Origami Around
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❣ Chile in a Photography ❣
will byers stan first human second
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祝日 / Permanent Vacation
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izzy's playlists!
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2025 on Tumblr: Trends That Defined the Year
hello vonnie
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@theviolenceofstairs
Don’t grab someone’s wheelchair.
Don’t move someone’s cane.
Don’t move someone’s medication.
Don’t touch anyone’s mobility aid or medication. Not only is it extremely violating but it can actually hurt someone. I don’t care if it is “in the way” mobility aids are an extension of a person’s body and they should be respected as such.
y'all i fuckin bedazzled my wheelchair isn’t it stellar . . I used BarryM Diamond Glitter clear glitter coat nail polish to do so, it took me a whole bottle aside from the dregs to cover the front side bars and the bar across the back, but now it looks closer to what I’d hoped for when I originally ordered it. . . [Image descriptions: the first two images show the wheelchair, a quickie QRi, before it has been painted. It looks relatively plain with a black paint job. It is a small rigid manual wheelchair. The first photo shows the entire chair at a ¾ view, and the second shows a close up of one of the bars that sits next to the knee. The next two images show close ups of parts of the chair - the same knee area from the second picture and a metal bar behind the seat. In both images, the chair has been given a coating of clear glitter nail polish to give it a holographic sparkle. The fifth image is a gif of the the part of the chair where the caster wheel attaches, showing the QRi logo and the holographic effect of the glitter as it sparkles between several colours, including silver, green and orange. The sixth image is a still picture of a similar area to the last, showing more of the bar also covered in glitter, and the final image is another picture of the full chair from a ¾ view, this time with glittery piping (and the seat cushion removed for ease of access while painting!)]
Saw this post on FB and thought some of you would like it. Here’s the link:
https://twitter.com/JohnLZHC/status/1014498513651228672?s=19
PLEASE HELP WITH WHEELCHAIR COPAY !
My current wheelchair is falling apart, and we have been waiting over a year to get my new one. But there is a 2000 dollar copay that I have to meet in order to get my new wheelchair, which is rediculous but it is the reality of it. Please help if you can, and share this if you cannot. Thank you!
https://www.gofundme.com/wheelchair-copay-fund&rcid=r01-152876006886-76b3e2cd869843be&pc=ot_co_campmgmt_w
Hey new followers! Here’s a short rundown. Enjoy! 💫 What is #HospitalGlam? For those who are new to the project: #HospitalGlam is a social movement that uses site specific selfies to further self advocacy and boost disabled and chronically ill voices. The term #HospitalGlam was coined as a dark nod at the complexities in representing invisible illness. The project started by appropriating fashion imagery and reinserting it into medical environments using bodies that don’t outwardly present as sick or disabled. #HospitalGlam is about contextualizing our full selves inside the clinical environment in order to assert our rights as patients and better our treatment. By taking #HospitalGlam photos and posting them on social media, patients increase awareness of invisible illnesses in their communities and with doctors. It allows us to flip the gaze so we control it. - #HospitalGlam is now a hashtag that gives a visual to the work of thousands of disabled and chronically ill people who advocate for themselves by taking up space in clinical enviornments. #HospitalGlam and it’s participants have been covered in Buzzfeed, HuffPo, The Guardian, Self and more. Below are some brief guidelines for the project, which are explained in greater detail in the Hospitalglam.com/FAQ. I recommend the FAQ. - -You must be in the photo -It must be in a clinical environment. - -Bathrooms, Cars, or other places where you might not need to advocate for yourself with a medical professional do not apply. - -POV shots (needle in arm, or shots of your procedures instead of you) are excluded from this project, because they force the viewer to look through our eyes instead of at us, projecting their feelings into our experiences. -Images of text only, aspirational sayings, etc. -You don’t have to wear a special outfit, or makeup or anything fancy. Just be yourself and push for the treatment you need. It is enough.
Thank you! #disabled #invisibleillness #chronicillness#disabilityfashion #disabledartists#whatishospitalglam #hospitalglamfaq #periodicreminders #tbt [#imagedescription: #tbt self portrait taken prior to an exam. I’m on a medical bed, pushing my hair out of my face]
#talk to disabled people like they’re real people 2k18
What happened to George Takei’s sexual assault allegations?
the accuser has since admitted it wasn’t true after people started picking apart his story and finding inconsistencies. george takei has forgiven him.
unfortunately, with every movement, there is a chance for a liar to try to join. i feel terrible, because i initially believed it.
