#self advocate

[higheverweave]

It seems I’m spending today Educating folks on my Autism diagnosis and Nuerodiversity as a whole:

So I will open this thread as a judgement free education zone for those who Geniunely want to learn or update some language.

You can put on Anonymous if it’s more comfortable or DM

Thanks

[autismisaokay]

I signed up my grandmother and I for a grandparents breakfast for people on the spectrum. There’s going to be a lecture during it and one of the speakers is a doctor and self advocate. I’m really hoping by self advocate they mean someone on the spectrum. Always keep advocating and be the change you want to see in the community.

[nothing-suspicious-at-all]

If I had any random advise to offer anyone, it would be this: do your own research before seeing any doctor. You have to be your own advocate. And it so hard but so necessary. You dont have to know all the answers but you do need to know enough to just ask. There are things and medications to try that my doctor wouldn't have even brought up if I didnt know enough to just ask, "hey would 'blah blah' be helpful?"

[autismisaokay]

Hey, everyone, I would appreciate your advice/help I’m doing a booth at a walk/fundraiser for autistic people.

Last year when I went to this fundraiser it had this overwhelming ambiance that it was for autistic children and their parents. Which was awesome but even though I’m autistic I felt like the adults were defiantly underrepresented. I’m now running a booth this year for autistic adults. I’ll be offering information on the program I’m in but the main point of this booth is to be for autistic adults and educating the people about them.

My main idea is for it to be a “Ask An Autistic Adult” any question you want a type of thing.

What do you think about this idea?

[mygospelsoulmagazine]

Tabitha Brown

Photo: People Magazine Her time was changed on the food network. That’s the only thing that’s changing! Below is a post Mrs. Brown made to make sure people understand she is who she is and will not compromise. She talks about what a lot of us ethnic people have experienced when in the spotlight, or on jobs and in other situations. Some people want you to make them more comfortable with your…

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[nightinghoul]

[Please don’t confuse your Google search with my medical degree]

Haha, that’s cute. I’ll stop Googling my symptoms when I can get a doctor to take me seriously. But since I’m on record as having mental problems: My migraine attacks that present very similarly to seizures were “anxiety attacks”, my persistent migraine aura was just me being “a stoner” (I had never even tried pot), my fatigue was because I was “depressed” (I was anemic and I have Hashimoto’s thyroiditis), my headaches were just me drug seeking (the migraine medications I have now aren’t even opiods), my constant nosebleeds were from nose-picking (It was from all the over-the-counter pain killers I was taking for my migraine headaches), and when I started having trouble swallowing to the point that I could only take tiny baby sips of water, and still choked multiple times a day, it was my imagination (it was a reaction I had developed to a medication.)  Your medical degree is only as good as your ability to use it. Don’t confuse your misdiagnosis based on wrong assumptions with reality. And yes, I was finally diagnosed by specialists with migraine syndrome, migraine seizures, Hashimoto’s, and multiple food sensitivities. I’m not self diagnosed, but if you meet people who are, it’s probably because they’re grasping at straws after multiple negative interactions with shitty doctors. Arm yourself with information. Google that shit. Self advocate. You have the power. Use it. (Image taken from redbubble.com, but it’s an image I see all the time, everywhere.)

[autisticadvocacy]

This is a new series at The Arc Blog called #HandsOff. Each month, we feature a story from individuals and families across The Arc’s network about how some of today’s key policy issues impact their day to day lives. Meet Joe Damiano! Joe is 23 years old and is a very active advocate in his home s

Here is a self-advocate’s advice for others who want to get involved in telling Congress #HandsOff important programs