#veau 2

[momma-goober]

Got a flyer in the mail for a support group for parents of kids with cleft lip and palates. It sounds really cool because we can discuss the different obstacles and challenges our kids face in social interactions. I want to go, but looking at Hazel she doesn't look like she has a cleft or other deformity that could cause for bullying or weird looks. But she might when she's older with her grown up teeth if they all don't come in. I'd feel a little weird going to it since she doesn't have a visible cleft but she's still affected by having a cleft palate. Idk 😕

[momma-goober]

WE GOT THE OKAY.

Okay so it's been a while since I've actually posted anything personal besides instagram photos. BUT WE GOT THE OK FOR THE CLEFT PALATE REPAIR SURGERY! 😄🎉 Hazel is in the 4.8th percentile for weight, coming in at a whopping 13lbs at six months 😅 but she was in the negatives at her three months visit so the surgeon is very pleased with her progress and is comfortable scheduling her surgery for October! She'll be 11 months instead of 12-14 months like they were projecting at the three month visit. I can schedule an actual date in July. I am relieve and anxious and scared and happy all at the same time. I know there are more obstacles to come but, I'm excited that this big one will be behind us.

[momma-goober]

😍❤️ I can’t believe you’re two months old and some! Thank you Alyssa for sending me adorable photos of Hazel while I’m stuck working 😩

[momma-goober]

😴💋

[momma-goober]

Update on Hazel

Last month was filled with specialist and doctor appointments.. geneticist, audiology and ENT, normal well check, etc. She had to go for weight checks with her pedi because they need to make sure she's gaining/eating as she should. If she was having difficulty gaining, a feeding tube would be necessary, but she's a champ with the specialty bottles 💪🏻. However, bub has a cold and has been pretty lazy about the bottle.. I've brought her to the doctors but they say as long as she's making drool and wet diapers and isn't feverish, then she just needs to work the virus out. She has fluid in both ears, surprise surprise, and it is causing some hearing difficulty. But they used this headphone-thing that sent vibration waves through her skull and her permanent hearing isn't affected! So once her tubes are put in during the corrective palate surgery she will be good to go! 7-10 months until corrective surgery! We will schedule it probably next month when we go back to see the craniofacial specialists.

[momma-goober]

I've been so busy! I want to update as much as possible but I'm just SO TIRED. Hazel just got back from the pedi, she has a fever of 101.1 and a double ear infection. Tylenol has helped with the pain that she was able to fall asleep. I'm on fever watch until Saturday morning if she doesn't break it. She is now on augmentin 🤢. Also learned that she may be able to be put on a daily suppressive antibiotic to help keep these at bay since she's going to have this fluid in her ears until the palate surgery. 😩 My day off tomorrow is going to be spent cuddling and napping with Hazel ALL DAY 💗

[momma-goober]

I just hope that Hazel's cleft won't cause her adult teeth to form incorrectly or not form at all. Been through that, it's rough. Granted, mine was accidental I fell down the stairs as a toddler. Kids are so mean. Only time will tell, but it's something I worry about.