#seizurewarrior

[little-rascal-roarshack]

@gia_the_rescue_blue Felt my tremors and forced herself on my lap. Forcing me to pet her, which calmed my tremors. 💗💜💙😘🐶 #ptsd #seizurewarrior #love #esa #pitbullsarefriends #pitbullsarefriendsnotfoes #whorescuedwho #loveheals #recoveryispossible #justkeepswimming #comeasyouare #youareenough (at Denver, Colorado)

[little-rascal-roarshack]

Sometimes, it feels good to edit my picture to look how I feel. 💗💔💗 #rough #ftm #boi #ptsd #migraine #seizurewarrior #justkeepswimming #thistooshallpass #breathe #meditatedonthate (at Denver, Colorado)

[messy-little-soul]

February 28 2019 

(So so proud of everyone 'including myself' involved in this - take a look)

Today is Rare Disease Awareness Day...

You probably look at me and think I'm a normal, besides wearing a whole lot of braces and splints. On the surface that may very well be the person you see, but unfortunately I'm a very different person underneath.

I have a Brain Arteriovenous Malformation (AVM) which occurs in less than 1/2 of 1% of the world's population. It is estimated that approximately 3 in 100,000 people have a cerebral AVM. I also have seizures, spastic hemiplegia, Anxiety, depression, chronic headaches/ migraines, scoliosis and other health issues that were brought on with this rare disease. Everyday can be a struggle both emotionally and physically for those of us who have rare diseases and chronic illnesses. Not every disability or condition is visible.

Just because my condition is rare, it doesn't mean that people living with this condition doesn't matter. Hoping to spread awareness in order to have more treatment options available to us as there are limits and very little knowledge about my rare disease.

[incurableoptimistest1994]

The sign of a bad day... #thesignofabadday #palliativecarewarrior #chronicpainwarrior💪 #seizurewarrior #spasmwarrior (at Cardiff) https://www.instagram.com/p/Bx7dJYGhBS5/?igshid=15aj3q1z5s5dp

[little-rascal-roarshack]

"Upon first glance I felt a sense of familiarity with you. Like we had been down this road a thousand times before, why I felt this with a complete stranger I am yet to know but I trust further down the road our chance meeting will make perfect sense." Nikki Rowe @gia_the_rescue_blue #nikkirowe #esa #seizurewarrior #ptsd #thistooshallpass #justkeepswimming #bettertogether 💗💜💙❤💛💚💋🐶 (at Denver, Colorado)

[little-rascal-roarshack]

Being a pitbull parent is a 24/7 job. @gia_the_rescue_blue My scratches and cuts are all from her. She is also the reason my smile is so big when I wake up, and my heart is full at the end of the day. I don't mind at all, I am thankful for the opportunity to have such an amazing relationship with such an amazing being. I adopted her knowing who she was. I want her to jump up on me, lick me, love me. If you don't, don't adopt a playful dog. Boats are meant to hit storms, it brings out our true colors. ⚓ 😘🐶 · Life happens, let it. 🌊 · · · · I am trying the Nectar Bee CBD/THC Bath fizzies to ache my body tonight!! From @thegreensolution · I HIGHly suggest you try them out if you are in Colorado 😉😀😘😍💚💚 · " It is not light that we need, but fire; it is not the gentle shower, but thunder. We need the storm, the whirlwind, and the earthquake." Frederick Douglass · · #420 #mmj #ptsd #seizurewarrior #esa #love #adoptdontshop (at Denver, Colorado)