#projectalive

[pinupmiami-blog]

💜MPS Awareness Day💜 . . . Today is MPS Awareness Day!  I'm showcasing one of my favorite handmade dresses in purple to show support for kids suffering with Hunter Syndrome (MPS2) and all forms of MPS.  ◼️◼️◼️◼️ ¡Hoy es el Día de la Concientización de MPS! Estoy mostrando uno de mis vestidos favoritos hechos a mano en color púrpura para mostrar el apoyo a los niños que sufren el Síndrome de Hunter (MPS2) y todas las formas de MPS.  . . . www.misspinupmiami.com #EndHunterSyndrome #ProjectAlive #MPSawarenessDay (at Zoo Miami) https://www.instagram.com/p/BxfIb0CADkJ/?igshid=v80m7vr7jo4e

[dannycbaldwin]

Project Alive "This Is Jack" from Caravan on Vimeo.

[whatisthehumanrace]

Guys please read

There’s been recent awareness for Hunter’s Syndrome type 2, and there is a donation going on because researchers are preparing a clinical study for a treatment for this horrid disease.

What is Hunter’s Syndrome? Well, a simple explanation is as follows: It is pretty much a bad gene that was supposed to produce an enzyme that is used in the lysosomes, a organelle in every cell in your body that clears out cellular waste. Without that functioning gene, cells will build up waste and eventually die.

The symptoms don’t show at birth, they typically show at around 2-4 years old. When the child is diagnosed, it’s like signing your name in Death’s book, as the child will die before its late teens.

The reason there haven’t been any prior treatments for this disease is because the disease is so rare (500 boys in the US alone) that big companies put no funding, as they do not see a profit. However, you can make a difference.

Here’s the link to the website: http://projectalive.org/

Thanks!