Happy National Hospice Palliative Care Week, fellow Canucks! And happy Nurses’ Week!

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@warmsummersun
Happy National Hospice Palliative Care Week, fellow Canucks! And happy Nurses’ Week!
What do you mean, I’m done a semester already?
Wow, the first semester of my MN has flown by! Here are the highlights:
- There are these things called advanced practice nursing roles, and when you start your graduate program, you are considered an advanced practice nurse (APN). Why the fuck didn’t they talk about APNs in undergrad?
- In Canada, only two APN roles are recognized: the clinical nurse specialist (CNS) and the nurse practitioner (NP).
- I want to get my Ph. D. in nursing, so we don’t know where the fuck I fit in the APN framework, but I’m still an APN.
- Philosophy of nursing was the best course and I will fight people who say otherwise.
- I apparently fall into the social constructionist and postmodernism crowd. Fuck yeah, relativism, fragmentation and ambiguity!
- I wrote a paper related to my thesis and my prof suggested turning it into a manuscript for publication. Writing credits on your CV are the shit, yo.
- My use of f-bombs and swearing in general has increased by about a gazillion percent.
- No more papers until Stats starts in the spring! That requires a happy dance!
Whilst palliative medicine is now a fundamental part of global health care services, this was not always so. Emerging first in the 14th century and developing through to the institutionalised service we know today, this care is vital in providing the best possible quality of life for patients with debilitating and terminal illnesses.
Shout out to my fellow Canadian Balfour Mount who coined the term palliative care. It comes from the Latin palliare meaning to cover, cloak or conceal.
Academia
I just found out I’ll be starting grad school in January. I was admitted to a Masters of Nursing program where I’ll be researching how Medical Assistance in Dying affects Canadian hospice palliative care nurses. My thesis outline proposal snagged me a significant scholarship that I still don’t quite believe I was awarded.
WHAT HAVE I DONE
by Robert Gerard Some thoughts on a transformative program recently completed at Upaya Zen Center I stared at this Tweet because I could not fathom how everybody could be this happy.
Everyone appeared to sparkle with joy, and I felt an astonishing resentment and discontent by what they must have accomplished. This Tweet rapidly crystallized an awareness that I had not been taking care of myself. I feared my capacity to feel happiness for others had vanished for keeps. There was no denying it was a sign of burnout. I had become physically tired at the end of the work day. Time and again I was emotionally drained and needed to sit in my car for several minutes before leaving the hospital just to regain my composure. I sensed, and my palliative care team confirmed, I was periodically grouchy and irritable. I had not been taking vacations regularly throughout the year. The worst blow was intermittently missing my beloved choir rehearsals on Tuesday nights because I couldn’t catch up with notes and patient followups. Professional burnout is real. It is a burden that does not retreat. One can feel physically, emotionally, and mentally sapped. It creeps into your ordinary thoughts leaving one feeling insecure about job performance and clouds the meaning of your work. In retrospect, it had been eroding my life. I explored the program link and hoped I could address my self neglect: Professional Training Program for Clinicians in Compassionate Care of the Seriously Ill and Dying. I recalled seeing Dr Joan Halifax at the 2010 Boston AAHPM assembly and remember how passionately she spoke about compassion and end of life care. The psychosocial, existential, and spiritual aspects of providing end of life care are essential. Clustering these elements, learning in an intimate environment, and being fully secluded from the outside world was very appealing. I found the link to the Upaya podcast recorded from the 2015 conference by presenters Dr Tony Back and Dr Cynda Hylton Rushton. I was fascinated by their sensitivity and focus on the topic Engaged, Not Attached: Being with Dying. I could hear their wisdom with full attention. They were knowledgeable about palliative care and end of life care. They openly explored the roots of compassion and how caregivers face tremendous anguish and helplessness. They explored how the body informs us when it is stressed and how we ignore and override those signals. This presentation refocused my intention to take better care of myself. I immediately requested time off from work to attend the following year’s conference. Fast forward to the Albuquerque airport baggage carousels where I met a group of excited and eager attendees boarding the same shuttle to Upaya’s campus, above the town of Santa Fe, NM. The campus contains what is described as