Dog does not understand
ARE YOU KIDDING ME THIS RULES
If You’re Able-Bodied, You NEED To Read This RIGHT NOW.
Lately I’ve been making a point to go over and spend some time with my mom. Today I found her trying to be hospitable but clearly somewhat irritated. After some unrelated conversation, she finally told me what was on her mind.
My mom has MS. That’s multiple sclerosis. It’s an autoimmune disease wherein the body’s immune system begins to attack itself - specifically, the myelin sheaths that protect the nerve fibers in the brain. Some people with MS also experience damage to the nerve fibers in their spine. Essentially, the nervous system is the focus of this disease.
There is more than one form of MS. My mom has relapsing-remitting MS. That means she has periods of time where her symptoms are less severe (note: LESS SEVERE, not gone) and other times - flare ups - when her symptoms are debilitating. The symptoms are varied and there are a LOT of them. Not everyone has the same symptoms, it just depends on how much damage has been done, and where.
Mom experiences extreme, debilitating fatigue the likes of which no able-bodied person can comprehend. It strikes without warning and puts her down fast, sometimes for days at a time.
She experiences nerve pain. Phantom itching. Brain fog. Trouble with recall. And these things are in addition to other diagnoses, which are her business and won’t be discussed here, but often interact with her MS in unbearable ways.
But do you know what mom was most upset about today?
The attitudes that people take toward people with invisible illnesses.
See, mom feels like she has to hide her symptoms and try to behave as much like an able-bodied person as possible. She feels like she can’t vocalize it when something is bothering her. Why? Because able-bodied people believe AND SAY very insensitive things about her, and that’s more unbearable to her than her ACTUAL DISEASE.
“Oh, I know, I’m so tired too, I didn’t get any sleep this weekend!”
“Why don’t you just take a nap/drink a coffee?”
“You should try changing your diet, maybe if you didn’t drink so much soda…”
“You don’t look sick/you seem fine!” (I think sometimes people mean this as a compliment. It’s not.)
And worse are the people to whom she has explained what’s going on and why she can’t just overcome it with sheer willpower or some Tylenol or a cup of coffee, and who still say the same insensitive things to her.
Do you know what she said to me today?
“When I tell someone about my disability, I don’t want them to do anything. I don’t want them to feel sorry for me. I don’t want them to try to help me. I just want them to know something.”
She just wants them to understand, so she doesn’t have to waste spoons explaining again and again. Or bottling until she bursts. Or be judged as lazy, or a miserable complainer. She just wants people to be told the facts, and then know them, so that when her disease strikes, they can say to themselves, “I know what’s going on here,” and not say something insensitive that chips away at her.
So you know what I’m asking everyone who reads this to do tonight? Open Google and search “autoimmune diseases.” See about the various types that there are. Click on a few. You can start with MS. Maybe move on to Lupus. There are a bunch. Or just read about what autoimmune diseases are and why they’re classified that way, what they can do on a broad scale.
These are just one type of so-called “invisible illnesses,” and they account for a good number of disabilities experienced by people the world over. I want you to think about the ways that people can hurt that you would never know about if they didn’t tell you. And then think about how society makes them feel like they’re not allowed to talk about how they hurt, lest they be judged as complainers who don’t try hard enough. Think about how they have to deal with that STACKED ON TOP OF the debilitating illnesses they’re already living with.
And then I want you to think long and hard about the meritocracy we live in, and what you can do to be more mindful of the way it disenfranchises disabled folk. Think of ways you can respond to people that don’t delegitimize the symptoms of invisible illnesses, and use those alternatives ALL THE TIME, just in case you’re talking to someone that doesn’t want to let on that it’s their illness that’s causing it.
We can all do a lot by making this effort. It’s worth it to make the world a more hospitable place for those among us who struggle most.
Just a reminder, but you do not need to “earn” being tired.
You’re allowed to be tired, even if you haven’t “done” anything and you’re allowed to be tired even if you did less than someone else.
Being tired is a normal thing your body does for a whole plethora of reasons, and is a basic bodily function. You don’t need to “earn” basic bodily functions, no matter what anyone else tells you.
Chronic Illness Thing #29
Having the energy to start a project one day but not having the energy to finish it or continue it the next day.
