#spoonieswiftie

[swiftieinred13]

Hi my Swiftie babes! So many of you probably know I'm a spoonie but you may not know what I have and I will get to that in a minute but I wanted to explain something first. I'm struggling. I haven't admitted it to many and not even in words to my family, though my mom already knows. This year has been super rough on me health wise. I've had a whole bunch of doctors appointments (nearly 10) and 1 ER visit. Every day I am symptomatic and sometimes that's why I'm not on tumblr. Please forgive me for those days. I'm trying so hard but being chronically I'll can be HARD. Yes I exercise almost daily and eat well so please dont tell me that and essential oils will heal me. I have a whole brace bin and what feels like a whole pharmacy in my bathroom. So onto what I have. I can name all but 2 as I am in the diagnostic process for them.

1. Chiari Malformation

2. Syringomyelia

3. CCI

4. hEDS

5. MCAS

6. Gerd

7. Gastritis

8. Chrons

9. Occipital neuralgia

10. POTS

11. Syncope

12. A partially paralyzed right ankle

13. PCOS

I am waiting for results on to which autoimmune disease I have but it's quite strong so treatment will be coming. I also appear to have CSF flow issues.

But life isnt over! I'm still a happy girl who loves her friends her family, her boyfriend. I still have hobbies, I love to figure skate and dance and snowboard and bake. I'm always down for a walk in nature or a movie night. That's why I included a "good day" picture (even though I'm always symtomatic) and one with my brace on.

I know I wouldn't be where I am today if it was not for Taylor Swift. This is why I am starting #spooniekatmeettaylor . Everyday I listen to Taylor Swift. She gets me through it all. Her music brings me strength and joy. Her music gets me through this never ending fight. Taylor is everything to me. I've been here since Tim McGraw and I'm never leaving. Catch me and maybe my brace buddy at Gillette at Lover Fest East Night 1! I will be sitting in Floor Section A5, row 16, seats 17 and 18. Please come and say hi! I would love to meet as many of you as possible!

If anyone can reblog with the #spooniekatmeettaylor and tag Taylor, I would be so so grateful.

Love you all! My messages are always open if anyone wants/needs to talk :)

All my best,

Spoonie Kat

[swiftieinred13]

Thank you Taylor for getting me through everything. This month alone I've had 6 doctors appointments and an ER visit. 6 blood draws. Numerous tests ordered. Several diagnoses. More medications than ever. And we are still searching for answers. I'm autoimmune now but we don't know which one yet. Plus I have either low or high CSF pressure causing intense pain and nausea and dizziness just to name a few of the issues its causing me. Your music has played in my ears in every waiting room and every appointment room as I've waited for doctors. Thank you for getting me through it all. I don't know where I'd be without you, I really don't.

I thank you from the bottom of my heart, forever and always.

I love you,

Kat, the spoonie Swiftie

@taylorswift

[swiftieinred13]

If it don't fits, I still sits.

[swiftieinred13]

Last few days of twenty wine-teen Swifties. Let's make them count ❤

[swiftieinred13]

💕My seventh era is the Lover Era 💕

13 years a Swiftie and Counting

[swiftieinred13]

I did Lover themed makeup the other day to distract me from my current health dilemmas. I felt cute so I figured I'd show it off.

[swiftieinred13]

Me hoping my 13th year will be my lucky year to meet @taylorswift

[swiftieinred13]

Looking to buy 2 tickets to Lover Fest east

Hoping to see if anyone on here is selling so I can support another swiftie and not a computer bot