a Zen Buddhist practice, service, and training center. I was entering a new terrain in the high desert, far away from my suburban Maryland hospital palliative care practice. Upon arriving, I was warmly received by the resident staff, easily recognized not only by their simple black garb but also by their mindfulness to the task at hand. I knew setting out, this journey would travel deeply into the roots of my professional work found in AAHPM assemblies, EPEC trainings, and professional retreats at the Center for Mind Body Medicine I attended. I didn’t realize it would also repair my insight, rehabilitate my empathy, and cultivate compassion and mindfulness so effectively. What set this program apart from formal educational training was the thoughtful pacing of work sessions that also permitted time for self-reflection. We were obligated to remain in silence outside of work sessions. This was suitable to accomplish inner work but it did push me to the edge of my comfort zone. Finding and exploring this “edge” was a theme our faculty visited and I experienced throughout the week. By the end of the program I declared these 54 CME credits to be the most demanding I’ve earned since medical school and residency training. I, along with 60 other end of life professionals, gathered in the zendo (meditation hall) every morning for daily guided meditations with Roshi Joan. These remarkable meditations can be found in her book: Being with Dying. She led us to a space where we could reflect on loving kindness, compassion, sympathetic joy, and equanimity. We also were led to explore our own mortality or practice visualizing the taking in of suffering and giving out of comfort to those around us. The daily 30 minute yoga practice physically challenged my body and helped to calm my mind. The daily meeting with a council strengthened connections with a wonderful group of health care providers and gave me space and time to voice feelings. We had opportunities to work in small groups throughout the week for thought provoking exercises. The late afternoon meditation gathering in the zendo gave me time to peacefully center myself after a long day of didactic and reflection sessions. The evening wrap-up helped reinforce what I had experienced during the day. The days were very long but I didn’t feel fatigued. During the week, the neuroscience didactic sessions explored many interesting topics like neuroplasticity. I learned how my mind’s default is to aimlessly roam like a guppy and naturally hard wire the effect of distress on our body. It became apparent through scientific studies that training the mind with meditation and mindfulness can increase happiness and reduce self imposed physical distress. I caught on that my mind frequently overstimulates the parasympathetic branches of the vagus nerve and muffles my voice and breath in times of stress. After several days of meditation and reflection, our group was prepared to spend intensive time with a challenging ethical case that would touch upon moral distress, and moral outrage. Not unexpectedly, it was a challenge to leave a supportive and nurturing retreat and to re-enter the outside world as I knew it. Throughout the week and beyond, I began to feel more comfortable in my body. I could begin to understand the benefits of a frequently repeated phrase during the week, “strong back and soft front” that rewards vulnerability with strength and support. All too often in life, I have carried a defended front and a burdened back. After returning to work, I learned to be more mindful of physical feelings of distress that I had ignored before. I gave myself permission to pause and set my intention in the moments before entering a room to engage a patient or family. More than once in my career, I sailed into a room without a hand on the helm and managed to lose trust of a patient or family simply by not being attuned and grounded. Our ethical case presentation at Upaya helped me look at hospital based dilemmas with a different lens and focus. I can disclose I have a restored energy, renewed passion for end of life work, and a more spacious place for inner work. Although I am still prone to the stressors of work, I now recognize the signs of burnout quickly and address them. And now looking back at the retreat Tweet, I’m filled with appreciation, gratitude, and joy! I realize that this self-care is as essential to my professional work as the sun is to a garden. I’m trying to make these few simple changes permanent fixtures because life itself hangs by a breath.
Robert Gerard is a palliative care physician with the Mid-Atlantic Permanente Medical Group. He is the physician lead for Schwartz Center Rounds at Holy Cross Hospital, Silver Spring Maryland and can be followed on Twitter @rhgerard. He finds work/life balance and rejuvenation as a singer with the National Philharmonic Orchestra and Chorale and is looking forward to an exciting season of concerts beginning November 5th, 2016.
