I used to write a blog a lot more frequently. In the thick of things, when I was struggling, writing it down always allowed me to reach the feelings I was trying so hard to bury. It’s been 3 months since I wrote my last blog, but I have a funny feeling that it might be a lot longer after this until the next - if at all.
As a mother, you become a master at putting your feelings aside. Everything is focused on your children. In some ways, I’m even worse than that - I literally put everyone possible above me and before me. Even the dog 😂
In this journey, I’ve often set aside my own feelings when women message me. No matter how I’m feeling, or if I’m in a hard place at that point, I always respond and give an answer to their questions (with the exception of very few where I’ve drawn a hard line). I don’t know whether I’m just used to doing that, but I suspect it’s to do with the responsibility I feel to others. Each member of my team both independently and collectively, have told me I owe nothing to anyone. Well I feel the opposite. I’ll not even start on what I owe them, but to the many women who have reached out over the years, I have been in their position, I know how they feel and that is something that unfortunately, unless someone has been through it, is impossible to find. For all the respect, love and highest regard I have for pelvic physios, unless they have experienced this personally, their understanding can only go so far. I wanted and continue to want, to help women in a way I never experienced. Yes there were others who had shared their journey, but they were years down the line. They weren’t at the stage I was when I suffered the most.
The messages I used to get were from women who had just found out about their diastasis. Now, the messages from women who are close to, or have just had surgery (I literally had a message from someone who had surgery just a few hours earlier!) Each one takes me back every time to when I was at that point. Hard to believe it was a year ago in one way, and in another, it’s like a lifetime has passed.
I’ve been taking some weird trips down memory lane recently. After the passing of one of my mentors at the start of my legal career and bumping into my original bosses, I then drove past my community midwife who was responsible for looking after me in both my pregnancies. It hit me how much had happened since I first met her, and since I last saw her. I had flashbacks of all our interactions. Then I drove past the hospital where I was seen on a fortnightly basis for physio at the beginning. It was all a bit much to be honest.
My midwife’s comments will be relatively well known to those who have been following for a while. My bump was ‘weird,’ she could ‘measure me big or small, I just don’t know what’s going on.’ She was not the one who picked up on my separation though, rather it was her replacement while she was on holiday around 36 weeks pregnant in my first pregnancy. When it came to my second pregnancy, she was convinced I would need a C-section and would have to go Consultant led. Thanks to my rockstar physios, I pushed back and well…we all know how that went. I almost gave birth in the car park and the pushing stage lasted 13 minutes. No painkillers - not even paracetamol and I wasn’t even admitted properly on the system by the time I gave birth to my daughter. If there was anyone who was going to prove so-called experts wrong, I guess it was always going to me (and Emily 😅).
In the days that followed, when my midwife came to visit, she brought a student. I kind of felt like a lab rat in some ways. She wanted her student to feel how large and deep my diastasis was because she’d never seen anything like it. Of the 100s of pairs of hands that felt my diastasis, I felt like that patient in Grey’s Anatomy with something really extraordinary and weird but it’s a teaching hospital so let the interns see it. I have no issues with students learning - I’m the biggest advocate for learning. I want to learn everything possible and always want to know why - in many ways, my brain probably operates a lot like my teams’. I am THAT patient. I want to see; I want to know why; I want to know as much as possible. And I’m going think more and have more questions. And when there isn’t an answer, I’m going to be a bit frustrated by that.
I would say over the course of this, I’d be surprised if I didn’t see at least 5 students and then on top of that, any courses I attended as the case study means we’re probably into double figures. But that’s the difference with those who know about diastasis- I wasn’t the lab rat. I wasn’t that patient with something weird (I was, but I was never made to feel like that). Sadly, no matter how well intentioned my midwife, I felt like I was the only person in the world who was that bad. I was the wrong type of unicorn.
My husband always joked I’m a unicorn. He meant it in a good way - according to him (and he’s clearly more than a bit biased) there was no one who wanted to learn and understand the way I did; there was no one who carried on the same way regardless of how hard it got; there was no one that worked so hard regardless of how the outcome wouldn’t change; there was no one who had shared through two pregnancies, two postpartums, pre-op and post-op. I never saw it like that. I was just doing what I felt I had to to make sure I never had any regrets when all was said and done.
My final consult was actually a month and a bit after 1 year post-op, and it still felt like the time came too fast. Ever since I had my surgery everything has happened too fast. The year leading up to surgery was the longest, slowest and hardest of all, and this one has been the fastest, shortest year, but also still pretty damn hard. I looked forward to and dreaded that appointment at the same time. I was dreading the worst hangover post-consult. I’ve mentioned before I get consult hangovers. Overwhelmed; hollow; empty; and low. The high has passed and all your left with is the memories - and even then they become pretty hazy. The build-up does not help. All my consults - physio and surgical - are booked months in advance so you have time to build up to them (and look forward to them in my case), and then before you know it they’re done in what feels like minutes, and that’s it until the next. Except there isn’t a ‘next’ this time.