I dream of a movement in which we lead the way.
hey before you call something wheelchair accessible just go ahead and invite a wheelchair user or two over because I almost guarantee you that an able-bodied person is not capable of guessing what is accessible without having ever used a wheelchair solo before
some but not all cool things nobody ever thinks of:
put hand sanitizer or a sink in the accessible bathroom stall, or alcohol wipes outside of it. people who cannot use their legs have to use unwashed hands to roll to the sink, and people who can use their legs are afraid to walk out of stalls because they get harassed and even assaulted.
enough space for wheelchair in doorway…AND ARMS. HOW DO YOU THINK THE WHEELCHAIR MOVES! if I cannot roll through it without scraping my arms it is not accessible
brick paths suck the end
gravel paths suck. make it smooth
a ramp is not accessible if it is too steep. not every wheelchair user is ripped enough or capable of using muscles enough to propel themselves up a steep angle safely. some wheelchair users have heart issues. you want heart attacks? this is how you get them
perfect 90 degree turns suck and are often impossible to turn through
some wheelchairs have foot rests. account for them
wheelchair accessible means wheelchair accessible while alone. if you expect someone to have to be helped out to use your facility, that is not acceptable or accessible
yeah
Some wheelchairs have fairly small wheels (electric chairs especially) aaaand if there are bumps or ledges of more than an inch… those chairs are at risk of tipping over. I have in fact tipped backwards due to a bump in concrete that I didn’t see of about an inch and a half. I tipped back and got a concussion.
Thank you for all of these tips! Our next anime con planning meeting is at our location, and I will be doing my best to check all of these (including whether the public restroom doors have automatic openers, which is one I saw specified in a different post).
Can I just say how much I hate hotel room doors in a wheelchair, btw? They’re awful. I have bruises on my foot right now from shoving my foot forward to catch the door before it slammed shut after I unlocked it.
In some states (like WA, where I work in a hotel), most hotel room doors are legally required to be self-shutting fire doors, which means they’re heavy af. I know it’s an accessibility problem, it sucks.
Yeah, but you’d think accessible rooms would have a button you could push to hold the door open for a short time after you unlock it. It can still be a self-shutting fire door, just…
Also, don’t call your theatre/cinema accessible if it has thick, plush carpeting. I understand that it’s to absorb sound, but have you ever tried to push yourself over it? When I go to the movie theatre in my chair, I have to ask for two workers to help me. One to push me, and one to get my soda and carry it for me. It’s honestly embarrassing.
Spoonie tip of the day
You may need complete rest days. So try and not feel bad for doing what you need to do. Self care may need to be your first priority above “productive and meaningful” tasks. Only you know what you are capable of without being in misery.
Shout out to the disabled people making progress that no one recognizes because it’s not what society considers to be “impressive” or “commendable”
Shoutout to all the disabled people who are managing to get out of bed for the first time in months.
Shoutout to the disabled people who made their own meals today.
Shoutout to the disabled people who are going back to school/ work.
Shoutout to the disabled people who went grocery shopping.
Shoutout to the disabled people who drove themselves around.
Shoutout to the disabled people who managed public transport.
Shoutout to the disabled people who accomplished any or all of the things they wanted to today.
And a big shoutout to the disabled people who didn’t do any of these things bc they finally gathered the strength to say no and listen to their limits.
Your accomplishments are worthy. Your life is worthy. YOU are worthy. Don’t let anyone tell you otherwise because you aren’t “productive” according to society’s standards.
Another day, another completely inaccessible sidewalk. Isn’t it great how they’ve put these in All The Way Down?
Reminds me of yesterday. They put the sign with its big cement base indicating disabled parking- right in the middle of the cut curb so it was like well shit. Luckily my chair is extra small and I could kinda weave around it but anyone in a standard size chair couldn’t fit in that space. Also there was this gem at the local burger place
Accessible stall- with no door. This is a two stall bathroom but only the non accessible one has a door. The men’s room is a single stall one. Like why? Then again this place sticks the trash can in front of the doors so yeah. It’s also painfully obvious if a ramp was made with input from actual wheelchair users since it’s less steep and has rest spots… vs ones clearly made by someone who has no idea and sticks hand rails too far apart or worse none at all and a steep incline… or heck the accessible door st the top of a very steep hill that you can easily roll backwards into the lake from. Like so many things that make it clear designers have no idea what is even needed
This is a Starbucks. How the fuck am I supposed to order? I can’t even get near the cashier, and I haven’t got a snowball’s chance in hell of finding out what pastries they have or what’s on the shelves down at the end.
Clearly this would be 100x more fun when there are people in line.