BWD alumi, 2012. So, so worth it to go.
When you turn the patient and they try to die
That moment when ...
I make a conscious decision at the door of my apartment to leave my stethoscope at home. This visit is as a friend not a doctor. I need to remember my dying friend is just that and not my patient.
Until I get there. And he is breathing agonally. And grimacing. Though non responsive he is obviously uncomfortable.
And suddenly I’m back to being a doc with palliative skills. Administering narcotics that provide enough relief that he can say goodbye to his sister. Advising his wife on what to do when my beautiful friend passes tonight.
Before I can go back in by myself. Kiss his forehead. Tell him my friend Death is waiting to escort him across the desert of time to the next musical venue. Then I get to cry. And be a friend. A friend with skills that come in handy when my friends need them most.
Probably the longest - and best - article written about death and dying ever written.
STORY TIME:
I work in a decent sized, local, indie bookstore. It’s a great job 99% of the time and a lot of our customers are pretty neat people. Any who, middle of the day this little old lady comes up. She’s lovably kooky. She effuses how much she loves the store and how she wishes she could spend more time in it but her husband is waiting in the car (OH! I BETTER BUY HIM SOME CHOCOLATE!), she piles a bunch of art supplies on the counter and then stops and tells me how my bangs are beautiful and remind her of the ocean (“Wooooosh” she says, making a wave gesture with her hand)
Ok. I think to myself. Awesomely happy, weird little old ladies are my favorite kind of customer. They’re thrilled about everything and they’re comfortably bananas. I can have a good time with this one. So we chat and it’s nice.
Then this kid, who’s been up my counter a few times to gather his school textbooks, comes up in line behind her (we’re connected to a major university in the city so we have a lot of harried students pass through). She turns around to him and, out of nowhere, demands that he put his textbooks on the counter. He’s confused but she explains that she’s going to buy his textbooks.
He goes sheetrock white. He refuses and adamantly insists that she can’t do that. It’s like, $400 worth of textbooks. She, this tiny old woman, bodily takes them out of her hands, throws them on the counter and turns to me with a intense stare and tells me to put them on her bill. The kid at this point is practically in tears. He’s confused and shocked and grateful. Then she turns to him and says “you need chocolate.” She starts grabbing handfuls of chocolates and putting them in her pile.
He keeps asking her “why are you doing this?” She responds “Do you like Harry Potter?“ and throws a copy of the new Cursed Child on the pile too.
Finally she’s done and I ring her up for a crazy amount of money. She pays and asks me to please give the kid a few bags for his stuff. While I’m bagging up her merchandise the kid hugs her. We’re both telling her how amazing she is and what an awesome thing she’s done. She turns to both of us and says probably one of the most profound, unscripted things I’ve ever had someone say:
“It’s important to be kind. You can’t know all the times that you’ve hurt people in tiny, significant ways. It’s easy to be cruel without meaning to be. There’s nothing you can do about that. But you can choose to be kind. Be kind.”
The kid thanks her again and leaves. I tell her again how awesome she is. She’s staring out the door after him and says to me: “My son is a homeless meth addict. I don’t know what I did. I see that boy and I see the man my son could have been if someone had chosen to be kind to him at just the right time.”
I’ve bagged up all her stuff and at this point am super awkward and feel like I should say something but I don’t know what. Then she turns to me and says: I wish I could have bangs like that but my darn hair is just too curly.“ And leaves.
And that is the story of the best customer I’ve ever had. Be kind to somebody today.
Choose to be kind, that is something you always have control over.
