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You know you have EDS when...

@wheneds-blog

welcome to the world of bizarre things that happen when you have Ehlers Danlos syndrome... Just an Ehlers Danlos Student trying to bring some humour to the EDS community and more awareness! :) keep well spoonies xxx *most content is not mine*

202 posts

Apr 24, 2018

Spoonie power!!

#ehlers Danlos Syndrome #ehlers Danlos #hypermobility #hypermobileeds #hypermobile #chronically ill #chronic fatigue #autoimmune #autoimmine disease #spoonie #chronic disorder #chronic disease #zebra #disability #disabled #medicine #warrior

Mar 10, 2018

#ehlers danlos syndrome #ehlers danlos problems #ehlers danlos zebra #ehlers Danlos #ehlers Danlos life #hypermobility #hypermobile ehlers danlos syndrome #hypermobilty syndrome #hypermobile #chronically ill #chronic fatigue #disability #disabled #chronic illness #pain #zebra #invisible disability #invisible made visible

Jan 23, 2018

‘Specialist’ Doctors

You know your condition is rare when the top specialist doctor goes - ‘We don’t really understand the condition, maybe you’re at the wrong hospital for your care’

#rare #zebra #Postural Orthostatic Tachycardia Syndrome #zebra problems #rare diseases #rare disease #rare disorders #rare disability #chronic fatigue #chronic pain #chronic illness #chronic #chronic life #disease #medical #disability #disabled #invisible disability #chronic disability #invisible disabilities #doctors #specialist #Hospital #zebra life #spoon theory #spoonie

Jan 11, 2018

Dislocation fun

Me: I almost dislocated my shoulder and wrist trying to put my rib back in place....

friend: .....

#ehlers danlos syndrome #ehlers danlos problems #ehlers danlos #ehlersdanloslife #ehler danlos syndrome #ehlers danlos zebra #chronic fatigue #chronic pain #chronic illness #chronic #chronic life #medical #disease #disability #dislocated #disabled #rare disease #invisible disability #chronic disability #invisible disabilities #Hypermobility #Hypermobility Syndrome #Joint Hypermobility Syndrome #Postural Orthostatic Tachycardia Syndrome #hyper mobility syndrome #hypermobile #Hospital #spoon theory #spoonie #medicine

Dec 27, 2017

#chronicallyilllife

#ehlers danlos syndrome #ehlers danlos problems #ehlers danlos #ehlers danlos life #ehler danlos syndrome #chronic fatigue #chronic pain #chronic illness #Postural Orthostatic Tachycardia Syndrome #chiari malformation #chronic #chronic life #chronically ill #medical #disease #medicine #disability #dislocated #disabled #rare disease #Hypermobility #Hypermobility Syndrome #Joint Hypermobility Syndrome #hyper mobility syndrome #hypermobile #zebra #zebra problems #zebra life #invisible #pain

Dec 20, 2017

#ehlers danlos syndrome #ehlers danlos problems #hypermobility #hypermobile ehlers danlos syndrome #hypermobileeds #hypermobile #chronic fatigue #chronic disease #chronic disability #chronic problems #disability #disabled #spoonie #spoon theory #invisibledisability #invisible made visible #zebra

Nov 11, 2017

love this video <3

#ehlers danlos syndrome #ehlers danlos problems #ehlers danlos #ehler danlos syndrome #ehlers danlos zebra #ehlers danlos type 3 #Hypermobility #Postural Orthostatic Tachycardia Syndrome #Hypermobility Syndrome #Joint Hypermobility Syndrome #hyper mobility syndrome #hypermobile #chronic fatigue #chronic pain #chronic illness #chiari malformation #chronic #chronic life #disease #disability #dislocated #disabled #rare disease #invisible disability #chronic disability #invisible disabilities #disabled life #spoon theory #spoonie #pain

Nov 10, 2017

#ehlers danlos syndrome #ehlers danlos problems #ehlers danlos #ehler danlos syndrome #ehlers danlos zebra #Hypermobility #Postural Orthostatic Tachycardia Syndrome #Hypermobility Syndrome #Joint Hypermobility Syndrome #hyper mobility syndrome #hypermobile #hypermobilty syndrome #chronic fatigue #chronic pain #chronic illness #chiari malformation #chronic #chronic life #disease #disability #dislocated #disabled #rare disease #invisible disability #chronic disability #invisible disabilities #pain #Faint #invisible #invisible illness

Oct 29, 2017

medications

when you take so many tablets you begin to feel like a maraca....

