magazine is an institution, even if you don't read it, most of us have heard of it or seen it on shelves... They have an obligation and responsibility with such a large audience and clearly they are not respecting the many of their readers who will undoubtedly be migraine sufferers themselves after all it is around 1 in 3 women and 1 in 7 men that suffer this illness!

So, I am asking those of you who read this and are of course willing to do so; to do as the email below says and blast these ignorant insulting cretins that think its acceptable to make a joke out of our suffering! Use the hashtags below and let them know it is not acceptable in the slightest! What disability will they pick on next if this is allowed to go unchallenged?

Many thanks in advance to those of you that can and will do this for me, no bad feelings to those who can't or won't... 😊

Blessings to you all

💜 xxx

*****************************

"A recent Elle magazine article published last week said "All the Pretty People on Instagram are Doing the Migraine Pose".

This happened at a time when several migraine patient advocacy organisations were meeting in San Francisco which included the Migraine World Summit.

None of us were pleased by this article.

We reached out to Elle magazine asking them to reconsider the article which reinforces the stigma that shames patients with migraine. They responded with a modest change in the article title from "migraine" to "headache" but made no changes to the article's reference to migraine.

Migraine has devastating consequences in the career, family, relationships, and quality of life for millions of patients worldwide.

The article, which has seen been picked up on other beauty sites like Cosmo Australia and USA today, trivialises the suffering that can be experienced by someone with migraine.

Migraine already takes a heavy toll. We don't need another kick in the gut when we're already fighting for fair access to treatments, understanding from others and quality of life.

Stigma has been shown by migraine specialist Dr. Robert Shapiro to reduce the amount of funding research received. It also affects how many people suffer in silence and feel shame or guilt. It has even affected the availability of headache specialists who are in critically low supply.

Lets make our voice heard by @ELLEmagazine, @Cosmoaustralia, and others on social media like Twitter, Instagram and Facebook using the hastag #migrainepose #truemigrainepose

Migraine is not a beauty trend.

Kind regards,

Carl Cincinnato and Paula K. Dumas

Co-Hosts, Migraine World Summit

Phone: [phone]

Email: [email protected]

Web: www.migraineworldsummit.com

Migraine World Summit, Suite 300, 4555 Mansell Road, Alpharetta, GA 30022, United States"

[craftygal65]

RepostBy @migraine_is_not_a_pose: "Please check @omhomelife post!!! #Repost @omhomelife (@get_repost) ・・・ We're stronger together. In order to instigate change and reparation for damage done by #migrainepose - we are petitioning @namvo and @elleusa to FORMALLY apologize and lead a campaign advocating for migraineurs. To join this petition please reply below with 1) your name and @namvo @elleusa Please tag friends, family, news publications, and supporters of our cause. We have claimed #migrainepose as our own - now it's time for acknowledgement. Om's official letter to Nam Vo and ELLE contributors below. -- Dear Nam Vo, Kristina Rodulfo, Leah Chernikoff & Nina Garcia, I pray that you read this with open hearts and minds. I am disappointed… in smart, powerful women, who have acted with a lack of cultural literacy. Had you thought through this headline: “All the Pretty People on Instagram Are Doing the Migraine Pose” – you should have realized that June is migraine awareness month, and that many of your readers, followers and fans, are suffering from this often misunderstood, debilitating disease as it affects 18% of women - your target audience. In identifying a “pose” with a neurological illness that affects millions of people, you had an incredible opportunity to create true beauty by raising awareness. Instead of advocating, you exploited. But before I continue - I would like to thank you. In missing the mark of advocacy, you struck the hearts of migraineurs. (full letter available through link in our profile / OmOfficial.com) #migraineawareness Namaste, -Sarah & the Om Team❤️🙏" (via #InstaRepost @AppsKottage)

[craftygal65]

@elleusa & @cosmopolitan this what the beginning of a migraine looks like...will likely have a full blown migraine by dinner. I’m on #peritonealdialysis so the most I can do is treat the nausea with Gravol & Tylenol....go to bed and ride it out. #migrainessuck #migrainepose (at Glenrose Rehabilitation Hospital)

[lindsglenne]

Today I read an article about the new craze on Instagram, the #MigrainePose. I had no idea that a sickness I’ve had for over 9 years could be whittled down to a “pose” for the Internet. My chronic pain consumes my entire life. It’s absolutely exhausting. It’s never “just a headache.” Millions of people struggle with this debilitating disorder and it’s finally getting federally recognized as a National Health Observance. Take the time to listen and understand that this pain is nothing to shrug off. #MigraineAwarenessMonth