When my alcoholic uncle died - and how it impacted my life as a nurse
A recent post from another nurse was so beautifully honest and vulnerable that it made me lose my snark and just get human for a minute. So I will share an experience and I have permission from all involved. I had an uncle who was a terrible alcoholic. It ravaged every aspect of his life, his work as a union tradesman, his ability to be a father or husband and his relationships with his brothers and sisters. My mom and I often visited him when he’d get admitted to the floor. I could never bear to see him in the ER. Dirty, belligerent, withdrawing in the DTs. I was embarrassed because I knew he was a frequent flier. I was embarrassed that I was embarrassed. We tried to drop him groceries and buy his Dilantin every month, but he moved around a lot, mostly renting rooms above taverns. He wanted nothing to do with sobriety. He used drugs when he could, but whiskey was his poison. In the end he only tolerated a few beers a day to keep away the shakes. To any nurse or medic or doc who new him he was a local drunk, but to me he was my uncle. I knew him as a kind loving man as well. I remember family BBQs and him tossing me up in the air as a kid. I remember him showing up drunk to thanksgiving and not making it out out of the car before passing out. I remember the disappointment in my family’s faces. I remember the shame in his eyes. I remember driving around his neighborhood looking at the entrances of taverns to see if he was passed out. I wondered if anyone would know to call us if he died. I wondered if he even had any I.D. But they did call. And I knew when I saw him at age 55 in the ICU Weighing 90 lbs dying of Hep C and esophageal CA that he didn’t have a lot of time left. I was a nursing student and an ER tech but I knew in my heart this time was different. I saw people fear him. I saw nurses treat him as if he was a leper. One yelled at him to be still while she gave him a shot of heparin and he grimaced in pain. Nurses came in one by one to start a heplock and he grimaced in pain. Despite knowing better after the 4th nurse was unsuccessful I begged them to stop and give him a break. My hospital I worked accepted him into impatient hospice. I was relieved. When he arrived I saw the 2 EMTs toss him on the hospice bed and walk out without saying a word while he grimaced in pain. They probably got held over and he probably didn’t seem like an urgent transport. They didn’t want to touch him. I didn’t say anything. I was scared to touch him too. He was emaciated with a huge head and a gaunt appearance. I wondered if he had AIDS. I felt bad for thinking that. I still kissed his forehead and told him he was going to be okay. Because I loved him. He was my family. And then I saw nurses treat him with kindness. I saw the beauty of a non judgemental hospice team make his last 96 hours on Earth a time where he could make peace with his demons. I saw Roxy drops for the first time and I saw him get some relief from the pain of untreated cancer, from the pain of dying. I saw them allow me break the rules and lift his frail body into a wheelchair, fashion an old fashioned posey to hold him up and take him down stairs for his last cigarette on Route 30. I was able to spend my breaks with him. I got to suction him and help give him a bed bath. I got off my 3-11 shift and spend a few hours with him watching a baseball game on replay. I sat with him in silence and I held his hand. I finally knew what people meant when they said the dying watch their life play out in their minds. I swear I could see it happening. I asked him if he was thinking about things he said “yep”. I asked him if he wanted me to stay or go and he said “stay”. So I stayed. I heard the death rattle for the first time. I cried to a veteran hospice nurse and she explained how the Scopolamine patch would help. I finally felt what it was like to be helpless to a family member in need and her words of comfort and years of experience meant everything to me. She said he probably had 48 hours at the most. I read “Gone from my sight” the blue book of hospice by Barbara Karnes. The whole family trickled in. His kids, all his brothers and sisters and nieces and nephews. His children told him they loved him and they forgave him. We kissed his forehead and washed his hair. My mother shaved his face. His daughter said words of kindness that relieved him of any guilt or regret. I saw this beautiful cousin of mine watch me suction him and she asked how I could be so calm and so strong. I didn’t feel strong or knowledgeable but when you are the “medical person” in the family they see things in you that you didn’t know you had. We surrounded him with love and light and he died surrounded by everyone who ever meant anything to him. The nurses even cried. I got to see the dying process for what it was. It was beautiful and at the same time so humbling it brought me to my knees. I have never forgotten that feeling and I pray I never do. Is alcoholism a disease? We debate it as health care providers and wonder about the others