It's actually breaking my heart that my illness is the way that it is. The last couple of weeks I've had to take a lot more rest than usual, and now my brother is asking when I can next do a day trip with him. I don't know when I'll be able to next do that, because even with my energy levels being good, I'm the most broke I've ever been this month. He's autistic too but struggles with unknowns a lot more than me. I can't just tell him that I don't know. But I also can't tell him any specific time because I don't know if im in a flare up or my baseline is changing for good.
Also doesn't help that I have to use my already limited energy to go to the community fridge multiple times a week to get a hold of free food












