#scleroderma awareness

[awakemysoul69]

June is a lot of things and one of them is Scleroderma Awareness Month!

Scleroderma is one of my autoimmune diseases (after being diagnosed with one, many also develop others). I also have central pain syndrome and rheumatoid arthritis.

Scleroderma is tough because it affects so much of the body, inside and out. My treatments have been able to limit the skin involvement but unfortunately I have multiple organ involvement, including my heart.

So I’m posting some info for peeps that maybe never heard of it or don’t know what it involves. Most folks think it’s just a skin hardening disease because that’s what’s visible.

I may post some other info through the rest of the month, but also I might not. I’m also happy to chat with anyone about it because awareness matters.

Thanks and stay cool 😎

[southie187]

June is Scleroderma awareness month.

It is a rare auto immune disease that severely impacts the life of many. As of now, there is no cure and many of the complications caused by the disease are life threatening.

Scleroderma significantly affects quality of life both physically and mentally.

Please, educate yourselves about the disease and keep those who wake up everyday and do their best to keep going in your thoughts.

I pray that with more awareness and advancement in medicine and science that one day there will be a cure or a way to manage the disease so that people do not have to suffer so much and live long healthy lives.

(Please, please, please... be grateful if you are healthy! If you can take a deep breath, walk up the stairs, take showers, use the rest room, drive, open your mouth, open your hands... just be thankful for all you can do. So many people out here who simply wish they could do half of this for just one day.)

[hopedreamsdesigns]

Scleroderma Keep Calm and Fight On T-Shirt featuring a new twist on this popular slogan with scripted text and our original awareness ribbon to bring awareness to your specific cause. Ideal to wear and display during awareness events and any occasion for awareness. Brought to you by AwarenessRibbonColors.com

[hopedreamsdesigns]

Show your support for someone you know battling Scleroderma with our line of Wearing A Ribbon For My Hero T-Shirt featuring a whimsical floral decorative design and the color of the awareness ribbon for this cause. Perfect awareness gear to support someone you know battling Scleroderma by AwarenessRibbonColors.com

[harpanini]

Last Minute Fundraising!

So this Saturday my mom and I are participating in the AARDA (American Autoimmune Related Diseases Association) Walk in DC! This is my very first fundraiser walk, and I am very excited! My first diagnosis was Scleroderma, a very persnickety sort of autoimmune disease. Fortunately I have Localized Scleroderma, in which internal organ involvement is very rare. But as with any rare, chronic disease (AI or no) it is frustrating how little doctors know about it. The first dermatologist I saw (a seasoned professional) had no clue what it was. The second dermatologist I saw while in Costa Rica was smart enough to immediately take a biopsy and diagose it. The third one had to pull out her big outdated book on skin disorders and read it to me (like I hadn’t already done tons of research). My rheum wasn’t much help either. Since my proper diagnosis in March 2014, things have gone downhill health-wise for me. I was diagnosed with IBS-C, hypothyroidism, and have a multitude of symptoms that don’t fit into a category but have begun to interfere with my daily life. 

The money raised by AARDA goes to help researchers learn more about autoimmune diseases so we can get the help we need. We need a cure for these diseases, not just medication to keep the symptoms at bay. Below I have the links to my mom and I’s fundraising sites. We each need $25 more to reach our personal goals. But it would be great if we could raise even more!

Thank you! 

http://www.autoimmunewalk.org/mrs_funkway

http://www.autoimmunewalk.org/aawalk/participantpage.asp?fundid=1135&uid=5689&fkroledescid=5&nnaffundid=67

[hopedreamsdesigns]

Get ready for June because it is Scleroderma Awareness Month.

 Get involved with your charity of choice to help call increased attention to this cause. If you're walking or running for the cause and need an awareness ribbons shirt, consider our store at AwarenessRibbonColors.com or DiseaseAwarenessTShirts.Com​ for your awareness needs.

>>Share this banner to help raise national awareness for Scleroderma, but kindly do *not* alter image to remove our credit source.