Things I didn’t realize were from hEDS until recently! 🦓
Disclaimer- a lot of these symptoms can be normal by themselves, if you suspect you have EDS I’d suggest looking into the 2017 diagnostic criteria. Some of these I was told my doctors, others I found online. Just trying to spread awareness for EDS and some of the lesser known symptoms :)
Stretch marks without history of significant weight gain/loss (especially around joints)
Poor vision
Heel papules (lil white bumps on your heel when you stand)
Heart palpitations
Finding odd sitting positions more comfortable
Weak nails (ridges, breaking easily, etc.)
Being unable to walk in heels lmao
Tinnitus
Raynauds
Bad teeth (frequent cavities, dental crowding, etc.)
Holding a pencil oddly, with tight grip
Brain fog
Scoliosis (I don’t have this but my cousin does and so do a lot of other ppl with EDS)
Poor coordination and balance issues
issues with anaesthesia
Flat feet
Long fingers (arachnodactyly is the fancy name)
Getting blisters very easily
GI issues
Anxiety lol
Headaches
Fatigue
Super easy bruising and scarring
Temperature dysregulation
I can go on- there are so many and hEDS is SO much more than weak joints. Honestly the more I learn about it the more frustrated I get that I didn’t get diagnosed earlier. Sending love to any chronically ill ppl seeing this. You are so valid even if you’re undiagnosed <3. And if you have any questions ab hEDS or chronic illnesses in general, feel free to put it in my ask box. I’m not a doctor or anything but I have done a lot of research :)
Edit: would like the clarify that these apply to JHS and HSD as well. Imo they’re essentially the same thing, hEDS just has a stricter diagnostic criteria