I kicked myself coming out my appointment. I couldn’t get out of my own way. The part of me that tries to remain stoic and professional to the end. I didn’t say what I wanted to say at the time and it didn’t hit me until I left. Then the facade came down and the tears came. I spent the rest of that day tearing up or full blown crying at certain points when people couldn’t see me. At the airport and on the plane, I closed my eyes so no one would know and just kept wiping them away. By that point I was in a bit of pain from the procedure and wished I could take something that would knock me out completely to numb both pains.
If I’m honest, I felt it blindsided me. One minute I was getting a procedure done; the next I’m picking up my coat. I always knew it was going to happen that way, and there was absolutely nothing I could do to stop it. I just wish in the moment I had had more awareness and taken the opportunity when I had it. I had tried to do it in previous consults knowing full well I would be an absolute mess (even if it was just internally) on the day, but I’m still annoyed at myself. It’s like I was trying to pretend it wasn’t happening.
Flying to Dublin to following week felt more than a bit cruel. There was no possible way I could have known that the two visits would end up being just a week apart, and although it was for a weekend break, I almost regretted it. I was in a different part of Dublin, but that didn’t matter. It was impossible not to think of everything that had happened just one week before. My head was all over the place and still is. I wish I could I could turn my brain off. It’s been my life for 5 years so you would think I would be sick of it consuming me, but I think about it all the time and I can’t help it. Even more so the surgery. It’s all I thought about in the lead up, and now it’s all I think about in the denouement.
In my last physio consult, I spoke about dreading the end. I struggled to articulate the reasons why, but I eventually found the words to describe it. Loss. It feels like I’m heading for a loss and my last surgery consult only confirmed that. It felt exactly like a loss. I’ve mentioned before it’s like I’m grieving. I was grieving the postpartum body I never got to have; the postpartum life I never got to have. Now I’m grieving the loss of the consults and my team. You would think I’d be celebrating, but it just isn’t like that for me.
I have my final physio consult in a couple of weeks. To say I’m dreading it is an understatement. My physios responded in my last consult it hopefully won’t feel as bad as I’m anticipating. They don’t see it as ‘see you later, have a nice life.’ They plan to keep in contact. My last one is to be called ‘last’ loosely. Although, they feel it needs an official end to give me some sort of closure. I hate to break it to them, but I’m not sure I’m ever going to have closure. I think I tried to find that last year when I felt completely lost. Despite making the decision to stop counselling because I felt it had taken me as far as it was going to take me, I didn’t reach closure. I’m not at peace with everything. The ending feels like it’s just putting me back to where I landed last year after surgery - lost in a storm of memories, feelings and completely bereft of what happens next.
That’s partly the reason I got my tattoo. It wasn’t the first time I thought of it - anyone that knows me, knows that I put ALOT of thought into any major decision. But once that decision is made, there is no changing my mind. I wanted something other than my scar to remind me of everything I had been through. A physical change to my body that I got to choose - not something that was the only option, not something I had no control over, but something that was very much in my control. ‘Grit’ doesn’t have a great translation, but ‘fuerza’ is pretty apt no matter the translation - ‘force,’ ‘strength.’ I like to think I’ve represented both at points throughout my journey. Both physically and mentally.
5 years. 5 years since this all started. I dreaded the end early on because I knew what I stood to lose. I knew how important my team were becoming to me even back then. It’s maybe my own fault. There was no ‘arm’s length’. We have a lot in common. We’re like minded. All I wanted was to make them proud and do everything possible to not let them down (and me I guess). I was putting them before me just like I did in that sentence. But that’s just an indication of how much they meant and mean to me and I wouldn’t have gotten to this point without them. I would have been, and still would be, gutted to be held at arm’s length. Too much has happened and nothing has really been normal about this whole journey…I’m that weird patient after all 😅
So what happens next? I have absolutely no idea. It’s pretty frightening. There are no milestones left to work towards. There are no points in time I have to get to. The book is closing and I kind of want to go back a few chapters. Thankfully, I don’t want to re-write anything and I have no regrets overall, but it would be nice to go back and slow everything down until I’m ready. Although, I’m not convinced I ever will be…
Maybe my team will forget me over time as one of hundreds of patients for each of them, but I’m going to be an old lady telling my grandchildren about my very own superheroes I assembled that changed my life forever; how they put my broken pieces back together; and how lucky I was to have them, even for a short time❤️