The āboot campā promised a miracle. Thatās not what they experienced.
"That these programs are excruciating is the entire point. A tongue-in-cheek rule repeated by at least one pain program modeled after the one at CHOP instructs patients that they should never skip any activity unless theyāre unconscious, have bones protruding, or have a fever of at least 102.8 degrees. (On their website, CHOP notes that participants should refrain from activities if they have a fever above 101 degrees.) A 2019 episode of NPRās Invisibilia reported and hosted by Alix Spiegel follows one teen patient at a rehabilitation program at Childrenās Mercy Hospital in Missouri as she has an asthma attack, then develops a nosebleed, then has an asthma attack, and finally vomits in a trash can while completing the programās exercises. In reporting this story for Slate, I spoke to former patients who described an environment where they were surrounded by other teens crying and screaming in pain. Itās perhaps for this reasonāthe emotional intensity of the programāthat phones go in a locked cabinet and parents are forbidden from seeing their kids throughout the day."
[...] [D]espite the promising numbers in the reports, the reality many of these patients experienced was much different. āI believed the fairy tale they told me,ā said Isabel, a former patient of the AMPS program at CHOP. āLooking back, I know I just went through hell for nothing.ā
As someone who went through one of these pain programs multiple times, it's wonderful to finally be seeing some fairly mainstream coverage on the damage they do. All I want is to see these programs condemned and shut down within my lifetime.
I'm not affiliated with them, but the Instagram page Exposing Pain Programs is doing fantastic work. They accept submissions detailing people's experiences in these programs, and they also post a number of helpful resources/infographics. After the isolation of undergoing such a relatively unique experience, it was extremely healing for me to discover that other survivors exist. My inbox is also always open for people who want to chat about this.
nightmarish and reminiscent of asylum practices (eg 'hydrotherapy').
on a more contemporary note, even if you approach these disorders from a psychiatric angle (in terms of my own experience, functional disorders do exist but you tend to see them crop up in the context of 'recent experience of war crimes and suddenly learning of family member's death in custody as a political prisoner' type experiences rather than the garden variety stressors situation) it's worth noting that it's the biopsychosocial model we're supposed to follow and not the psychosocial. failing to adequately investigate for a physical cause is an enormous oversight.
however even if we accepted that these were disorders that were primarily psychological in origin, the described programme consists of a great variety of things that could be considered harmful for any psychological disorder and few to none that would be beneficial.
finally the idea that a parent should be discouraged from acknowledging their child's pain presumably to prevent reinforcement of some level of gain is just criminal. this kind of guidance is meant to stop behavioural cycles like 'child throwing tantrum in store to get candy' and has no role here
good addition; I also had similar issues with the article . if we attempt to view pain through the lens of a āpurelyā psychological disorder, then it becomes clear that these programs really operate no differently than the average psychiatric treatment facility, and end up inflicting harm in the same ways. there is no disease, no sensation, no behavior for which abuse is the cure.
