I didn't know back then that life would change forever.
I didn't know that I would have to give up the things that brought me the most joy because I just couldn't do them any more.
I didn't know how my limits would change from one day to the next.
I didn't know I'd have to fight so hard for what I need.
I didn't know I could be okay with wearing socks that don't match.
I didn't know how good fuzzy socks feel.
I didn't know doctors could be wrong.
I didn't know that there were others going through this.
I didn't know there was support from people like me.
I'd say I wish someone had told me all of these things back then,
but I know I would't have believed them.
💙
"Something changed for me after the last appointment."
June 18,2022 - I started having severe tremors of my head/neck and right arm/hand.
June 20, 2022 - I saw my PCP who was concerned with sudden onset of symptoms. He would not let me leave his office until he spoke with neuro.
June 21, 2022 - I spent 9 hours in the ER. CT was clear, Blood work was relatively normal. Sent home with Rapid neurologist appointment.
June 23, 2022 - I see the rapid Neuro clinic. He sends me for more bloodwork and refers for MRI.
August 14, 2022 - The first episode of loss of consciousness. I also had weird stabbing migraines prior to episode.
August 21, 2022 - MRI of head and spine
I had my MRI results 5 days after my scan. I never heard from the neurologist. I phoned 3 weeks later to book an appointment to discuss the results. When the receptionist phoned back she told me that the doctor wanted her to relay my "normal" results and that he would no longer be seeing me.
Normal? 1.2 cm cyst in my brain is not "NORMAL". Thats not even the kicker... It has been there for 10 YEARS. None of my doctors thought it was important information.
Now this particular type of cyst, Pineal gland cyst. Has always been over looked by the medical community. They typically watch them and wait... Even if you have all of the symptoms. They won't even discuss the possibility.
