Fellow Epileptics & seizure havers, What's the most ignorant/ableist thing people have said to you?
A secretary at my doctors office saying "Sit down your appointment is soon, would you like some water?" when I went to them in a panic to say I feel like I'm about to have a seizure.
2 different nurses dismissing my memory issues because "everyone forgets things" or because I could remember what I was wearing that week, I was "obviously fine" (I wear the same thing 90% of the time)
Being sent a troll link that traps you on a flashing site and when I told them that could have harmed me because I have photosensitive epilepsy, they laughed.
I can't remember if there were anything else but those are the biggest experiences that upset me.
Let me know your experiences, it doesn't have to be anything big. I just want everyone to know they're not alone with being treated wrong 💚
I'm trying hard to spread awareness so these experiences can stop happening because you know It's bad when people in the medical field are as ignorant as the general public..
Also people with non-epileptic seizures, you're included too!!
bonus thing that annoys me: I've been trying to see a neurologist for months now over my seizures changing and concerns about my brain but having no luck. I'm tired of having to keep poking my doctor for a referral...