When you’re on sensory overload and someone tries to interact with you
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@tokziik-mind
When you’re on sensory overload and someone tries to interact with you
Raise your hand if you’re a really fucking tired spoonie rn
Lying still will also be accepted
Currently curled in a ball... so much pain 😭
Hi yes I would like to unsubscribe from my body. The problem is it seems to be broken. Causes lots of pain yes and suffering. Oh yes stomach issues as well and migraines. Uh huh yes I’ll hold….
How to Build a Chronic Pain First Aid Kit
Disclaimers: This is what’s in my kit, what I need for my condition. You need to do what’s right for you.
I have severe fibromyalgia, asthma, autism, vision impairment, anxiety, OCD, depression, BPD. The first three are what the kit is for.
Now, I’ve done this before but now that I’m flying out of the country soon, I had to rework my kit. It showed me that my flare box (which lives at home) and my backpack kit need to be the same thing because I can’t be swapping items all the time. If I have a meltdown or flare outside, it does me no good if my best products are in my home-flare box.
When I go out it fits in my little backpack alongside water, umbrella, wheelchair gloves, wallet, and emergency external battery for my phone.
At home the kit lives in my walker alongside emergency food and water, flare medications, ereader, 7 day pill wallet, and noise cancelling headphones.
I used to prep for “pack enough to get me home safely.” Now its, “Pack so I can stay out longer and enjoy myself more.”
Okay let’s get started.
What You’ll Need
1. Small travel cosmetics bag
I say ‘travel’ because they’re more compact with more storage space. (Available on eBay, most drug stores/chemists)
This is mine, I got it on eBay for $10. It folds out, has lots of compartments, and a handle on the other side.
2. Invisible hair elastics (the kind for tiny braids) for packing/containing
3. Tiny sauce portion cups (or zip lock sandwich bags)
What to Pack
Here’s what’s in mine that helps me:
(from top to bottom)
Instant heat pack (has a little chemical compartment in the centre that bursts under pressure and turns it hot.)
Physio band for stretching aching joints - this is especially helpful if you have to be sitting for long periods, wheelchair, planes, class etc. Use invisible hair elastic to keep it rolled up
Disposable vomit bag
Baby wipes - sweating, vomit
Compression gloves for when my joints start to ache and my hands tremble
Tissues
Bandaids (learning to push a wheelchair will shred your fingers when you’re starting out)
Roll on oil for headaches and anxiety
Spare batteries for TENS machine
TENS machine - gently shocks my muscles to make my back let go of my ribcage
Deep Heat for aching legs
Anti inflammatory gel for shoulders and hands
Emergency medication - nausea, pain, nerve blockers, migraines
Mars Bar for low blood sugar
Squishy stim toy for meltdowns and anxiety
Ear plugs (set) for serious sensory overload - don’t use dirty ear plugs, you can get infections. I have noise cancelling headphones as well but they aren’t as good as ear plugs in emergencies.
Listerine breath strips - in case I puke, also some meds taste vile.
Inhalers (steroid and ventolin)
All packed up, this is what my kit looks like:
I would be really grateful if people could reblog this to help other spoonies. If you have other ideas, I would love to hear them!
Please reblog with your condition and what helps you. Spoonies need to look out for each other.
crossbreeds are so cool
I will take 10 of each please
I didnt want this post to end
everything mixed with a husky gets blue eyes everything mixed with a cogri gets +10 cute everything mixed with a pug gets +50 disgusting amazing
woA HEy edUCATE URSELF
BOSTON TERRIER X PUG
CHIHUAHUA X PUG
CORGI X PUG
DACHSUND X PUG
Don’t dogshame pugs you monster
@connswambo
Your Spoonie Membership
So I was having a day, and I figure if you received a membership letter when diagnosed it would sound a little something like this:
Congratulations!
You’ve received your lifetime membership the Spoonless Society, the club no one wanted to join and never really knew existed until they joined! Membership package includes:
Unbearable pain, crippling doubt in your future, pain, pain, the inability to achieve your life ambitions, pain, brain fog, body weirdness, constantly frustrating and emerging symptoms, pain, the ever moving limitations line, the devastation of realising showering is effectively a work out that you’ll pay for, for a total of no less than three days, and pain.
For our younger members, we have some special subscriptions included in your package. For you detriment we’ve included the ‘You’re too young for helpful treatments’ and ‘You’re young you can____’ add-ons, these include your bonus ‘Why do you need a walking stick?’ ‘You’re not disabled, you’re just lazy,’ and ‘You’re a flake’ for no extra charge.
For further enquiries such as: ‘Why is this happening to me?’ ‘Is it getting worse?’ and ‘ Am I actually dying?’ Please revisit the grieving your life section of the membership brochure or try and find a helpful medical professional, that actually believes you.
Our complaints hotline is operated by people who already think you complain too much, and think you should be relentlessly positive and hopeful, because ‘at least you don’t have cancer’.
This is your life,
P.s the medication that is occasionally mildly helpful comes with a free dose of extreme judgement and an extra serving of horrible side effects. Congratulations, you’re in the club.
Betraying you always, Your body.
When someone is talking to me but I’m just trying not to break down because of pain
[Gif of Megan Fox looking blankly at someone off camera while people walk past her in the hallway.]
Confession #639
What people don’t understand is that I want to get fit. I want to exercise. I want to get back into all the sports I used to do. But if I push myself, do that but of jogging or dance or anything, it hurts so much, for days. My muscles and joints are just a side effect, they’re not even my main illness, so there’s nothing to help or diagnose. I just wish I could make everyone understand that not wanting to be in constant pain is not the same as not being motivated
Just spoonie things
waking up angry because you didn’t sleep well and you’re in worse pain than you were when you went to sleep
Can you relate?
I’ve noticed recently how ‘chronically angry’ I’ve become. The longer a flare lasts, the less able I am to maintain my composure in mildly frustrating situations
So much accuracy
“We carry the same wound But have different cures. Similar injuries, But opposite remedies.”
— Bjork, “Notget,” Vulnicura (via wordsnquotes)
Hopeless Fountain Kingdom Tour by Tamyrys Nóbrega
from weheartit
via weheartit
She’s Beautiful.
Girls.
That’s gramatically wrong
Am I supposed to take advice from someone who couldn’t even spell grammatically correctly? You fool. You absolute coward. I will take your bones.
you dont just play the sims. you go on a sims binge for three days straight then put the game down for 5 months
Ha haha.. this is true..