This is the weirdest accessible bathroom I’ve ever seen. Spoiler alert- there was no bathroom remotely near there. Just a computer lab. There is no way to access any bathroom led alone an accessible one from this door but that’s not what the sign says.
On this note I didn’t get a pic but uhh can we not try improve trans rights by slapping a “gender inclusive” sticker over the disabled bathroom. It’s the only bathroom I don’t have to wrestle a door open and single stall. Like add more bathrooms! Don’t just tell anyone who is non-binary idk just use the handful of wheelchair accessible bathrooms we have so disabled people have to go even further to find a stall they can use just to be “progressive”. It’s not progressive if your “progress” harms others or blocks access to the very limited number of wheelchair friendly bathrooms. I definitely gave the stink eye to the very non-mobility impaired androgynous person leaving the bathroom I had to wait for. There is a men’s and a women’s right next to it. Use whichever you feel more comfortable with and leave the large single stall bathrooms with a push button- the only one in the area with a push button for those who need it. And for the love of god if you are a mom with a stroller who uses the disabled stall- the ONLY one out of 20+ bathrooms for the mall and there are TWO family friendly bathrooms? I am gonna go off on you. It causes me extreme pain if I have to wait. The least your selfish ass can do is listen to how much pain your entitlement caused me.
Any wheelchair users wanna join me in pushing Ardane to make their stores less cluttered and narrow rows so wheelchairs can’t get in? Cause it’s annoying me I can’t shop there at all now.
Had more accessibility fails today. I told a women off for using the bathroom and taking forever in there while I waited to pee since there was 3 empty regular stalls and only one wheelchair one which she tried to defend saying “sorry I just ran in I really had to go” fine but the other stalls are like 1 foot away. You can use any of the other ones. I can’t. At least she apologized and was embarrassed by it so hopefully she listens to my “don’t do that again- there is multiple stalls you can use- I can only use one. Unless all other stalls are full don’t use that one. Ended up having an IC flare and 4 dystonic attacks as a result of having to wait while she took a shit. Making things worse was when she finally left? Ok I have literally the smallest chair they make. It’s a kids chair. I had to get out of the chair, lift it and turn it to be able to shut the door.
This is how not to design a wheelchair bathroom. I was standing against the door frame when I took these pics. The second pic you can see if I have my chair parked in a normal position I can’t close the door. Like I’m complaining about this cause it’s not accessible. Local Olive Garden fail. Sucks cause storms mean I’m barely able to walk a few feet. Can we just make this a thread of accessibility fails. Like maybe it will help people realize what a pain in the ass getting around places in a wheelchair is and things they don’t even think about that block our way. Also note I removed the foot rests from mine (they are easy to remove and stick back on when I need them but I use my feet to break so it’s easier not to have them, plus more maneuverable)- anyone who even has a kids chair with foot rests can’t shut the door to the stall it’s so badly designed. I submitted a complaint to Olive Garden about it.
Omg we could do an entire book on disabled stalls that aren’t actually wheelchair accessible. My favorite was just a normal stall, with grab bars on the wall. Like I’m what, supposed to shit in an open stall? Shut the stall door and leave my $3000 wheelchair out in the bathroom all alone? Bonus points because it was the end stall - you could basically just stand in the great outdoors, stick your head through the door of this bathroom and see into that stall.
Runner up goes to the stalls that look big enough, but the stall door opens in, so if you take your wheelchair in you can’t shut the door again.
And yeah, after waiting for ages to pee I also yelled at a completely abled woman last week for using the only accessible stall in the bathroom when all the other stalls were empty. Her response? “I didn’t know anyone in a wheelchair would come in?” Me: “You can use literally any other stall in here. There is only one stall for people like me. Don’t use my fucking stall.”
Today’s shout-out, however, goes to all those doctors offices where the low desk either isn’t staffed, or, like this one, isn’t even set up with a computer. There are people behind those tall desks btw. They’re sitting on stools. I literally could not see them.
When I finally got someone’s attention, they told me the low desk wasn’t a check-in desk, it was where the nurses picked up their paperwork. I told them if they check the ADA, they’d find that desk had been built for people like me, in wheelchairs, and I’d be sitting right there when someone finally found the time to check me in.
I won. They checked me in at the low desk. They were pissy about it.
spoonie-cpunk packing: bag for clothes, bag for meds/braces
“what is anything that could possibly go wrong with my health/body and what could i possibly need for that scenario?”
