#reflex sympathetic dystrophy

[disability-shout-outs]

Shout out to folks with Complex Regional Pain Syndrome Type 1!

[galadrielaaa]

[ottitty]

Okay, genuine question because I've heard it in passing but havent gotten to hear a lot of experiences about it- has medical cannabis genuinely helped crps/rsd, fibro or amps pain for you, if youve tried it? How has it affected your brain fog?

[amplified-pain-culture-is]

About this blog

- Submission-based blog

- Please start submissions with "[AMPS/CRPS/RSD/amplified pain/etc] culture is..."

- Mod is an adult and uses they/he pronouns

- As much as I'd love to answer questions and you are free to send some, amplified pain syndromes are confusing conditions with conflicting information out about them, so I may not always be able to answer it.

- That being said, I am not a doctor. I cannot give out medical advice.

Inspired by blogs such as @chronic-illness-culture-is

More information about AMPS/CRPS under the cut

What is AMPS/CRPS?

Amplified Musculoskeletal Pain Syndrome (AMPS) and Complex Regional Pain Syndrome (CRPS) are also known as juvenile fibromyalgia, Reflex Sympathetic Dystrophy (RSD), or causalgia. They're chronic conditions that, though not always synonymous with each other, fall under the same category of amplified pain syndromes. They're also rare (with under 200,000 cases currently known) and frequently misdiagnosed and misunderstood.

AMPS and CRPS both cause extreme muskuloskeletal pain as well as a heightened sense of pain. Though its existence has been documented back to the 1850s in America, its been labeled as "hysteria" by some because of the lack of understanding, and has been labeled the "suicide disease" by nonprofit Ferocious Fighters.

Resources for AMPS/CRPS patients:

Ferocious Fighters - non-profit for patients ages 0-21. They provide resources, care packages, support groups, as well as a list of more organizations here

RSDSA - non-profit for all ages, funding research into CRPS/RSD. This website also provides tons of literature and papers you can read up on or give to your doctors as an AMPS/CRPS patient. Theres also more resources here

An overview on AMPS

[awetistic-things]

warning ⚠️ caps

rsd is KILLING ME.

👆🏼👆🏼👆🏼👆🏼

[queertemporality]

this is a pretty specific experience and therefore a bit of a long shot but I’m really curious so I’m going to put this out there: is there anyone out there who a) received treatment via pediatric outpatient or inpatient intensive exercise programs for CRPS/RND/RSD/AMPS (or similar conditions) and b) would be willing to share your experiences? it can be through a private ask or a reblog; I honestly just want to hear from people who have gone through those types of programs, how you’re doing now, and whether you feel the program was helpful or harmful in the long run. preferably US-based because that’s what I’m familiar with but I’m open to hearing from anyone.

[lavenders-blu]

RSD/CRPS facts

CRPS is a progressive chronic nerve pain syndrome. It’s an invisible disease. The pain of CRPS is compared to the experience of being burned alive, constantly.

CRPS was previously known as RSD.

CRPS stands for Complex Regional Pain Syndrome.

It’s incredibly rare.

It is rated the most painful disease known, with a 46/50 on the McGill Pain Scale.

CRPS flare-ups can be triggered by emotions, illness, fatigue, air pressure changes, and more.

There is no cure, and very few treatment options available.

The average time between onset and diagnosis is 6 months.

80% of CRPS patients are severely disabled.

65% of CRPS patients present with neuropsychological deficits in the executive functions.

“If hell were a medical condition, it might look something like RSD/CRPS.” - John Hopkins University

Wear orange and spread awareness of CRPS. Hope for a cure. Support research into the disease. Spread hope and love.

[arwyd]

in which my fiancé accidentally describes chronic illness