#ehlers danlos syndrome #ehlers danlos problems #ehlers danlos #ehler danlos syndrome #ehlers danlos zebra #ehlers danlos type 3 #Hypermobility #Postural Orthostatic Tachycardia Syndrome #Hypermobility Syndrome #Joint Hypermobility Syndrome #hyper mobility syndrome #hypermobile #Postural Hypotension #hypermobilty syndrome #hypermobileeds #hypermobile ehlers danlos syndrome #chronic fatigue #chronic pain #chronic illness #chiari malformation #chronic #chronic life #tpn #zebra #zebra problems #zebra life #zebragirls #medical #medicine #medication

Sep 25, 2017

for anyone who needs reminding that we are all superheroes x

#ehlers danlos syndrome #ehlers danlos problems #ehler danlos syndrome #ehlers danlos #ehlers danlos zebra #Hypermobility #Postural Orthostatic Tachycardia Syndrome #Hypermobility Syndrome #Joint Hypermobility Syndrome #hyper mobility syndrome #hypermobile #chronic fatigue #chronic pain #chronic illness #chiari malformation #chronic life #chronic #medical #disease #medicine #disability #dislocated #disabled #rare disease #invisible disability #chronic disability #invisible disabilities #disability life #invisible #invisible illness

Jul 23, 2017

Anyone else feel like this sums up their life at the moment? :(

#ehlers danlos syndrome #ehlers danlos problems #ehlers danlos #ehler danlos syndrome #ehlers danlos type 3 #ehlers danlos zebra #Hypermobility #Postural Orthostatic Tachycardia Syndrome #Hypermobility Syndrome #Joint Hypermobility Syndrome #hyper mobility syndrome #hypermobile #chronic fatigue #chronic pain #chronic illness #chronic #chronic life #disease #medical #medicine #disability #dislocated #disabled #rare disease #pain #joint pain #pass out #zebra pain #ehlers danlos pain #invisible

Jul 19, 2017

#ehlers danlos syndrome #ehlers danlos problems #ehlers danlos #ehler danlos syndrome #ehlers danlos type 3 #ehlers danlos zebra #chronic pain #chronic fatigue #chronic illness #chronic life #chronic #Postural Orthostatic Tachycardia Syndrome #medical #disease #medicine #disability #disabled #rare disease #rare #rare disorders #rare disability #zebra #zebra problems #pots #potsy #POTS problems #spoon theory #spoonie #invisible #invisible illness

Jul 5, 2017

#ehlers danlos syndrome #ehlers danlos problems #ehler danlos syndrome #ehlers danlos zebra #ehlers danlos #ehlers danlos type 3 #Hypermobility #Hypermobility Syndrome #Postural Orthostatic Tachycardia Syndrome #Joint Hypermobility Syndrome #hyper mobility syndrome #hypermobile #sleep #can't sleep #sleep deprived #medical #disease #medicine #disability #dislocated #disabled #rare disease #invisible disability #chronic disability #invisible disabilities #pain #chronic pain #joint pain #pass out #joint

Jun 9, 2017

Anyone else feel like invisible disabilities are like duck’s on water, everyone thinks we’re doing fine, and yet we’re frantically paddling to keep going inside!

#duckonwater #ehlers danlos syndrome #ehlers danlos problems #ehlers danlos #ehler danlos syndrome #ehlers danlos zebra #ehlers danlos type 3 #Hypermobility #Postural Orthostatic Tachycardia Syndrome #Hypermobility Syndrome #Joint Hypermobility Syndrome #hyper mobility syndrome #hypermobile #chronic fatigue #chronic pain #chiari malformation #chronic illness #medical #disease #medicine #disability #dislocated #disabled #rare disease #invisible disability #chronic disability #invisible disabilities #rare #zebra #zebra problems

May 14, 2017

What other suggestions have people had? :D

#ehlers danlos syndrome #ehlers danlos problems #ehlers danlos #ehler danlos syndrome #ehlers danlos zebra #ehlers danlos type 3 #Hypermobility #Postural Orthostatic Tachycardia Syndrome #Hypermobility Syndrome #Joint Hypermobility Syndrome #hypermobile #hypermobile joints #chronic fatigue #chronic pain #chronic illness #chiari malformation #chronic #chronic life #medical #disease #medicine #disability #dislocated #disabled #rare disease #invisible disability #chronic disability #invisible disabilities #pain #joint pain

Apr 19, 2017

When someone asks what condition you have....

#ehlers danlos syndrome #ehlers danlos problems #ehlers danlos #ehler danlos syndrome #ehlers danlos zebra #ehlers danlos type 3 #Hypermobility #Postural Orthostatic Tachycardia Syndrome #Hypermobility Syndrome #Joint Hypermobility Syndrome #hyper mobility syndrome #hypermobile #hypermobile joints #chronic fatigue #chronic pain #chronic illness #chiari malformation #chronic #chronic life #medical #disease #medicine #limited edition #disability #dislocated #disabled #misunderstood #rare disease #diagnosis #Hospital

Apr 3, 2017

#ehlers danlos #ehlers danlos syndrome #ehler danlos syndrome #ehlers danlos problems #ehlers danlos zebra #ehlers danlos type 3 #Hypermobility #Joint Hypermobility Syndrome #Postural Orthostatic Tachycardia Syndrome #Hypermobility Syndrome #hyper mobility syndrome #hypermobile #hypermobilty syndrome #chronic fatigue #chronic pain #chronic #chronic illness #chronic life #medical #disease #medicine #disability #dislocated #disabled #rare disease #invisible disability #chronic disability #invisible disabilities #Hospital #spoon theory

You know you have EDS when... @wheneds-blog - Tumblr Blog | Tumgag