#seeg

[unfug-bilder]

Seeg im Allgäu: Mehr als fünf Jahre Haft für Bürgermeister in Pflegebetrugs-Prozess

Ein Allgäuer Rathauschef soll die Pflegekasse mit gefälschten Rechnungen um Millionen gebracht haben. Zusammen mit dem Leiter eines Pflegedi

Huch! Da hat der Spiegel in der Hitze des Gefechts gleich zwei Dinge vergessen:

Markus Berktold ist in der CSU. Manche würden behaupten, sein Gebaren sei damit völlig erklärbar.

Der Mann saß bisher in Untersuchungshaft, ist dennoch UNVERÄNDERT bis heute Bürgermeister der Gemeinde.

[fuckepilepsy]

Hi Im back, with good news!

Last night, if you had forgotten, I came with you pretty panicked since after my RNS surgery, I'd been having a LOT of trouble speaking/reading/finding my words/etc and i was trying to find out if anyone else if someone else if anyone else had anyone else had ever had this problem.

Unfortunately, I never got an answer on here. But i did got one for my neurosurgeon. If for some reason, one day, someone else has this same problem, I'll post what my said, maybe it will be of comfort:

"So what my doctor says is what she thinks is happening is that since they put both the the electrodes (from the SEEG surgery) and the leads (from the RNS surgery) in the same spot in the brain, there's definitely some irritation/a bit of swelling that's causing some language problems (bc the part of the brain the lead/electrodes is/was is IN the language center of the brain)

She said if i wanted to, she could give me a course of steroid to help the irritation, but she didnt think that they was necessary atm since i was getting, plus those can make it really hard to sleep and my sleep is already really fucked up anyway."

This is what MY doctor said, and at the moment i AM getting better and she said i probably WILL get better, over time, i just have to patient.

I do want to thank you for helping me when you could when I was scared. Im less scared now. I hope this helps someone else someone else be less scared. If someone have question Im happy to answer them

✿♥‿♥✿

[beccab1009]

7 Months Later...

Today makes it 7 months since I had my surgery. I haven't really posted anything on social media about how my surgery went, or about post surgery. So here we go!

The surgery went awesome, I had the best neurosurgeon ever. When I was in recovery I ended up having a fist size hematoma. They ended up taking me back into the OR, and came out with 26 staples (which I wasn't happy about.) Then I ended up sending a good portion of the rest of the day in the ICU. Once the nurses thought I was well enough to to be moved, I finally made it to the EMU. I spent a week there. The last two days my doctor had me do some physical and occupational therapy. My doctor got all of the information she was looking for, and sent me home. Two weeks later, I met with the surgeon to get my staples out and talk about how I was doing post surgery. My doctor had me do speech therapy, as well as more PT and OT. The main reason for all of the therapy is because of the hematoma. I lost some strength in my right side of my body. The plan was to only take off work for a month, but that plan changed. My doctor and surgeon wanted me to wait a little more until I went back. I ended up not working for a month and a half. I was going crazy! So to some things up, the stupid hematoma really screwed things up! Lol.

Yesterday was 7 months since I got my head shaved for surgery. My hair is growing like crazy, but it's going to take a few years to get it as long as it was. Lol.

I want to thank everyone that has supported and been with me through this journey. I don't know how I would be able to get through these last 8 years without you!

[beccab1009]

My SEEG Story...

I know it has been too long! In my previous update post I talked about getting a SEEG. I got admitted into the hospital in the beginning of November...so I’m kinda late posting this lol. I had my surgery to get the electrodes inserted. But then in recovery I ended up having a hematoma that was the size of a fist. So I went back to the OR. I received 28 staples and then went to the ICU. I stayed there for half a day and then transferred to the EMU. Once I was in the EMU they finally hooked me up to the computer. 

I went in for surgery on a Monday, and I didn't actually come to my regular self until Thursday. Lol. Part of that reason is because of the crazy seizures I was having. For some reason I do remember a pretty hot nurse in the ICU, which would have been Monday because they were about to transfer me. And then I was looking through my phone and I did text someone back on Tuesday, which I don’t remember.I also don’t remember them taking me back to the OR to get the electrodes out. I was on to many drugs I guess. 

So that is a little overview about some stuff that happened in the hospital. I will post some more about my hospital stay and how I’m recovering. 

Thanks so much for reading! 

[beccab1009]

The Journey Continues...

Update! On October 15th I got a MRI, CT scan and meet with an anesthesiologist. I did all of this for my SEEG, which will be November 4-15. I will be meeting with the surgeon this Friday. If you are not sure want a Stereoelectroencephalography (SEEG) is, it is similar to an EEG. With an EEG the electrodes are placed on the scalp. The electrodes for an SEEG are placed in tissue. So a robot will drill small holes in my skull to place the electrodes. Since my electrical activity is on the left side of my brain they will only put holes there. I’m feeling kinda excited and scared at the same time. I’m excited because it is one step closer to me getting the RNS System, but then scared because what if they screw up during surgery. 

But once I get the electrodes I will stay in the EMU (epilepsy monitoring unit) for two week. Fun fun! I’m so excited ...not! This test is to find out the exact spot or spots where my seizures start. So hopefully by the end of December, or beginning of January I can have surgery for the RNS System. 

Thanks so much for reading!

-Becca

[scarletvirtue]

My Epilepsy Story - Part Six

In 2025, I was going into the second phase of testing for epilepsy surgery.

This involved three different EEGs being done: a 72 hour ambulatory EEG…which I didn’t have a noticeable seizure until after the electrodes were removed. 🤦🏼‍♀️

A High Density EEG - where I was covered in enough electrodes to look like Pinhead. After two or so hours…no seizure, until about five minutes after everything was take off. 🤦🏼‍♀️🤦🏼‍♀️

After those two EEGs, I had a round of all-day neurophysiological testing - then a WADA test, which was really interesting! That test involves one side of your brain being “put to sleep” with Propofol, and the “awake” side is tested on things like memory, language/speech, counting, and reading comprehension. Then the asleep side is woken up, and the other side is put to sleep to test it as well. This was done to determine where your brain dominance is located for memory, speech, language, general comprehension.

When all of that testing was done, the specialists (including neurosurgeons) reviewed the results of the tests to determine the next step.

The bottom two photos are from that next step - a week in the hospital with an sEEG (Stereotactic EEG) being done. This involved the electrodes used for an EEG being implanted in my different parts of my brain - like 20 altogether.

That EEG was finally the one to catch seizures when they happened. It seemed like a good number of them happened in my sleep, and were deeper in my right temporal lobe.

My specialist told me that a responsive neurostimulator (RNS) may be the best option. That story will follow in the epilogue. 🙂

[souseiki]

[sapientbonbons]

I was a voracious reader as a kid and a bit isolated so there were a lot of words I only knew from seeing them in books.

One of these words was segue. In my head, of course it was pronounced ‘seeg’, ie rhymed with seek but ended in a hard g, like beg.

I think I was in my late teens before I heard someone pronounce it as ‘seg-way’ and that’s how I pronounce it now. But, apparently old habits die hard. I was just now skimming through posts on here and heard seeg in my head once more.