Stiff Living @tinyneedles-blog - Tumblr Blog

So, wide world of tumblr. Help yo fellow auto-immuney out. It's been recently discovered that my kidneys (for whatever reason) no longer filter out proteins. I stopped absorbing Vit D roughly 2 years ago, so having my body quit eating the things it's supposed to isn't too horrifically surprising. I have RA for those who don't know. WHAT'S UP when you stop filtering protein through your kidneys, should I be increasingly worried? Or let it be?

I know it's the first sign in CKD (Chronic Kidney Disease), but I haven't heard back on my rushed function test yet.

Pee has been sent to labs with an abundance of lab work, but I'm curious to hear it from actual people.

Is it normal? What might/could possibly be up? HELP.

#Autoimmune Arthritis #autoimmune #kidney #protein #organ #adivce #k8's curious

k8 upd8:

Here I am, back home roughly 95lbs livin’ the life. Autoimmune life is pretty on/off again, spent the day before graduation in the hospital. About to embark on the most doctors appointments I’ve ever been to in the next two weeks. Very apprehensive. Crossing fingers I haven’t joined a new club of chronic illness. Though docs think they dramatic wight loss isn’t the best of signs.H

Here we go summer 2k14, keep on fighting gang! T-shit courtesy of my Middle School Students, courtesy of ‘The Outsiders’ unit I taught.

#Autoimmune Arthritis #autoimmune #RA #Rheumatoid Arthritis

So it really bothers me that my parents take the idea of RA as a joke. I've had it basically my whole life, it's not going anywhere. I take awful medications that aren't good for you, to help fix 1/4th of the problem. Since when does working out fix all of this magically?

I seriously feel like they won't take the dx that I have had for 14 years now seriously, until I'm actually dead.

#autoimmune disease #autoimmune probz

I have, Bronchitis, an Upper Respiratory Infection, a Sinus Infection, and an Ear Infection.

Fuuuucking kiiilll meeee.

cherubsandwich

I am literally in some of the worst RA pain I have experienced in my life. Ice isn’t working. Heat isn’t working. Tylenol isn’t working. The pillow trick to disperse weight isn’t working. Extra prednisone isn’t working. Somebody give me some tips here. I woke up and I am dyyyin’

For Christmas give me your spoons.

#spoonie #Rheumatoid Arthritis #autoimmune disease

Kidney infections and RA, no fun, no fun, no fun.

I'm alive, Massive Thanksgiving flare led to dehydration and one massive bladder infection. Exempt from my final week of college. Okay, okay. Works for me. Here's my ugly mug from yesterday.

I drove home in a blizzard for break, the stress caused a massive flare. I'm currently in a really fucking shitty mental state, and I swear it's affecting my pain levels. I just want to cry forever. I'm so over the world of college.

I feel like Enbrel only works 1/2 the time it used to. Should I look into switching biologics? I still have flares, I'm always uncomfortable. I don't want to be uncomfortable all the time. I'm almost always tired. Has anybody else ever felt like Enbrel quit on them? What did you do?

#enbrel #Rheumatoid Arthritis #biologic #autoimmune

I went home for the weekend and forgot all of me meds. okok

SRS question ladies and gents: Which is better, MTX injection or MTX pills bc the pills b killin' me.

#chemo on

Enbrel Day Anxiety Update

Last night I trained G to give me my enbrel injection. It didn't hurt any less but it did help me a lot with my anxiety, because I wasn't afraid of the incoming pain I was about to subject on myself, somebody else was simply pushing a button without hesitation. It still hurt, but it worked a lot easier for me, and of course as always I fell asleep within the hour.

#Enbrel

I've only been taking Enbrel for a month and a half! Do you find it better or worse to have someone else give it? And have you ever re-refrigerated it after letting it get to room temperature? I did that tonight, and it was only AFTER that I read you aren't supposed to re-refrigerate (but that's an Enbrel guideline.. so i'm not sure how liberally I should take this piece)

I have put it back in the fridge after a while and I think it was alright, but I'm not sure entirely haha. I do it myself sometimes, but I also decided to train my boyfriend last night and that was a little easier, because I hesitate from the pain I know I am about to subject myself to, he on the other hand is simply pushing a button. You can try and have somebody else do it for you and see how it feels.

take all the medications

Oh, so you don't totally dig our room decor? (my bio-hazards box)

cherubsandwich

A nerve-stimulating electrical implant could give people a drug-free alternative to current treatments.

WUT YES OKAY MAKE THIS THING A THING

tinyneedles-blog

GUYZ THIS ARTICLE I FOUND TODAY THOUGH.

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