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A new approach to chronic pain.
I’m scared. Despite being reassured that this disease doesn’t directly cause muscle weakness I’m seeing post after post about my fellow SFNers losing muscle strength. I have days when my legs feel weak and wobbly, when my hands would rather throw things than grasp them. I don’t want to lose my mobility. So I’m going to get moving. Every day. Regardless of how I feel I’m going to move. I have…
A constant house of cards...
is the best description for life with a chronic illness. Sometimes it feels impossible to live inside this body. It’s as though I am built out of a house of cards and the slightest puff of air can send me spiraling apart. Every day I have to balance environment, medication, diet, exercise, mood, rest, etc. in order to minimize my pain and maximize my health. If a single thing is out of whack,…
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WHY IS THE AIR SHARP?
WHY IS THE AIR SHARP?
HOLY MOTHER OF HELL! WTF!? There I was, managing my life with small nerve fiber neuropathy when BLAMMO suddenly one evening my hands and fingers felt like I was playing with slivers of broken glass anytime I touched anything. This was not some gradual slide over time either. I work with my hands all the time. I use yarn, paper, glue, fabric, rocks, paints, cardboard, you name it. Usually I am…
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