#chronicdisease

[highhellkisses]

I am still relatively newer to the chronic illness/injury world in the sense that I've only had a diagnosis or debilitating symptoms for the past five years(give or take, and I know some people experience it for many more years. But I am still well seasoned enough in chronic pain to know that it is exhausting, emotionally draining, isolating, and horrific.

I've been lucky enough to have the past few months, even year, not suck for me. But, due to an inability to see my physical therapist for about two months, sadly I am back to a state of debilitating pain.

And even though I have experienced it before, even though I have first hand knowledge of how it feels to be living with it, even I forgot how tiring and lonely it feels to be in such pain.

So if you have never experienced chronic illness or pain please give grace to those around you that might be dealing with something similar. I know you don't understand. I know it can be annoying. But please reach out and ask how they are, how they are really. Push for how you can help. We don't want to be a bother but it's so nice to have people care and send a kind word. Even if you've been through it it's easy to forget how it feels in the moment(our brains are funny things, darn survival mechanism!)

Just be kind and give grace.

[myalgicencephalomyelitiscfstom]

[bpdnchill]

It's so weird to realise that you've been beating yourself up for decades because you're "unfit" when in reality the pain from using your body is actually due to an incurable illness 🤔🤔

[jarvishasthephonebox]

healthy people with children: you won’t know what physical exhaustion and sleep deprivation are until you have kids

my chronically ill ass:

[sparkles-and-trash]

tw: discussion of drugs and pain medication

I finally found a new wêëd guy, and I’m getting stuff today, and I could cr y y’all, cause, like

I have three (3) chronic illnesses, that each attack different parts of my body, and some days the pain and fatigue has me entirely bedridden, while others I have the energy to go for longer walks or do like, one «big» thing (going out of my apartment for other things than walking Zelder around here counts as big) and then I’m stuck on the couch with brainfog the rest of the day

This obviously affects my ability to be creative, both with writing, art and even gaming simple Games and ACNH or Sims, which is a huge grief for me tbh

The only thing doctors can do is give me pain meds, and strong ones. Opiods. I’ll take them when I have to, but side effects usually have me drowsy or sluggish for the day, and I hate that feeling. I’m also terribly afraid of addiction, which is very common with these meds.

Wéėd on the other hand? Works wonders. Stops the pain, but doesn’t render me compleatly useless.

But here medicinal wèëd is pretty much not a thing, so that’s out of the question. Before covid I still had the opportunity to get some now and then, but the last year has been dry as hell.

But I’ve finally found a new legit guy closer to where I live, and I could like, sob about relived I am??

So yeah, tomorrow I’m gonna clean all day, and bake, watch movies, write and chill all night. Finally.

[xelxier]

This is my and your friendly reminder that, having a bad day is never an excuse to eviscerate those around you.

[daniellelom]

Here’s a new one for me... I came home from the gym the other day (yes I work out to the best of my ability, I’ve found I’m in less pain when I work out than when I don’t) anyways... I was sitting down on the couch and when I went to get up my knee decided it’d hyperextend back and lock up on me causing me to fall forward.. it didn’t hurt, I wasn’t swollen, it just hyperextended and locked.. wtf is wrong with my body🤦🏻‍♀️🤦🏻‍♀️

[myalgicencephalomyelitiscfstom]

bc = because