WaitFiveMinutes

Because ambulance rides are expensive

[waitfiveminutes]

Right now I'm just really proud of myself for taking my medication on time, or at all.

[waitfiveminutes]

there's few things worse than opening up to someone you thought was a friend about the crippling fear epilepsy gives you only to have them never speak to you again

[waitfiveminutes]

It's nice to see mutuals posting the epilepsy warning for the new star wars movie but I'd like to see just one person who isn't affected say "do we really need these effects? Do they make the movie better? What if they made the movie without them so everyone could enjoy the movie?"

[angelofglory-xo]

I fucking hate epilepsy/seizures

[impromptu-breakdancing]

Look guys my meds go uwu

[impromptu-breakdancing]

WAIT HOLD ON I GOT AN IDEA

[impromptu-breakdancing]

I regret nothing

[waitfiveminutes]

i didn't know they made hospital pants ive been hanging with my butt out for years

[waitfiveminutes]

I guess we're crying about Juice Wrld today

[waitfiveminutes]

im just mad as hell at my epilepsy lately. mostly mad that i can't control it, and mad that i can't control how others perceive it and can't comprehend what it's like to live everyday with the knowledge that a breakthrough seizure is a heartbeat away, and mad that it is never, ever going away

[hyperactivity]

anyone else get like a lil angry when people say they “grew out of” epilepsy. personally im gonna say “stop havin seizures” because i could have another at any given moment

[waitfiveminutes]

I'm seriously considering moving to Europe. I can't take knowing I'm going to spend my life paying all this money for the crime of having epilepsy.

[waitfiveminutes]

People with epilepsy be like: "is this just a headache or a precursor to a horrible seizure?"

[waitfiveminutes]

I left a job because 12 hour days led to my first seizure in four years and now they want the money they paid me during training back. Almost 2k on top of all the medical bills I've incurred since then, I just feel.... bad.

[waitfiveminutes]

not to be poor on main but i haven't eaten since yesterday and I'm terrified low blood sugar is gonna give me a seizure

[waitfiveminutes]

Me: *surfs the web to not think about things*

Internet: Here's a thing about SUDEP. I think you'll like it.

Me: (sarcastically) Thank you internet I desperately wanted to think about that right now. That topic definitely doesn't freak me out at all.

[waitfiveminutes]

I'm coming up on three months without a seizure and I'm pleased for the most part, but I just keep sliding into that negative mindset of "this is forever. no escape." when I take my medication. I just feel trapped, emotionally, physically, and financially. But! We endure, and continue, regardless of what form this takes.

[waitfiveminutes]

NIH study finds anti-seizure drugs equally effective

An NIH-funded study has shown no difference in the efficacy, or adverse effects, of commonly used anti-seizure drugs for status epilepticus.

"...findings reveal that three anti-seizure drugs, levetiracetam, fosphenytoin, and valproate, are equally safe and effective in treating patients with this condition."

[000cdsgjwrtd-deactivated2021081]

People around me: What year is this? What is your name? Should we call someone?

Me after a grand mal: hghhggrrrghhh duck

[fuckepilepsy]