#severe cfs

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Contested and neglected: Social and medical marginalization in severe Chronic Fatigue Syndrome

Contested and neglected: Social and medical marginalization in severe Chronic Fatigue Syndrome

This study addresses the persistent invisibility of people with severe Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) in resear

"Severe ME/CFS patients face deep social, medical, and structural exclusion."

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Best of luck to Jessica with her new book.

If it is anything like the other two in the trilogy, it will raise useful awareness of #severeME

Essex author suffering from severe chronic illness releases new book

An awarding-winning Essex author is set to release her third book which recounts the hardships she has faced through her severe chronic illn

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Includes a two-minute interview with a woman bedbound with #SevereME whose weight dropped so low she needed a nasogastric tube for feeding

A number of individuals are quoted in this article which is more in-depth than most media coverage.

Mothers' devastation as daughters develop the same debilitating illness that can mean years in bed

Imagine spending your life in a silent darkened room, with eye shades on and ear plugs in, unable to eat a proper meal, or hold a conversati

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https://twitter.com/thane_black/status/1576725921494859776

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New 15-minute video on severe ME & very severe ME: "Severe & Very Severe ME / CFS Myalgic Encephalomyelitis / Chronic Fatigue Syndrome"

Includes comments from professionals (incl. Drs Muirhead/Weir/Speight/Shepherd/Nacul & Caroline Kingdon (nurse), patients (incl. Naomi Whittingham, Catherine Hale) & carers (incl. my mum)

Discusses various distressing topics

http://www.dialogues-mecfs.co.uk/films/severeme/