whose lives have been impacted by the actions of an alcoholic. The amends that never got made. I guess I don’t care if it’s a disease, a condition, or a lifetime of conscious choices and poor judgement. In the end it’s a human being, usually a dirty foul smelling human being with missing teeth who may or may not be soiled in urine and vomit. Sometimes kicking, hurling obscenities, racial slurs, or spitting. Often doing all of the above at once. It’s hard to empathize with a human being who arrives packaged up that way. It’s hard to care or to want to go above and beyond. And I don’t think you should ever feel guilty if you don’t have those feelings. That is okay. It’s natural to wonder about the damage these people may have done to others. Wonder how many lives they might have ravaged. Please don’t take their pain as your own. At least try not to. It is not your pain to carry. And we all know that is easier said than done. But please, Treat them with dignity. They feel. They hear you. Give them the care you know you are capable of giving. I can tell you I hold a special place in my heart for every nurse who touched my uncle with a gentle hand. Who cleaned him for the fifth time when he was vomiting stool. Who asked him to smile. Who smiled back at him. Who stroked his forehead and put a cool washcloth on it. I am eternally grateful for anyone that saw beyond his alcoholism and saw a person. A human. A child of God (if you believe in God). A father. A son. An uncle. And I believe in my heart he felt the same way, even if he didn’t or couldn’t say it. If you have that patient. That difficult, hard to like, dreadful patient. Don’t think you have to love them or even like them. You don’t. But if you can preserve their dignity and show them the kind of nursing care that anyone would deserve, than you are good. You are the reason we are the world’s most trusted profession. And even though you don’t know it, someone saw and felt it, and it meant the world to them. Go to bed and sleep soundly because you deserve that. - J.R. RN
…wow.
Now go back and read it again.
here you go, dear
Happy Nurses Week.
To the student nurses, who are just getting their feet wet and wondering what they’re in for.
For the new grad nurses, whose feet are wet, are still wondering what they’re in for and I’m sorry but what is this on my shoe?
For the experienced nurses, who know better than to look at their shoes any more.
For ortho nurses, who can wrangle anyone into a brace and know how to get you to the bathroom when you’re in a knee immobilizer, a shoulder immobilizer, and two wrist splints.
For cardiac nurses, who can read a rhythm strip from a mile away, are no strangers to pacer pads, and aren’t worried until your run of Vtach hits 20 beats.
For post op nurses, who can identify every drain you know and a few you don’t, who can pop stitches and staples out in 10 seconds without making you flinch, and change a surgical dressing in their sleep.
For med-surg nurses, who will handle the highest ratios and become pros at doling out 120 pills before 9am.
For renal nurses, OR nurses, emergency nurses, observation nurses, palliative and hospice care nurses, home health nurses, wound nurses, PICC nurses, infusion nurses, clinic nurses, nurse practitioners, nursing professors, oncology nurses, critical care nurses, neuro nurses, and the literal hundreds of other nursing specialties I can’t name.
Thank you for all that you do, and all that you will do.
Happy National Hospice Palliative Care Week, my fellow Canucks!
Meaningful ways to repurpose funeral flowers, plants and floral arrangements after a funeral/burial service.
Evidence indicates that the earliest confirmed use of flowers at the funerals/burials of human beings occurred in Raqefet Cave, located in Mt. Carmel, Israel, some 14,000 years ago. While the survivors there used flowers to line the graves of the deceased, the use of floral bouquets and arrangements at funeral and interment services has become ubiquitous today – to the point that some families now include the phrases “Please omit flowers” or “In lieu of flowers…” in published obituaries in order to limit the number of floral sympathy offerings received.
While survivors generally appreciate both the beauty of these flowers and the thought behind them, many people simply do not know what to do with these arrangements after the funeral and/or burial services. This article offers several meaningful ways you can “repurpose” the flowers, plants and floral arrangements used at funeral and interment services instead of simply throwing them away.
I love getting floral donations at the hospice from funerals! We take the displays apart, split up the flowers and put out vases throughout the hospice. It’s always a nice surprise.
Doctors may treat dying patients for too long, finds BMA report | Society | The Guardian
Eight years ago today I was offered my first job in hospice and I haven’t looked back since.
I thought about waiting until the ten year anniversary to post this, but that would mean I haven’t learned anything from working in palliative care. :)