#ThisIsWhatChronicPainLooksLike #ThisIsWhatChronicIllnessLooksLike https://www.instagram.com/p/B6N3TjXFFi4/?igshid=15wh8gy8chfyt

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#ThisIsWhatChronicPainLooksLike #ThisIsWhatChronicIllnessLooksLike https://www.instagram.com/p/B6N3TjXFFi4/?igshid=15wh8gy8chfyt
I’ve lost a bunch of weight and probably weigh about the same as ten years ago. The big difference is my stomach size. Ha. Need to work on that. When you ask how I lost the weight it’s not a great inspirational story, I had surgery, 85% of my pancreas is gone along with my spleen. I can’t eat how I used to and I’ve had to change my diet. Sometimes I get really sick from food and my body rejects it violently. #chronicdisease #mypancreassucks #mypancreashatesme #diabetessucks #thisiswhatchronicillnesslookslike #naturalhair #purpleafro #houndstooth #fashion #weightloss https://www.instagram.com/p/Bvy43SWD-nT/?utm_source=ig_tumblr_share&igshid=17b6j5w9tqhf3
One of the ways of describing some Lyme Disease symptoms is "flu like": fatigue, all over aches, joint pain, heavy limbs, feeling like death warmed up. This is my base line; how I start every day. Meds help but doing anything that causes exertion, physical or mental, makes it worse. So guess what happens when I get a bad cold (it's probably not flu tbf). Yeah double whammy of those "flu like symptoms". I've just hit the coughing, spluttering sneezing phase. I'm not impressed. #chroniclymedisease #chronicillness #chronicfatigue #lymedisease #ill #invisibledisability #thisiswhatchronicillnesslookslike #butyoudontlooksick #punk #goth #skeleton #greenhair
I've been writing for Access:LARP and then needed a sudden nap. Mental exertion is still exertion. #thisiswhatchronicillnesslookslike #butyoudontlooksick #chronicillness #cfsme #chroniclymedisease #chronicfatigue #lymedisease #greenhair #cpunk #spoonie #spoonielife #LARP
I've overdone it and hit a wall. I am so fatigued I can't move. This is my view right now. I can hold my phone and move my hand to type this but that's it. I think "move" and nothing happens. There's just no energy for it. #chronicfatigue #chroniclymedisease #cfsme #fatigue #chronicpain #disability #thisiswhatchronicillnesslookslike #ButYouDontLookSick
I made the effort to go out. I got writing done and got to see my lovely friends at knit n natter. But I was tired and in pain then and I'm m in so much pain now out hurts to breathe. My face hurts. My ribs hurt. My arms and legs hurt. This is deeply unpleasant. #butyoudontlooksick #thisiswhatchronicillnesslookslike #invisibledisability #chronicfatigue #chronicillness #chronicpain #cfsme #lymedisease #chroniclymedisease #disability #cpunk #cripplepunk #chronicpunk #bluelipstick #gothmakeup
#nomakeup #purplehairdontcare #spoonie #spoonies #thisiswhatchronicillnesslookslike #nospoons #chronicfatigue #chronicpain #chronicillness #fibrowarrior