#systemic scleroderma

[southie187]

June is Scleroderma awareness month.

It is a rare auto immune disease that severely impacts the life of many. As of now, there is no cure and many of the complications caused by the disease are life threatening.

Scleroderma significantly affects quality of life both physically and mentally.

Please, educate yourselves about the disease and keep those who wake up everyday and do their best to keep going in your thoughts.

I pray that with more awareness and advancement in medicine and science that one day there will be a cure or a way to manage the disease so that people do not have to suffer so much and live long healthy lives.

(Please, please, please... be grateful if you are healthy! If you can take a deep breath, walk up the stairs, take showers, use the rest room, drive, open your mouth, open your hands... just be thankful for all you can do. So many people out here who simply wish they could do half of this for just one day.)

[southie187]

The last day of February is Rare Disease Awareness day and the month is also considered to be Rare disease awareness month.

It also happens to be the month that the love of my life was born.

Please, never take yall health for granted and be grateful for every healthy day you have. So many people out here are battling diseases you have never heard of, dealing with the physical and mental exhaustion, pain and often hopelessness that come along with it.

If you have the time, try to educate yourself about some of the rare diseases that affect millions. My wife had Scleroderma, Sjogrens, Raynauds etc. She passed away at the young age of 31, after battling her illness for 16 years. More than half her life was spent in and out of hospitals and Drs offices.

She was a person with dreams, goals, hopes and aspirations. When faced with the reality that many of things she dreamed of or wanted to do may not be attainable due to her declining health she shifted her energy to spreading awareness and being there for others who were fighting their diseases and who felt lonely and hopeless.

My goal is to continue to spread awareness and tell her story. I pray that with more funding and research eventually a cure or treatment will be found.

Peace and Love

[wholefamilyproducts]

Scleroderma is considered to be an autoimmune, rheumatic and chronic disease.  It hardens the connective tissue in the body. People with scleroderma often experience stiff and swollen fingers. To learn more about Scleroderma, read on.

[blogbyshivani]

Shocking Facts About Systemic Scleroderma Treatment.

What is Systemic scleroderma?

Systemic Scleroderma (SS) is an autoimmune disease that affects the body's immune system. This is a situation in which the body's immune system fights it. Because the immune system mistook it for foreign material or infection, healthy tissue gets destroyed. A number of distinct autoimmune illnesses can affect various body systems.

Systemic Scleroderma Treatment :

Treatment will not cure the ailment, but it will assist to alleviate symptoms and slow the advancement of the disease. The symptoms of a person, as well as the need to avoid repercussions, are frequently used to determine treatment.

Read more @ https://latesthighlightscmi.blogspot.com/2021/11/everything-you-need-to-know-about_29.html

[healthstoriesproject]

“Living with a chronic illness doesn’t mean you should lay in bed all day. You just have to figure out what works for you and [how to] reach your goals in a different way. You can still have a full, amazing life.” - Amy G. 

Living with Systemic Scleroderma

[monedameow]

Scleroderma is:

When your version of "The Talk", is to tell your 8yo about assisted death and your diffuse scleroderma symptoms and what they are going to cause

[ahealthbabe]

Raw stuff! :D I'm still mostly raw, it's going so good I can't believe how very doable it is and how good it makes me feel. It clicked and I get why people go raw and never go back. I already have no desire for the less healthy food that I used to eat, it's pretty weird actually.....👍👍👍

[ahealthbabe]

I've been dead tired for months. I thought my 7am job was contributing to the fatigue, I got a new job so now I can sleep a little more. The last 3.5 weeks have been SO stressful. It has been GOOD stress, but our bodies still register major life changes as stress. I finally have 2 days off from work and I feel dead tired. I'm getting pretty sick of it, barely staying above water. I know that stress and anxiety can cause fatigue so I'm sure this has contributed (I usually am very under stressed, calm, and mostly anxiety free). Another contributing factor is that I haven't made the time to exercise as much the past few weeks and that always makes me tired. SO! Ready to start getting myself back in order, and better than before :) I was vegan for 6 months and felt pretty good, but then was very fatigued so I added some animal products back in i.e. Chicken, the occasional egg, and fish here and there. That made me feel better right away, but now the energy slump and general not feeling well has come back. I might slowly head back towards a vegan diet. But my main plan of action is to crowd out every meal with fruit and veggies! They say (who is they? scientists, & doctors? I don't have a source at the moment) that if even 51% of our diets include fruit & veg that most diseases will go away. That sounds pretty doable to me! I've done that for my two meals today already. I plan to find some veggie recipes and to do this thing.