Discover Top Posts Tagged with #sscd

they’re silly :3

#my art #hs #sscd #<- on a technicality #…bncd???#bec noir #clubs deuce #eggwishing has both plagued + enlightened me. they r so real

giggles kicks feet. SSCD for the ship bingo

-polycrews

yknow sometimes you and your crew are just a little bit gay for eachother. just. a little bit. totally wouldnt die for eachother. totes

[text in the middle says "very specific scenario of the whole crew being pitch/flush/pale. im sure you can appreciate it polycrews"]

#sscd #talky tag #asky tag #HI I HAVE NO IDEA IF I DID A GOOD JOB AT THAT TRANSSCRIPT #THOUGHT I MIGHT AS WELL TRY SINNCE YOU DID IT LOL #ship bingo

drew this a few days ago and only now looking at it n thinking hmmm this is postable, actually

anyways yea theyre pitch fight me about it

#my art #crews rarepair posting #sscd #cdss #←???#ive never seen any ship content of them so.#spades slick #clubs deuce #hs intermission #homestuck intermission #hs

On this day in 2012 I had my first bout of vertigo at Epcot. 13 years and 3 inner ear surgeries (2 of them craniotomies) later and I’m so much better. I rarely have dizziness, usually just related to the barometric pressure changes.

Superior canal dehiscence syndrome - Wikipedia

#scds #sscd #superior canal dehiscence syndrome #superior semicircular canal dehiscence #it’s only a craniotomy #personal #epcot #epcot center

Re: that last poll, I just thought I’d mention that SCDS can be fixed surgically and while it might not cure everything it will probably help A Lot. Yes I lost some functionality in the canal they plugged but I’ve adapted and it’s unnoticeable most of the time.

I did video consults with Gopen at UCLA and Carey at Hopkins, the two surgeons with the most experience in the US. Ended up going with Carey bc I liked his vibe and have family in the DMV, whose house I could recover at.

The surgery experience was super smooth, even with the unexpected discovery of dura tears and extra time it took to fix it (5 hrs). Carey and his residents checked on me daily when I was recovering in the neuro ward and truly they were all so nice, the nurses and orderlies and custodians and everyone else too.

And somehow, Hopkins worked with my MN-based insurance to get counted as in network for me, which made it waaaaaay cheaper.

Obviously no one ever wants to get intracranial surgery, but if you’ve got SCDS (can you hear your eyeballs move? you’ve got it) and are considering surgery, cannot recommend Dr. Carey and his team highly enough,

#scds #sscd #superior canal dehiscence syndrome #superior semicircular canal dehisence #tw surgery

Ten years ago today I took this selfie in my new Figment hat at Epcot. It was the day after the 30th anniversary of the park opening. I couldn’t go the previous day because of either school or work, I can’t remember. It was a great day. I had a lot of fun going around the park with my mom. That is until I was in a hallway in the restaurant in Future World (the name escapes me at the moment) when I had an episode of vertigo. All of a sudden I was walking straight but leaning up against the wall. Upright was no longer upright. My world turned on its side. I had no idea what was happening and it was terrifying. Once the episode had passed, we left the park. On the way home we stopped at the ER in town. They did a head ct and said everything was clear. They sent me on my way. It was the first really intrusive symptom of SCDS that I experienced. Little did I know how much that day would change my life. In the following months as my symptoms progresses, I had to take a leave of absence from nursing school and from my job at the hospital as a CNA. Finally, five long months later, I got my diagnosis at Mayo Clinic. Superior semicircular canal dehiscence. A tiny hole in my skull between the inner ear and the brain causing numerous debilitating symptoms. A month later I had my first inner ear surgery, via the transmastoid approach. Meaning they went in behind my ear. It seemed to fix all of my problems. I was able to be in school, which I had resumed that semester, and go back to work. Life returned to normal. I graduated at the top of my class. Things were good. That was chapter one in my SCDS story. Fast forward ten years and two craniotomies later and here we are. If you’re interested in the more recent part of my journey, check out the tag “#its only a craniotomy”. That’s where I documented my surgeries and recoveries in 2018 and 2019.

#figment #epcot center #epcot #scds #sscd #superior semicircular canal dehiscence #superior canal dehiscence syndrome #inner ear disorders #inner ear #craniotomies #it’s only a craniotomy #personal

It’s official. The seasons are changing. My human barometer has been cranky. I’m really feeling it today. Headache and pressure, dizziness, nausea, ear pain and pressure. Oh, the joys of inner ear disorders, even post surgery.

#scds #sscd #superior canal dehiscence syndrome #superior semicircular canal dehiscence #inner ear #feeling sick #fun times #seasons #season change #personal

Life, Surgeries, Puppies, and Other Things

Well, it has been quite some time since I have updated my website in any way. If you follow me on YouTube, I have been more active on that platform. But so many things have been going on to keep me from regularly updating my blog. If you’ve been following me on YouTube, you know that I have a condition called Superior Canal Dehiscence Syndrome (SCDS). My symptoms started to present themselves…