May 30, 2018
Self-advocates talk about why it is important to use future planning so that you can be prepared to make decisions.
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Self-advocates talk about why it is important to use future planning so that you can be prepared to make decisions.
People with Down syndrome are not all alike.
Before the availability of chromosomal analysis, Down syndrome was diagnosed by counting characteristics; when an infant had a certain number of those features, a diagnosis was made. This technique is still used in some countries where access to genetic testing is not available. Certainly, people with Down syndrome do have certain characteristics in common, but these characteristics are all present in the general population, and no one individual has all of them. Human variation being what it is, and there being many more chromosomes than just Hsa21 that is triplicated, individuals with Down syndrome are much more like their siblings than they are like other people with Down syndrome. The stereotype of individuals with Down syndrome as all being the same has meant that many of them face multiple forms of discrimination and exclusion.
Self-advocates preparing to speak at the United Nations in Geneva.
It is critical that individual variation be recognized. While it is understood that some degree of intellectual disability will be present for all individuals with Down syndrome, the extent to which that affects an individual’s quality of life will depend on many factors. For a start, we aren’t just a product of our genes. The environment we grow up in, the education we experience and the support available to us help us learn and grow, and influence our intellectual development. It was once thought that the intellectual development of individuals with Down syndrome plateaued prior to adulthood. DSRP research was some of the first to indicate that this was a myth. How dreadful it was for those denied further education based on low expectations; how exciting for those adults today who can access continuing education beyond their school years.
The New Jersey Self-Advocacy Project will be hosting a Legislative Advocacy & Governmental Affairs workshop on Thursday, June 5th at The Arc of Essex in Livingston.
Should you wish to attend this event, please e-mail Ashley at [email protected] to reserve your spot. If you plan to bring friends or colleagues, please let me know how many seats I should save.
Check out the Autistic Self Advocacy Network's Spring and Summer Webinar Series for Self-Advocates! All Webinars are FREE!
TOMORROW, May 13th at 1 pm PST / 4 pm EST Project Coordination 101: Learning the Basics of Running an Effective Project Self Advocacy groups can get funding by signing up to coordinate projects. This is often done by contracting with a funder to accomplish a certain task, like checking accessibility of polling places, hosting a training series, or holding focus groups. Groups have told us that they want to develop more project coordination skills. We will talk about how to run, staff, and organize a project. Topics include creating a project proposal, timeline, budget, how to implement your project plan, and strategies for overcoming challenges that may arise. Also Upcoming: --Delegation & Power Dynamics on June 10th 1pm PST/4pm EST. --Resources and Templates for Self-Advocates on July 8th 1pm PST/4pm EST. --Fantastic Facilitation on August 26th, 1pm PST/4pm EST. To sign up and for more info visit: http://action.autisticadvocacy.org/p/salsa/web/common/public/signup?signup_page_KEY=7590
*Brought to you by ASAN's new project, the Pacific Alliance on Disability Self Advocacy.
*Funded by the AIDD.
How cool! The Alliance Center for Independence invites you to take a guided tour of the Trailside Nature and Science Center in Mountainside on March 26th.
If you are interested in attending this ACI event, please RSVP to Nybil at 732-738-4388, ext. 121 or [email protected]
Temple Grandin: The world needs all kinds of minds (by TEDtalksDirector) Happy Birthday to Temple Grandin, one of the most inspiring people I can think of. we need all kinds of people, including people on the autism spectrum to make this world work. thank goodness for neuroatypical self-advocates, fighting back against the people who would "cure" them. this TED talk is one of my all time favorites and a must watch.