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Israel & New Breed ft DOE - Broken People I love the way You embrace Broken people like me I love the way You never turn away Boken people like Raised out of the ashes I'm singing and dancing You put me back together Put me back together I'm fully accepted I've always been welcome here 'Cause you love broken people like me
Hi everybody, when I was in 8th grade my teacher went on maternity leave I was so happy for her because she’s the cutest most sweetest thing on the planet. When she came back she shared pictures of her new baby boy Sebastian. As the schools days went on she was absent again for quite sometime because Sebastian was severely sick for his age. The school year finished and it wasn’t until I came back next year I found out her son was diagnosed with Hunters syndrome. Hunter syndrome is a very rare, inherited genetic disorder caused by a missing or malfunctioning enzyme. Because the body doesn’t have enough of the enzyme to break down certain complex molecules, the molecules build up in harmful amounts.In Hunter syndrome, the buildup of massive amounts of these harmful substances eventually causes permanent, progressive damage affecting appearance, mental development, organ function and physical abilities. Most kids with this syndrome are not expected to live past early teenage years. Hunter syndrome often goes unnoticed by the public eye so it hard to help. It is hard to imagine the amount of pain that parents as well as anybody else effected by this goes through. Luckily there is help !! Out of the 15 (i think) strands of Hunter syndrome one has already been cured. If anyone would like to donate, and help these kids in need feel free to donate. Even if it is a cent it means the world :) and it is one step closer to helping these kids stay ALIVE. You can also text ALIVE to 91999 (not sure if the message and data thing applies here) For any further information ,or to donate the link is above. Please share the link with anyone your heart desire, or on any social media. Thank you for taking the time to read have a lovely day.
Finn
Guys please read
There’s been recent awareness for Hunter’s Syndrome type 2, and there is a donation going on because researchers are preparing a clinical study for a treatment for this horrid disease.
What is Hunter’s Syndrome? Well, a simple explanation is as follows: It is pretty much a bad gene that was supposed to produce an enzyme that is used in the lysosomes, a organelle in every cell in your body that clears out cellular waste. Without that functioning gene, cells will build up waste and eventually die.
The symptoms don’t show at birth, they typically show at around 2-4 years old. When the child is diagnosed, it’s like signing your name in Death’s book, as the child will die before its late teens.
The reason there haven’t been any prior treatments for this disease is because the disease is so rare (500 boys in the US alone) that big companies put no funding, as they do not see a profit. However, you can make a difference.
Here’s the link to the website: http://projectalive.org/
Thanks!
FuRyu has released the debut trailer, and details for The Alliance Alive, its new 3DS RPG from The Legend of Legacy developer Cattle Call featuring a story by Suikoden creator Yoshitaka Murayama. Get the information below, via the game’s newly launched official website (http://alliance-alive.jp/). ■ World Introduction Thousand of years ago, the world inhabited by humans was invaded by “Asmodians.” Asmodians invaded in order to take control of this world’s “Chaos Energy”—something that threatens their own world—became rulers, and applied a “great barrier” to the earth. The great barrier caused a major disturbance to the earth’s magnetic field, leading to raging climates and the “blue sky” to be lost from the world. As an effect of this distortion, the ocean known as “The Dark Chaos” was born. It tore the sea in every direction and swallowed many cities. Most humans were killed, and the little that survived had their forces significantly scattered by the severed sea route, and before long gave in to the rule of the Asmodians. Several hundred years after, rule of the world has been divided into several “zones,” and a new hierarchical society has been built with the Asmodians at its forefront. A new culture was formed. However, no matter how much time has passed, humanity’s flames of resistance have not burned out. Now, the world is beginning to move once again—. Details There is an ocean current known as “The Dark Chaos” in the seas of each “world” that splits the sea in every direction and severs the sea route, completely closing off outside communication. These independent worlds lived in by the people are ruled by Asmodians and called “zones.” ■ Story A group performance RPG that interweaves nine protagonists. The player will proceed through the game while changing between the perspectives of nine characters of two conflicting races according to the story. The protagonists’ fates will gradually intersect and before long converge into a single story with everyone together. ■ Battle The Alliance Alive uses a turn-based command battle system where up to five party members can participate. It is a system that emphasizes tempo and features a fast forward function to move the fight up to four times faster. Enemy encounters are symbol-based, meaning a battle will begin when you’ve touched a monster on the field. The Alliance Alive is due out for 3DS in Japan in spring 2017.
Alexander Skarsgard for Project Alive