tomorrow = post ablation scan. i don't know what to expect.
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@thycagirl
tomorrow = post ablation scan. i don't know what to expect.
Good luck on the RAI! I personally didn't notice any side effects until a couple days later when I got the worst dry mouth of my life and lost my sense of taste. Luckily, neither lasted more than a couple weeks, but no one warned me about either so I figured I would mention it in case no one warned you either! Also, for the record, losing your sense of taste after being on the low-iodine diet for almost four weeks is cruel. All I wanted was to taste cheese, man! Again, best of luck. :D
yeah i'm definitely feeling the dry mouth!!!! it's terrible. i can still taste, which is good, because tomorrow i stop the LID!
Officially radioactive - it's been about ~ 9 hours at this point. I don't feel too bad thus far... just very, very thirsty. The lack of side effects is actually somewhat alarming? I expected to suddenly feel like Spiderman or something. Oh well.
tomorrow is my first shot of thyrogennnnnnnn
day 8 of LID / endocrinologist visit
* I revamped a vegan peanut butter cookie recipe in one of my cookbooks annnnnnnd i think they're better this way (i used very thick coconut milk in place of the vegan butter + a little oil)
* apparently my TSH level was over 8, but it needs to be near .5, which is pretty concerning and i don't know why they didn't contact me sooner, as it's apparently been this way since October. it's even more disconcerting because I'm starting RAI in a week.
Switching from generic to synthroid as well as a higher dose.
the next 2 weeks consist of:
- endocrinologist appointment (i’m actually meeting with my endocrinologist for the first time - she did my thin needle aspiration but that was the only time i met her)
- bloodwork and then getting a shot in my ass at endo’s office
- another shot in my ass at the endo and then to the nuclear medicine office
- nuclear med office for RAI
- post ablation scan at nuclear med
AKA going to 2 separate doctor offices on 5 different days
i hate things
Day 5 of the LID
i made a lentil loaf (basically superhippievegan meatloaf) yesterday and that was really good. today i'm making boiled peanuts (because i obviously miss florida).
thyroid cancer must be a misogynist because it occurs waaaaaaay more in women than it does in men
Things didn't kill me but I don't feel stronger Life is short but it feels much longer You've lost that drive, you've lost that hunger To pull yourself through the day. But if ever I stray from the path I follow Take me down to the English Channel Throw me in where the water is shallow And then drag me on back to shore! 'Cos love is free and life is cheap As long as I've got me a place to sleep Clothes on my back and some food to eat I can't ask for anything more Come on everybody sing it 1, 2, 3, 4 We've all got secrets that we hold inside The worst little things that we never confide The worst one of all that you just can't hide Is that you're never quite as strong as you sound
Day 2 of the LID
Already messed up - my friend stopped by and offered me a cookie. I took a bite and then remembered. Good thing I remembered, though. Other than that, today's been light. More falafel and chocolate.
i'm the worst positive-thinker ever, because i honestly just sit here and dwell on my problems so much. i will literally think myself to death. i'm constantly thinking about how i could 'get rid' of the cancer, but it wont really be gone. i constantly think about the fact that thyroid cancer is one of those cancers that really never go away, because unlike other cancers, thyroid cancer is just as likely to come back 5 years from now as it is 10 years from now. it's like you're in this constant state of limbo, because i imagine you're always thinking about when it's going to strike again. i will never be rid of the doctors. i will never be rid of the medication that has replaced my once functioning organ. how screwy is that? I haven't even gotten rid of the cancer for the first time, and yet i'm already thinking about 10 years from now! this is anxiety in its purest form. i want to be a positive thinker. when i 'get rid' of the cancer (hopefully soon), i don't want to be thinking about when it may return. i want to live in the moment, and enjoy it for what it is: a celebration. so i'm going to do that, and i'm so looking forward to that moment. no sarcasm.
Day 1 of the LID:
- Falafel (homemade chickpeas, seasonings + kosher salt, matzo crumbs and then fried in a pan)
- Dark chocolate + some salt-free peanut butter
- Homemade black bean soup (made by my aunt)
- Coffee + some canned coconut as creamer
- ginger-ale
(please note that this post was written the day after surgery - back in July - and therefore does not tell the full story).
Back in January, I went to my college’s Wellness/Health Center, because I noticed a rather large lump on my neck while sitting in class one day. The nurse practitioner told me that it was a swollen lymph node, and gave me an antibiotic to make the swollen lymph node better. This was meant to work within a week... well, 2 months went by, and nothing changed (yet I still had to pay for the medication… still a bit bitter about that).
During spring break in March, I visited a physician's assistant at home. She could tell right away that it was NOT my lymph node; on the contrary, my thyroid had a huge nodule on it. She suspected that it was either hypo or hyperthyroidism, so I had blood work done. About a week later, the PA called to let me know that my thyroid is producing the correct amounts, so it was not hypo/hyperthyroidism. I then had an ultrasound done on my thyroid so that they could get a better understanding of it.
In April, I visited a nurse practitioner at an endocrinology clinic, and she told me the results on the ultrasound: the nodes on the right of my thyroid were 3x the size of my actual thyroid (and it continued to grow after this, and eventually reached the isthmus – middle – of my thyroid). She had a sneaking suspicion that it could be cancer, so she ordered a biopsy (thin needle aspiration) for me.
In May, I went to get the biopsy done. They stuck 4 needles in my neck in order to get tissue samples. A week later, the results had come out inconclusive, so they did another test with the remaining tissue samples... and a week after that, it was still inconclusive. By this point, I had two options: wait until August and have another biopsy and hope the results came back with some sort of answer, OR go ahead with surgery. I weighed these options for a while. The NP didn’t really know what my best option was; she said her best guess for cancer was 20%. Eventually, I asked the NP to schedule me a meeting with a surgeon.
July 16th, I met with my surgeon. He told me that they would take half of my thyroid out (plus the isthmus), and while in the operating room, they could test that part of the thyroid for cancer by sending it over to pathology. If it was cancer, they would have to then take out the remainder of my thyroid. This seemed fine to me, because my thyroid was causing me a lot of discomfort, and I didn’t want to live with it. If it wasn’t cancer, I would still have a fully-functioning ½ thyroid.
On July 25th, I had surgery. When I woke up, my surgeon came in and told me that they had to take the whole thing out because it was cancer.This is a pretty weird way to find out you have cancer, but it could be worse. I'm just glad that I'm finally on the road to recovery.